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18 hours ago · Plummer Project in Neuroendocrine Tumors (NETs)

Hello @tomewilson,

As you can imagine the Plummer Project is a massive undertaking. Mayo Clinic has three large campuses located in Jacksonville, FL; Phoenix, AZ; and Rochester, MN, along with many health system locations in Minnesota. My knowledge of everything involved in the Plummer Project is limited because I am not involved the development nor patient care. I do know that if two of your health systems are on EPIC, it should make the communication between those health care facilities and Mayo Clinic easier as any system that uses EPIC can easily share medical records across health care facilities.

I am unsure of how it will affect insurance or the patient portal, but can assure these things have not been overlooked. Mayo Clinic had many experts from every part of Mayo Clinic work on EPIC implementation. If you have specific concerns, I reccomend asking your healthcare provider or contacting Mayo Clinic directly. Also, here is an article from when EPIC went live across Mayo Clinic Health System locations in Minnesota, https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-implements-epic-at-mayo-clinic-health-systems-sites-in-minnesota/.

1 day ago · LEG PAIN in Bones, Joints & Muscles

Hello @shoregal45,

Are you wondering how to search Mayo Clinic Connect for the discussion topics you listed in your post? Are you replying and posting primarily by email? If you go to connect.mayoclinic.org (or click VIEW & REPLY on this email notification), there is a search function that should help you get started searching Connect for discussions on the topics above.

How to search Connect:

– Go to the site on a browser (on your computer or smartphone/tablet/device)
– At the top of screen, click on the magnifying glass symbol located next to your profile picture in the top right of the screen
– Type your search words or topics – try different combinations because results are based on discussion topics that were created by members
– Once you search you can narrow the results on the right side of the screen based on types – check the boxes that are relevant to what you want to look for (groups, discussions, members, etc.)

@shoregal45, the search function may be confusing to use at first, so feel free to ask questions. Keep in mind that results may not yield what you are looking for because the results are entirely based on what discussions have been created by Connect members. If you were unable to find what you were looking for on the internet, it may also prove to be difficult here on Connect. I hope this helps.

1 day ago · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hello @lulu63 and @lnpngrf1234, welcome to Connect and your already encouraging words to one-another. If you are replying by email, I reccomend routinely clicking on VIEW & REPLY as it will bring you to the website and it is easier to see the discussions and members posts in the correct order.

@lulu63, you mentioned having some complications with back surgeries. You may find the following conversations worthwhile to read through and meet the other members of the discussion group:

– Chronic back pain for years, https://connect.mayoclinic.org/discussion/chronic-pain-for-years/
– Surgical solutions to chronic back pain, https://connect.mayoclinic.org/discussion/surgical-solutions-to-chronic-cervicalback-pain/

@lnpngrf1234, you mentioned your issues with pain meds and mentioned neck surgeries. If you don’t mind, are the neck surgeries the biggest culprit to your pain and what brought you to Connect?

1 day ago · Scar tissue after total knee replacement. in Bones, Joints & Muscles

Hello @wootenrl,

Welcome to Connect. We have a lot of members who have talked about scar tissue formation after knee replacement. I also have personal experience with this issue as well. I had my right knee replaced in 2006 and had a horrible experience with aggressive scar tissue formation that left me with little range of motion. I underwent two manipulations (where they put you under and manually break the scar tissue up), so I can understand your concerns first hand.

While we wait for some other members to join in, you may also want to check out the following discussion: Scar tissue after knee replacement, https://connect.mayoclinic.org/discussion/scar-tissue-after-knee-replacement/. If you are replying by email, I suggest clicking on VIEW & REPLY. You will be brought to the full discussion on the website and you will be able to read through and meet many other members experiences with scar tissue formation after knee replacement.

@wootenrl, if you don’t mind sharing, how long ago was your knee replacement? How is your range of motion currently and have you discussed the laser surgery as an option to combat your scar tissue with your medical provider?

3 days ago · scar tissue after knee replacement in Bones, Joints & Muscles

Hello @rjmurray41, welcome to Connect.

If you are only at 7 weeks, try to not get discouraged just yet. It took me well over a year to find my new norm. Like you, I struggled with extreme scar tissue formation. I also had to have two manipulations where they put me back under to break the scar tissue. I had a horrible recovery, but I was also battling 12 years of right leg muscle atrophy and joint flexion, so I was trying to reverse a decades worth of not having my leg straight or bent properly. In the end, I ended up getting to 0-105 degrees or so of flexion.

I also did not do physical therapy except for what they gave me to do at home. Looking back, I was not nearly as disciplined as I should have been to combat the scar tissue. Pain can be debilitating, especially when trying to rehab.

@rjmurray41, if you don’t mind sharing, are you concerned about the procedure to break up the scar tissue? How are you currently managing your pain? I also had a lot of pain after the replacement, but it does get progressively better (and so does the sleep, I became a major insomniac for the first few months).

3 days ago · Chronic Back Pain for Years in Chronic Pain

Hello @dx311mddnos,

Thank you for joining Connect and sharing on the Chronic Back Pain discussion. If you don’t mind me asking, do you also struggle with back pain? You mention that you are too young for disability, but I was able to get disability when I needed it when I was in my early 20s due to a genetic bleeding disorder and the physical damage it caused. I have since had joint replacements and corrective surgeries that helped me get my life back on track, so I am grateful for that. I know firsthand the process of disability, medicaid/medicare and other social programs are a frustrating process to try and go through.

@dx311mddnos, what sort of things do you currently do to try and help your back pain?

3 days ago · Has anybody had an implantable neurostimulator for chronic pain? in Chronic Pain

@miro,

That is a bummer that you did not get the answer you were hoping for, but it must be encouraging that the opinions seem to agree and you won’t have to undergo a surgery or procedure. Did the neurosurgeon have any new ideas for you regarding your pain or pain management?

Thu, Dec 7 10:10am · Staying Motivated for the Long Haul in Healthy Living

Hello @gizem16,

I moved your conversation in to a conversation taking place called, “Staying Motivated for the Long Haul.” I did this because your topic hits on many of the points members are talking about in this discussion. If you are replying via email, I suggest clicking on VIEW & REPLY to be brought to the full discussion and reading through some of the posts by the members discussing weight management and staying motivated to be fit.

@gizem16, I also tend to eat more unhealthy as I get more busy because it is more convenient. Have you ever thought about or tried meal prepping for multiple days? I recently started doing this every Sunday while I watch football. It is tedious, but if you put on a good show or music you can spend a few hours preparing food. Again, this may be difficult with an intense school routine.