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Pancreatic Cancer Support Group

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Discussions (32)
Total Pancreatectomy
Hello everyone! I am brand new to this site so please bear with me! I am a 31 year old female and here is my...
Support Group: Pancreatic Cancer
Last active: Aug 19, 2025
Total pancreatectomy challenges
I had a Whipple procedure in February 2023, and it has been a long and difficult journey up to today. I was in and out...
Support Group: Pancreatic Cancer
Last active: Jun 14, 2025
Splenectomy part of distal pancreatectomy
Stage 2 diagnosis in February, tumor in the tail of the pancreas, just finished 12 rounds of folfirinox with no issues. I am completely not...
Support Group: Pancreatic Cancer
Last active: Sep 24, 2025
Foods after Pancreatectomy/Splenectomy
My husband had a total pancreatectomy/splenectomy and gall bladder removal on 8/11, so he's now a Type1 diabetic (was a Type2 for a couple of...
Support Group: Pancreatic Cancer
Last active: Oct 27, 2025
Life after pancreatectomy: Tyring to decide on surgery or not
My mother was recently diagnosed with high risk IPMN and is debating whether or not to go through with a total pancreatectomy (TP). I’m her...
Support Group: Pancreatic Cancer
Last active: Mar 24, 2024
What is your Recovery Advice for a Distal Pancreatectomy?
Hello. I have a pancreatic neuroendocrine tumor in the tail of my pancreas. My surgeon at the Mayo Clinic has scheduled a distal pancreatectomy (and...
Support Group: Pancreatic Cancer
Last active: Dec 11, 2025
Life after Pancreatectomy: How was your recovery?
Hi, I am new to this forum. I am seeking help and support as my sister just underwent pancreatectomy. I like to connect with patients...
Support Group: Pancreatic Cancer
Last active: May 19, 2023
Glucose A1C levels after distal pancreatectomy
I have a question regarding glucose/A1C. My husband had a distal pancreatectomy/splenectomy 2 years ago due to stage 2b adenocarcinoma. Prior to his diagnosis and...
Support Group: Pancreatic Cancer
Last active: Oct 5, 2025
Low fever & diarrhea after distal pancreatectomy & splenectomy
Post op splenectomy and distal pancreatic for NET removalPost op 7 days and consistently running a low grade fever and diarrhea. Anyone have the same...
Support Group: Pancreatic Cancer
Last active: Nov 28, 2023
What's recovery after distal pancreatectomy and splenectomy like?
Can anyone give me information on how their recovery was after distal pancreatectomy and splenectomy? After 2 years of MRIs every 6 months and watching...
Support Group: Pancreatic Cancer
Last active: Nov 14, 2025
Appleby Procedure (Distal Pancreatectomy With Celiac Artery Resection)
My surgeon is thinking about performing this procedure on me. Anyone here had this? I am curious about expected outcome and complications.
Support Group: Pancreatic Cancer
Last active: Dec 26, 2025
Has anyone had a HIPEC procedure?
I was diagnosed with ACINAR pancreatic cancer in September 2023 I had a distal, pancreatectomy, and splenectomy and unfortunately, I had metastases to the liver....
Support Group: Pancreatic Cancer
Last active: Dec 26, 2025
Chemo without any cancer showing on scan or MRI?
distal pancreatectomy and splenectomy in july 2024before and after surgery normal CA-19-9 ( 15 to 20)folfirinox from sept 2024 to april 2025 (10 cycles)CA-19-9 went...
Support Group: Pancreatic Cancer
Last active: Feb 18 10:30am
Anyone had success with gemcitabine and capecitabine (GemCap) chemo?
I was diagnosed in Aug, 2025 with adenocarcinoma of the pancreas. Oct 17 I had a distal pancreatectomy with app 70% of pancreas removed. My...
Support Group: Pancreatic Cancer
Last active: Jan 12 7:00pm
Experiencing pancreatic fluid leakage post-op: How long does it last?
I am 3 weeks post-op distal pancreatectomy with spleen and gall bladder removed. I have been draining 50 ML/Day since coming home 2 weeks ago...
Support Group: Pancreatic Cancer
Last active: Oct 6, 2023
Distal pancreactomy with shrinking cyst
Hello I am 36 yrs women, detected with a 5.8 cm cyst on the tail of my pancreas on Aug 16 and had acute pancreatitis....
Support Group: Pancreatic Cancer
Last active: Jan 6, 2023
Lung Nodules: Anyone monitoring these in regular scans?
I was diagnosed at stage 3 in May 2023 at 69 y.o.. I had a distal pancreatectomy and splenectomy followed by 12 rounds of Folfirinox...
Support Group: Pancreatic Cancer
Last active: Apr 6 11:43am
Pancreatic mass
Because of a BRCA gene variant, I had a pancreatic ultrasound done with my endoscopy. He found a mass on the pancreatic tail and did...
Support Group: Pancreatic Cancer
Last active: Sep 25, 2023
Anyone have pNET in pancreatic tail & had distal pancreactomy?
I've just been diagnosed with a 3.8cm pnet in my pancreatic tail involving arteries and veins in the spleen. Waiting for 2 surgical consultations. Is...
Last active: 6 days ago