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Posts (1498)

Jun 13, 2019 · Pain pump, I have one, how about one for you? in Chronic Pain

Hello @kimspr3 – I thought you may also be interested in a conversation with other members on adhesive arachnoiditis, https://connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here/

Jul 19, 2019 · Shoulder Replacement: Still having pain in Joint Replacements

@rascal1, good question. I am now 13 months out after my rotator repair. Certain movements can still trigger some pain, but that has more to do with scar tissue I believe. I am mostly working on building my muscles and range-of-motion back. Essentially, I have pain when I am pushing my shoulder to gain strength and flexibility. I do worry that I will never be completely pain free with all of my movements, but I continue to push myself anyways in hopes that the last remaining painful movements are due to muscle weakness and stretching out the joint back to where it was (or as close as possible). I am not sure how shoulder replacements and rotators compare, but I was told it would be long and arduous. The initial pain from the repair was pretty bad and lasted a few months, largely due to the fact that I was not supposed to move the joint and that is just hard to do when something as little as a cough would shake it enough to hurt badly. @rascal1, how are you sleeping? That was also something I found next to impossible.

Mon, Mar 30 9:07am · Hip Revision on 73 year old female in Joint Replacements

Hello @bradley1941, welcome to Connect. Four hip revisions is certainly a lot to have gone through. If you don't mind me asking, and if you are comfortable sharing, has your surgeon mentioned how many revisions you can have? I had my knee replaced in March of 2006, and I realize knees replacements are a completely different surgery, I was told you are only able to have so many revisions done with diminishing returns with each.

I'd like to invite a few members who have experience with hip revisions to share their experience. @sueinmn, @eustica, @Adrainpalmer, and @holybible all talked about having to go through a hip revision.

@bradley1941, while we wait for other members to share their experiences, if you are interested, there is an active discussion on Prolia and osteoporosis taking place in the Bones, Joints & Muscles group as well, https://connect.mayoclinic.org/discussion/prolix-treatment-for-osteoporosis/.

Mon, Mar 30 8:54am · CLL & PLL: Long-term treatments and management question in Blood Cancers & Disorders

Hello @northbay. Facing multiple diagnoses at different stages must be frustrating for both you and your husband. I'd like to invite some members who have talked about CLL & B-PLL in the following discussions from the Blood Cancers & Disorders group:

https://connect.mayoclinic.org/discussion/cll-referral-to-cll-specialist/
https://connect.mayoclinic.org/discussion/chronic-leukemia-terrified-bc-i-cant-tolerate-chemo/
https://connect.mayoclinic.org/discussion/b-pll/

@cormac, @81ue, @stuartg, @pecorara, @shaker1956, @jvertalka, ad @lesliem7600 have all discussed in those discussions their experiences with CLL and/or B-PLL and may be able to share some insights with you. @northbay, it may be helpful, if you are comfortable, to share what your husband is being prescribed for his long-term treatment that you are worried about how he will tolerate it?

Fri, Mar 27 9:58am · Joint replacement and other surgeries delayed due to pandemic in Joint Replacements

Hello @plantbased2, welcome to Connect. I'd like to start by inviting @tooyoung, @mrfish, @linjane, @gncellist to this discussion as they have all talked about living with spacer in their hip and may have some advice for your situation, even though it may not be the exactly same experience. Many of the members talking about hip spacers have participated in these discussions, https://connect.mayoclinic.org/discussion/hip-spacer-is-a-nightmare/ and https://connect.mayoclinic.org/discussion/what-kind-of-mobility-can-i-expect-with-an-antibiotic-spacer-in-my-hip/.

@plantbased2, is your pain more intense when you are active and not using an assistive device? Knowing your surgery was delayed, if you go back to using your device do you think it will help alleviate some of the pain in the meantime?

Wed, Mar 25 9:57am · Burning after total knee replacement in Joint Replacements

Hi @jmacvol, I moved your discussion and combined it with anongoing and active discussion of a similar title, "burning after total knee replacement." I did this so you could read through some of the previous posts made by Connect members with similar experiences as yours and so those members would see your post and experience as well.

@jmacvol, I have not heard of applying low-dose radiation to a knee prior to surgery. Was this an attempt to clear out some of the scar tissue and other stuff prior to surgery? Is there any redness or swelling with your burning pain, especially in your other knee?

Wed, Mar 25 9:54am · Oxalates in Bones, Joints & Muscles

Hello @popolopo. There is a discussion on oxalates and diabetes taking place on Connect. Here is a link to that discussion, https://connect.mayoclinic.org/discussion/diet-for-diabetic-and-low-oxalate-requirements/. @popolopo, did you decide to try this new diet restriction on your own after research, or was it recommended to you because of a diagnosis?

Wed, Mar 25 9:43am · Notalgia Paresthetica help in Chronic Pain

Hello @lgerkin. I'd like to invite some members who posted about paresthetica on Connect in the past, @paind, @jigglejaws94. If I read your post correctly, the cause of your notalgia paresthetica is currently unknown?