Post-COVID Recovery & COVID-19 Support Group

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Comments (508)

Omg. I have noticed you have to be aggressive in finding your own diagnosis. I have...

https://connect.mayoclinic.org/comment/1145868/

Discussion: Long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 22, 2024

"Amen" to your last paragraph!! Sorry for your situation. I'm four years into it and haven't...

https://connect.mayoclinic.org/comment/1084901/

Discussion: NIH RECOVER + FOIA = “they bungled it” I can’t speak to the veracity

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 11, 2024

So glad you’re feeling better, I’m thinking if I don’t start feeling better from the management...

https://connect.mayoclinic.org/comment/983893/

Discussion: Some possible answers: Diagnosed with POTS

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 20, 2023

Postural orthostatic tachycardia syndrome (POTS): symptoms include lightheadedness, difficulty thinking and concentrating (brain fog), fatigue, intolerance...

https://connect.mayoclinic.org/comment/836769/

Discussion: Low dose Naltrexone for POTS helping alot

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 3, 2023

Ask your doctor about MCAS and look up to see if it sounds like you. I...

https://connect.mayoclinic.org/comment/954034/

Discussion: Post covid itch and hives

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 26, 2023

After Covid I developed POTS. I tried diff meds and can’t control my heart rate /...

https://connect.mayoclinic.org/comment/1333370/

Discussion: Covid MI/heart conditions

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 23, 2025

I do go for a tilt table test next week to find out if this is...

https://connect.mayoclinic.org/comment/833961/

Discussion: Is anyone unable to stand in one spot without getting exhausted?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 29, 2023

Yes, diagnosed with POTS Use a blood pressure cuff at home and take pressure on each...

https://connect.mayoclinic.org/comment/1410994/

Discussion: Has anyone had a spell of severe dizziness that resulted in fainting?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 8, 2025

Since September 2020. Improvement in severity of symptoms, but still suffer from all to some degree....

https://connect.mayoclinic.org/comment/804668/

Discussion: How long have you had post-covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 1, 2023

Wow so sorry. Have you been able to try any treatments or anything like immunosuppressants? I’ve...

https://connect.mayoclinic.org/comment/1348774/

Discussion: Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 15, 2025

I've had two tilt tables, no POTS. First tilt revealed "some level of dysautonomia", and second...

https://connect.mayoclinic.org/comment/978568/

Discussion: Anyone have the following experiences with long covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 11, 2023

I am taking a GLP-1, read about study so decided to try. I am slowly working...

https://connect.mayoclinic.org/comment/1576963/

Discussion: Has anyone tried GLP1 for long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 17 7:00pm

I am so sorry you to are having GI issues. I just can’t seem to eat...

https://connect.mayoclinic.org/comment/753156/

Discussion: Continuous tummy pain post covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 23, 2022

My child with POTS after a viral infection had these symptoms - purple feet and toes....

https://connect.mayoclinic.org/comment/855325/

Discussion: Covid Legs and Toes

Support Group: Post-COVID Recovery & COVID-19

Posted: May 6, 2023

@colleenyoung Thank you so much! I will definitely be asking about the different preps as I...

https://connect.mayoclinic.org/comment/1509625/

Discussion: Anyone with Long Covid, POTs, CFS have a Colonoscopy?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 19 10:41am

I had Covid Jan 2022 and have been in bed ever since due to GI issues/abdominal...

https://connect.mayoclinic.org/comment/823518/

Discussion: Post-Covid dizziness/off-balance, as most troubling symptom

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 9, 2023

The thing that has worked the best for my fatigue is doing Stellate Ganglion Blockages with...

https://connect.mayoclinic.org/comment/1123719/

Discussion: What helps longhaulers dealing with Chronic Fatigue?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 14, 2024

Mine started about 10 months after my booster- I had POTS start about 2 weeks after...

https://connect.mayoclinic.org/comment/805255/

Discussion: Phlegm in my throat and post nasal drip after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 2, 2023

Thank you both for sharing your experiences! I actually was not quite meeting the criteria for...

https://connect.mayoclinic.org/comment/758876/

Discussion: Are your heart symptoms worse in morning, better as day progresses?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 8, 2022

LC - September 2020 Dx’s: POTs, CFS, POHypotension - among a list of other persistent symptoms....

https://connect.mayoclinic.org/comment/1499473/

Discussion: Anyone with Long Covid, POTs, CFS have a Colonoscopy?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 6 11:37am

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