About

Member has chosen to not make this information public.

Posts (1313)

4 days ago · Rhabdomyolysis - Long-Term Recovery & Chronic Pain in Bones, Joints & Muscles

Hello @luannekaylee. You may notice I merged your discussion into another discussion titled, "Rhabdomyolysis – Long term recovery & Chronic Pain." I did this so you could meet @alizawerner who recently posted about dealing with this diagnosis as well. If you are replying by email, click VIEW & REPLY in your notification and you will be brought to the new location of your post and so that you can read @alizawerner's posts.

@srmora1, welcome to Connect. Community guidelines state members need to be careful about giving out medical advice and that sharing your own experience is fine, but don't tell other members what they should do. https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/. Is this a diagnosis you have dealt with personally and had success with the above regimen you shared?

4 days ago · Frequent Blood Transfusions in Blood Cancers & Disorders

Hello @1223connect, welcome to Connect. If you don't mind sharing more for other members on Connect, are you receiving blood transfusions to address your anemia diagnosis? I'd like to invite @81ue who discussed frequent blood transfusions for their diagnosis of B-cell leukemia to share their experience with getting a diagnosis and the transfusions themselves. I'd also like to invite @catcatanzaro60 who talked about receiving transfusions as a result of their anemia.

You can check out those discussions here:

Blood Cancers & Disorders > Anemia > https://connect.mayoclinic.org/discussion/anemia-1/
Blood Cancers & Disorders > B-cell prolymphocytic leukemia (B-PLL) > https://connect.mayoclinic.org/discussion/b-pll

Wed, Sep 11 2:29pm · Rhabdomyolysis - Long-Term Recovery & Chronic Pain in Bones, Joints & Muscles

Hello @alizawerner, and welcome to Connect. I'd like to invite a few members back to Connect that previously talked about rhabdomyolysis. @bonnieh, @jerry4info, and @pamelars60 all mentioned rhabdo in the past.

Here are a few other discussions on Connect you may find interesting according to your other diagnoses as well:

– Chronic Pain > Feeling at my whits end with chronic pain and fibromyalgia > https://connect.mayoclinic.org/discussion/feeling-at-my-with-end-with-chronic-pain-and-fibromyalgia/
– Chronic Pain > Fibromyalgia > https://connect.mayoclinic.org/discussion/fibromyalgia-3/

@alizawerner, how does your fibromyalgia play affect or associate to your rhabdomyolosis? With both diseases causing muscle pains, have your providers been able to pinpoint the cause, or do they think it is a combination of both?

Wed, Sep 11 2:11pm · 1 year anniversary of TKR in Joint Replacements

@ellerbracke, your experience is quite similar to mine as well. I'm thirteen years out from my replacement. My recovery after the initial surgery was slow and rough. I had to have a couple of manipulations due to aggressive scar tissue formation. Eventually, I reached full extension, although my flexion only reached 105'ish. To this day, I get some minor discomfort at times from some of the same activities you mentioned. I refuse to kneel on the replaced knee, it is beyond uncomfortable and painful and I was instructed to avoid doing so if possible. I also get the crunching feeling but I suspect and am reasonably positive that the above mentioned symptoms for me are caused by the scar tissue I was never able to break up.

Like you, I don't really have much discomfort day-to-day unless I push it too hard and over time you learn your limits. You asked if that is about average? For me, it was pretty close, but I did see gains well in to 18 months after the surgery, so there is the possibility you can still reach some new milestones and get over some of your barriers.

@ellebracke, does your knee limit your from doing anything that you'd like – activity wise?

Mon, Sep 9 2:15pm · Lumbar Steroid Injection vs Facet Nerve Block in Bones, Joints & Muscles

Hello @babette. I'd like to invite some members who have experience with lumbar injections and/or facet nerve blocks. @grandmar, @sandytoes14, @jmweissler, @candrgonzalez, and @seanbeck who have all talked about one or both of the treatments you mentioned.

@babette, what concerns do you have in regards to your upcoming nerve block?

Wed, Sep 4 11:20am · Expectations of Recovery after Revision Surgery in Joint Replacements

In addition to the members @debbraw invited to this conversation, I'd also like to invite @holybible, @8287usmc, @nise2uss, @katrine, @binblessed, and @izabel who have all had a hip revision or are potentially facing a revision that may find this conversation of value as well.

Wed, Sep 4 10:08am · Sacroilliac Joint Pain & Fusion in Spine Health

Hello @jmweissler. You may notice I brought your updated post back to your original post so that when members join the discussion, they are in the same discussion. That is a lot of surgeries @jmweissler, is your provider confident that proceeding with the SI joint fusion will help with the pain as well as be a long-term solution? I'd like to invite a few more members who have had issues with SI Joints, @gldnrtrvrlvr and @rhondas.

Wed, Sep 4 8:43am · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hello @faithwalker007, welcome to Connect. I wanted to share a discussion with you that you may find worth your time to look through and introduce yourself in as well, "CRPS," https://connect.mayoclinic.org/discussion/crps-2/. This discussion is focused on members living with and coping with CRPS.