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Posts (1499)

Mon, Mar 30 9:07am · Hip Revision on 73 year old female in Joint Replacements

Hello @bradley1941, welcome to Connect. Four hip revisions is certainly a lot to have gone through. If you don't mind me asking, and if you are comfortable sharing, has your surgeon mentioned how many revisions you can have? I had my knee replaced in March of 2006, and I realize knees replacements are a completely different surgery, I was told you are only able to have so many revisions done with diminishing returns with each.

I'd like to invite a few members who have experience with hip revisions to share their experience. @sueinmn, @eustica, @Adrainpalmer, and @holybible all talked about having to go through a hip revision.

@bradley1941, while we wait for other members to share their experiences, if you are interested, there is an active discussion on Prolia and osteoporosis taking place in the Bones, Joints & Muscles group as well, https://connect.mayoclinic.org/discussion/prolix-treatment-for-osteoporosis/.

Mon, Mar 30 8:54am · CLL & PLL: Long-term treatments and management question in Blood Cancers & Disorders

Hello @northbay. Facing multiple diagnoses at different stages must be frustrating for both you and your husband. I'd like to invite some members who have talked about CLL & B-PLL in the following discussions from the Blood Cancers & Disorders group:

https://connect.mayoclinic.org/discussion/cll-referral-to-cll-specialist/
https://connect.mayoclinic.org/discussion/chronic-leukemia-terrified-bc-i-cant-tolerate-chemo/
https://connect.mayoclinic.org/discussion/b-pll/

@cormac, @81ue, @stuartg, @pecorara, @shaker1956, @jvertalka, ad @lesliem7600 have all discussed in those discussions their experiences with CLL and/or B-PLL and may be able to share some insights with you. @northbay, it may be helpful, if you are comfortable, to share what your husband is being prescribed for his long-term treatment that you are worried about how he will tolerate it?

Fri, Mar 27 9:58am · Joint replacement and other surgeries delayed due to pandemic in Joint Replacements

Hello @plantbased2, welcome to Connect. I'd like to start by inviting @tooyoung, @mrfish, @linjane, @gncellist to this discussion as they have all talked about living with spacer in their hip and may have some advice for your situation, even though it may not be the exactly same experience. Many of the members talking about hip spacers have participated in these discussions, https://connect.mayoclinic.org/discussion/hip-spacer-is-a-nightmare/ and https://connect.mayoclinic.org/discussion/what-kind-of-mobility-can-i-expect-with-an-antibiotic-spacer-in-my-hip/.

@plantbased2, is your pain more intense when you are active and not using an assistive device? Knowing your surgery was delayed, if you go back to using your device do you think it will help alleviate some of the pain in the meantime?

Wed, Mar 25 9:57am · Burning after total knee replacement in Joint Replacements

Hi @jmacvol, I moved your discussion and combined it with anongoing and active discussion of a similar title, "burning after total knee replacement." I did this so you could read through some of the previous posts made by Connect members with similar experiences as yours and so those members would see your post and experience as well.

@jmacvol, I have not heard of applying low-dose radiation to a knee prior to surgery. Was this an attempt to clear out some of the scar tissue and other stuff prior to surgery? Is there any redness or swelling with your burning pain, especially in your other knee?

Wed, Mar 25 9:54am · Oxalates in Bones, Joints & Muscles

Hello @popolopo. There is a discussion on oxalates and diabetes taking place on Connect. Here is a link to that discussion, https://connect.mayoclinic.org/discussion/diet-for-diabetic-and-low-oxalate-requirements/. @popolopo, did you decide to try this new diet restriction on your own after research, or was it recommended to you because of a diagnosis?

Wed, Mar 25 9:43am · Notalgia Paresthetica help in Chronic Pain

Hello @lgerkin. I'd like to invite some members who posted about paresthetica on Connect in the past, @paind, @jigglejaws94. If I read your post correctly, the cause of your notalgia paresthetica is currently unknown?

Wed, Mar 25 9:24am · Living with arthritis: How do you stay active? in Bones, Joints & Muscles

@trayus, I hear you. I also reached the point where altering my activities reached it's max. Eventually, and unfortunately, I also hit a point where I could no longer modify and was up against the proverbial wall. For me, that was when the decision became almost easy to make. My choice became hope the surgery gives me less pain and a bit more mobility, or proceed in pain and certain less mobility. Even the best friends and family may have a hard time understanding the grind physical pain and limitations can be. I was lucky to have physicians and providers who flat out told me that I alone would know when the time is right and had to be the one to make the decision.

Wed, Mar 25 9:20am · Tymlos: Anyone else have heart palpitations? in Bones, Joints & Muscles

Hello @salpert, I'd like to invite a few members who have also recently discussed taking Tymlos and may be able to share their initial experience and if they felt and of the side-effects like palpitations like you have, @laurapearl, @kdbones, @diva. As @artscaping mentioned, this is a listed potential side-effect, have you talked with your provider about the experience?