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5 days ago · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

@jpol
I didn’t lose weight either. I did not eat much, but preferred carbs, easier to digest. Also, I had an autoimmune GI illness at the same time- not diagnosed at that time either.

Wed, Mar 6 12:24pm · Undiagnosed for years and desperate in Digestive Health

@vanessab – I feel so bad for your husband! I went without a proper diagnosis for close to 10 years – then to find out I had 2 rare, not connected GI disorders. OK now. Has he been tested for celiac disease? Many of his symptoms point to that. Celiac is an autoimmune disease, often co-existing with hypothyroidism. Also, have all his pituitary hormones been checked? Food allergies?
Don’t give up. If you have not done so already, consider going to a major university hospital or Mayo Clinic. I went to Mayo for years.

Wed, Feb 20 12:33am · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

I just want to add a comment about pain meds. I had laparoscopic surgery, but had significant internal pain. Gabapentin worked best for me. Healing takes a long time.

Wed, Feb 20 12:23am · Nausea, Pain and Headaches after Gallbladder laparoscopic Surgery in Digestive Health

@ambergoulet
I’m so sorry for your daughter’s suffering. It seems unusual to me that she needed both appendix and gallbladder removed as well as having a lot of pain still. You mentioned that she had positive tests for autoimmune disease. I think that deserves further workup. I have had autoimmune disease of my GI tract-atypical- and it took too long until I was treated. If your gastroenterologist doesn’t want to persue further workup it might be a good idea to see a pediatric gastroenterologist at a university hospital. Good luck!

Tue, Jan 29 11:03am · Chronic Abdominal Bloating and Pain in Digestive Health

@swollengutguy – are the pain related to meals?

Sat, Jan 5 8:53am · Xifaxan in Digestive Health

That’s amazing! I have checke GoodRx a couple of times, but nothing in my area.

Thu, Jan 3 3:44pm · Xifaxan in Digestive Health

I will.

Thu, Jan 3 1:12pm · Xifaxan in Digestive Health

I love Xifaxan. Over the years it has helped tremendously. I would use it a couple of times a year when things got pretty bad. There were times when it didn’t fully treat the infection. With current pricing I just can’t afford it. Don’t understand why the price skyrocketed. Maybe because people liked it. I have also been on other antibiotics- but they tend to knock out good bacteria. I’m looking into buying from Canada.