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Posts (1252)

5 hours ago · CLL - Referral to CLL Specialist in Blood Cancers & Disorders

Hello @pebbles. Your observation is right about the break in posts within this discussion. Sometimes conversations on Connect go quiet for a period of time, but can become animated again when someone posts a relevant post. @pebbles, if you are comfortable, do you have any insight you could share with @jvertalka?

5 hours ago · Chronic Back Pain for Years in Spine Health

Hello @ruby2019. You may noticed that I moved your discussion and combined it with another discussion titled, "Chronic Back Pain for Years." I did this so you could meet all of the members on Connect already discussion chronic back pain. If you are replying by email, you can click on VIEW & REPLY to be brought to the new location of your post and so that you can read through some of the other posts from members.

Here are a few other discussions you may find interesting as well:

Spine Health > Facet Joint Injections – Anyone had success? > https://connect.mayoclinic.org/discussion/facet-joint-injections-anyone-had-success/
Spine Health > Chronic Pain and Spinal Fusion > https://connect.mayoclinic.org/discussion/chronic-pain-and-spinal-fusion/
Spine Health > Spine Lumbar fusion surgery > https://connect.mayoclinic.org/discussion/spine-lumbar-fusion-surgery/

6 hours ago · Jaw osteomyelitis in Bones, Joints & Muscles

Hello @k245888, welcome to Connect. I'd like to introduce a few members who have talked about osteomyelitis here on Connect, albeit different areas of the body. @konniehoover, @carole1, @pmaze2663 have all discussed osteomyelitis on Connect in the past and I am inviting them back to Connect to share their experiences with treatment and management.

@k245888, you mention that you have already had two debridements along with 2 PICC lines with antibiotics that have been unsuccessful. If you are comfortable sharing, has your provider identified the type of bacteria/germ that has infected your bones? Here is what Mayo Clinic has to say as far as treatment for myelitis, https://www.mayoclinic.org/diseases-conditions/osteomyelitis/diagnosis-treatment/drc-20375917, which sounds similar to the path your current provider has taken.

4 days ago · Trigger Finger Surgery in Bones, Joints & Muscles

Hello @daniel2709. I'd like to invite a few members who have discussed trigger finger here on Connect. @capausz, @bonnieh218, @texasmama (who mentioned a child having release surgery), @samanthavon, and @shenriq have all discussed trigger finger and various treatments for it.

@daniel2709, Mayo Clinic mentions a few different surgical options, https://www.mayoclinic.org/diseases-conditions/trigger-finger/diagnosis-treatment/drc-20365148: percutaneous release or a more involved surgery. If you are comfortable sharing, do you know what type of procedure you will be having?

4 days ago · ET - Essential Thrombocythemia & Fainting in Blood Cancers & Disorders

Hello @shenriq, it has been awhile since you discussed your fainting. How are things going and how are you doing halfway in to the summer?

6 days ago · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Hi @jayhawk57, I combined your post with your previous discussion on the same topic. I see you also had a chance to meet some of the other members in the Media Arcuate Ligament Syndrome (MALS) discussion, https://connect.mayoclinic.org/discussion/median-arcuate-ligament-syndrome-mals/?pg=51#comment-293773, as well. @jayhawk57, even though your tests indicate that your stomach is normal, did your provider have any opinions or concerns with your stomach issues that are similar to prior to your surgery?

Fri, Jun 28 1:46pm · Multiple Myeloma in Blood Cancers & Disorders

Hello members of the multiple myeloma discussion. As I am sure many of you have already met and discussed with @1nan, I thought I would share her member spotlight with you so you could get to know her a bit more in a different way, https://connect.mayoclinic.org/page/about-connect/newsfeed-post/thinking-smart-not-scared-meet-1nan/.

Thu, Jun 27 8:49pm · Fibromyalgia in Chronic Pain

Hello @rnicoletti, I'd like to add my welcome to @lioness'. You may notice that I merged your discussion titled "Fibromyalgia" in to another discussion of the same title. I did this so the members already discussing fibromyalgia would see your message and have a chance to respond. If you are replying by email, you can click VIEW & REPLY to be brought to the new location of your post and to read through some of the posts already made in this discussion. Here are a few other Fibromyalgia discussions on Connect as well:

Autoimmune Diseases > Fibromyalgia > https://connect.mayoclinic.org/discussion/fibromyalgia-5/
Chronic Pain > Fibromyalgia Pain > https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/

@rnicoletti, what sort of things do you currently do to try and help mitigate your fibromyalgia pain and flares?