About

Member has chosen to not make this information public.

Posts (2792)

52 minutes ago · How You Experience Autism in Autism (ASD)

JAne- It is exhausting. When my sister was in the ICU it was terribly exhausting. But the nurses were there to answer questions and we could see her. That was the big thing for me. Take today to rest, even if your brain won't shut off. Order in a meal. Take care of yourself! xxoo

2 hours ago · Let’s Go Walking! Join me for a virtual walking support group in Cancer: Managing Symptoms

We can all do 5 minutes, inside or out! This is not a contest at all. It is to improve our health and doing it with all of our Connect friends. Some of us already walk 30 minutes and hopefully, they will have encouraging words and words of inspiration! Bring an umbrella and hat or mittens if need be. Plug in some music to help with building up speed as you get further along!

3 hours ago · Emotional health after cancer in Cancer

@jeffk– Checking in to see how you are doing.

3 hours ago · Occupational Asthma; secondary to isocyanate exposure aircraft paint in Lung Health

@scottjeffe– Good morning. I am familiar with the term but for those who do not here is a link to best describe Occupational Asthma.

https://www.mayoclinic.org/diseases-conditions/occupational-asthma/symptoms-causes/syc-20375772?page=0&citems=10

You have had this for quite a few years, 32. What treatments have you had so far?

3 hours ago · Mysterious shortness of breath in Lung Health

@pc72– You are very welcome. I'm here when you want me! It looks like you covered everything in all of your doctor's visits. Seeing a GI doctor is, of course, the best thing at this point. I'm glad that you have an appointment. As far as vertigo and hypothyroidism go I find that when there are things wrong with us our stress levels go up which does quicken our breathing and maybe we don't take as deep a breath.
Here is a patient's guide to Mayo Clinic: https://www.mayoclinic.org/patient-visitor-guide

https://www.mayoclinic.org/patient-visitor-guide/all-about-appointments

4 hours ago · XALKORI (crizotinib) in Lung Cancer

@2onlow8– Good morning. Good for you. You seem to have everything covered. There are also a number of good exercise videos on youtube if you get bored or run out of ideas. I'd also like to invite you to a new virtual walking group on Connect.

https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/

Do you get out and walk? If not there are exercises for people who can't walk outside or who need to sit in a chair. Is this something that you might be interested in?

4 hours ago · Multifocal Adenocarcinoma of the lung-continual recurrences in Lung Cancer

@meka– That's great. When do you have breathing problems and what do you do to help yourself breathe easier?

4 hours ago · Seeking a Second Opinion in Visiting Mayo Clinic

@cindo – I also welcome you to Mayo Clinic Connect. I am the mentor for the Lung Cancer Group for Connect. You might want to join in our discussions and also see if they help answer a lot of your sister's questions.

https://connect.mayoclinic.org/group/lung-cancer/

I also have NSCLC stage 4A. I have a lung cancer called Multifocal adenocarcinoma. Although I am stage 4 the A is for non-metastatic cancer.
It depends on where your sister lives or where she is able to travel to where she wants her second opinion to come from. I have been treated at Mass General on the east coast.

https://www.massgeneral.org/cancer-center/?gclid=CjwKCAiAy9jyBRA6EiwAeclQhKatOOcOVqZdc0W-zllRvicOhCGNhvQNVhbJThDdgls42K1AArAk_RoCiWwQAvD_BwE

Please let me know if I can be of further help. I'd love to answer any questions that your sister may have. DO you live with her? Other than you does she have a support system that can drive her or stay with her if she needs help? How is your sister feeling? Other than her lungs where is your sister's cancer?