How long have you had post-covid?

Posted by eyja @eyja, Jan 25 5:19am

I´m hopin that my son and I recover soon. Of course. We´ve had it for six months now.
How long have you had it?
Would love to hear from those who are still as ill, as well as those that have started recovering and those who have recovered.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

I was hospitalized for a week in November 2021 with Covid pneumonia. Almost all of my symptoms have gone away except the brain fog/dizziness. I have done physical therapy, seen an ENT, neurologist and worked with my family physician. No one in my area can answer why I’m still dealing with this unclear head. I am scheduled for an appointment with a neurologist at Northwestern in Chicago next week. Hoping they will provide some answers.
Praying we all find relief soon!!

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@auntb65

I was hospitalized for a week in November 2021 with Covid pneumonia. Almost all of my symptoms have gone away except the brain fog/dizziness. I have done physical therapy, seen an ENT, neurologist and worked with my family physician. No one in my area can answer why I’m still dealing with this unclear head. I am scheduled for an appointment with a neurologist at Northwestern in Chicago next week. Hoping they will provide some answers.
Praying we all find relief soon!!

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Gosh, I sure hope you do. Good to hear that other symptomes hve gone.
There is a great article in Nature: https://www.nature.com/articles/s41579-022-00846-2.epdf?sharing_token=W-OHviuQX-KwDW6RqwJ5-9RgN0jAjWel9jnR3ZoTv0O_Zy0vG793yE8qKjwjatmhSWzEaNs4OV6F8d5K9Z0gwm_Dn5sH8FxShjzeKXSN0JlVcQWYfWb4G8vDU2X77wMmu_Hn0TLD_go9DlMSsfqeChNmwVDQJ1nBZmtPMeajpY8%3D

Ive extractded everything they´ve mentioned. Some medication is especially mentioned for brain fog!

low-dose naltrexone for neuroinflammation155 and Low-dose naltrexone has been used in many diseases, including ME/CFS155, and has also shown promise in treating long COVID156. Substantial anecdotal reports of success within the patient community. unrefreshing sleep, brain fog
-Má alveg prófa skv. H

intravenous immunoglobulin for immune dysfunction) and
-Þekkir ekki

non-pharmacological options (including increasing salt intake for POTS, cognitive pacing for cognitive dysfunction and elimination diets for gastrointestinal symptoms)96.

H1 and H2 antihistamines, often following protocols for mast cell activation syndrome and particularly involving famotidine, are used to alleviate a wide range of symptoms19,157, although they are not a cure. famotidine
-Má prófa
-Phenergan er eini m. H2 virkni. T1/2 eru 13 klst

BC007, potentially addresses autoimmunity by neutralizing G proteincoupled receptor autoantibody levels158.
-Þekkir ekki

Anticoagulant regimens are a promising way to address abnormal clotting159; in one study, resolution of symptoms was seen in all 24 patients receiving triple anticoagulant therapy31.

Apheresis has also shown promise to alleviate long COVID symptoms; it has been theorized to help remove microclots160 and has been shown to reduce autoantibodies in ME/CFS161. However, it is quite expensive, and its benefits are uncertain.
-Þekkir ekki

Some supplements have shown promise in treating both long COVID and ME/CFS, including coenzyme Q10 and d-ribose162, and may deserve further study. -Fatique!

A case report noted resolution of long COVID following treatment with the
antiviral Paxlovid167, and a study investigating the treatment of acute COVID-19 with Paxlovid showed a 25% reduction in the incidence of long COVID168; Paxlovid should be
-Vera á biðlista hjá Lsp? Biðja Sigurð Marelsson

Valaciclovir, famciclovir, valganciclovir and other antivirals ME/CFS literature
-Prófa

A small trial of sulodexide in individuals with endothelial dysfunction saw a reduction in symptom severity 169 . Pilot studies of
-Þekkir ekki

probiotics indi- cated potential in alleviating gastrointestinal and non-gastrointestinal symptoms170,171 . Two patients with long COVID experienced substantial alleviation of dysautonomia symptoms following
-Prófa!

stellate ganglion block172 . An early study noted that

Pycnogenol statistically significantly improved physiological measurements (for example, reduction in oxidative stress) and quality of life (indicated by higher Karnofsky Performance Scale Index scores) 173,174 , as hypothesized on the basis of success in other clinical studies.

Airipiprazol, low dose. Fatigue, unrefreshing sleep, brain fog
-Prófa

Endothelial dysfunction Sulodexide Long COVID pilot study
-Ekki til á ísl

POTS and ME/CFS literature Options can be prioritized on the basis of a specific constellation of symptoms Non-pharmacological: increase salt and fluid intake:
-midodrine Hækkar bþ

-pyridostigmine Kolinesterasehæmmer. Hæmmer reversibelt enzymet kolinesterase, der nedbryder neurotransmitteren acetylkolin, hvorved acetylkolin øger stimuleringen af nikotinerge og muskarine receptorer. Passerer ikke blod-hjerne-barrieren. Virkningen indtræder efter 30-45 minutter. Virkningsvarighed 4-6 timer.
Ekki til á ísl en í Dk.

-fludrocortisone Florinef. Dregur inn salt.

Hróðmar: Ivabradin. Virkar á sinusnútinn. Sleppa propranolol

intravenously administered salt,
compression stockings POTS and ME/CFS literature –
Immune dysfunction

Consider consulting an immunologist on implementation
Cognitive dysfunction pacing physical exertion
Cognitive dysfunction Postconcussion syndrome protocols ME/CFS

Pycnogenol COVID-19 pilot study – MCAS
Ekki til á ísl né Dk

Transcutaneous vagal stimulation

Take care and all the best to you!

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In reply to @bettyjackson "3 yrs this March." + (show)
@bettyjackson

3 yrs this March.

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Oh my god. What a long time with all these horrible symptomes:( What symptomes have you had? Has it become any better with time?

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I have long Covid 11 months now.

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8 months and I seem to have developed permanent GI problems , possibly with gluten and dairy

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i've had long covld for 3yrs and 1month, caught it Dec. of 2019 and still have the same symptoms..

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I have experienced COVID for 3 years. I can wake up today and feel find by noon I can't do anything I am just that wore out. It took 2 years to get a diagnosis of Post or Long Covid. I always wondered, Has the vaccine helped me or made me sick?

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