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Posts (71)

5 days ago · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

I didn’t lose weight either. I did not eat much, but preferred carbs, easier to digest. Also, I had an autoimmune GI illness at the same time- not diagnosed at that time either.

Wed, Mar 6 12:24pm · Undiagnosed for years and desperate in Digestive Health

@vanessab – I feel so bad for your husband! I went without a proper diagnosis for close to 10 years – then to find out I had 2 rare, not connected GI disorders. OK now. Has he been tested for celiac disease? Many of his symptoms point to that. Celiac is an autoimmune disease, often co-existing with hypothyroidism. Also, have all his pituitary hormones been checked? Food allergies?
Don’t give up. If you have not done so already, consider going to a major university hospital or Mayo Clinic. I went to Mayo for years.

Wed, Feb 20 12:33am · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

I just want to add a comment about pain meds. I had laparoscopic surgery, but had significant internal pain. Gabapentin worked best for me. Healing takes a long time.

Wed, Feb 20 12:23am · Nausea, Pain and Headaches after Gallbladder laparoscopic Surgery in Digestive Health

I’m so sorry for your daughter’s suffering. It seems unusual to me that she needed both appendix and gallbladder removed as well as having a lot of pain still. You mentioned that she had positive tests for autoimmune disease. I think that deserves further workup. I have had autoimmune disease of my GI tract-atypical- and it took too long until I was treated. If your gastroenterologist doesn’t want to persue further workup it might be a good idea to see a pediatric gastroenterologist at a university hospital. Good luck!

Tue, Jan 29 11:03am · Chronic Abdominal Bloating and Pain in Digestive Health

@swollengutguy – are the pain related to meals?

Sat, Jan 5 8:53am · Xifaxan in Digestive Health

That’s amazing! I have checke GoodRx a couple of times, but nothing in my area.

Thu, Jan 3 3:44pm · Xifaxan in Digestive Health

I will.

Thu, Jan 3 1:12pm · Xifaxan in Digestive Health

I love Xifaxan. Over the years it has helped tremendously. I would use it a couple of times a year when things got pretty bad. There were times when it didn’t fully treat the infection. With current pricing I just can’t afford it. Don’t understand why the price skyrocketed. Maybe because people liked it. I have also been on other antibiotics- but they tend to knock out good bacteria. I’m looking into buying from Canada.