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Discussions (32)
Total Pancreatectomy
Hello everyone! I am brand new to this site so please bear with me! I am a 31 year old female and here is my...
Total pancreatectomy challenges
I had a Whipple procedure in February 2023, and it has been a long and difficult journey up to today. I was in and out...
Splenectomy part of distal pancreatectomy
Stage 2 diagnosis in February, tumor in the tail of the pancreas, just finished 12 rounds of folfirinox with no issues. I am completely not...
Foods after Pancreatectomy/Splenectomy
My husband had a total pancreatectomy/splenectomy and gall bladder removal on 8/11, so he's now a Type1 diabetic (was a Type2 for a couple of...
Life after pancreatectomy: Tyring to decide on surgery or not
My mother was recently diagnosed with high risk IPMN and is debating whether or not to go through with a total pancreatectomy (TP). I’m her...
What is your Recovery Advice for a Distal Pancreatectomy?
Hello. I have a pancreatic neuroendocrine tumor in the tail of my pancreas. My surgeon at the Mayo Clinic has scheduled a distal pancreatectomy (and...
Life after Pancreatectomy: How was your recovery?
Hi, I am new to this forum. I am seeking help and support as my sister just underwent pancreatectomy. I like to connect with patients...
Glucose A1C levels after distal pancreatectomy
I have a question regarding glucose/A1C. My husband had a distal pancreatectomy/splenectomy 2 years ago due to stage 2b adenocarcinoma. Prior to his diagnosis and...
Low fever & diarrhea after distal pancreatectomy & splenectomy
https://connect.mayoclinic.org/discussion/post-op-splenectomy-and-distal-pancreatic-for-net-removal/
Post op splenectomy and distal pancreatic for NET removalPost op 7 days and consistently running a low grade fever and diarrhea. Anyone have the same...
What's recovery after distal pancreatectomy and splenectomy like?
Can anyone give me information on how their recovery was after distal pancreatectomy and splenectomy? After 2 years of MRIs every 6 months and watching...
Appleby Procedure (Distal Pancreatectomy With Celiac Artery Resection)
My surgeon is thinking about performing this procedure on me. Anyone here had this? I am curious about expected outcome and complications.
Papaya seeds as pancreatic enzyme replacement after surgery?
I had pancreatectomy and splenectomy. Can I take papaya seeds
Has anyone had a HIPEC procedure?
I was diagnosed with ACINAR pancreatic cancer in September 2023 I had a distal, pancreatectomy, and splenectomy and unfortunately, I had metastases to the liver....
Chemo without any cancer showing on scan or MRI?
distal pancreatectomy and splenectomy in july 2024before and after surgery normal CA-19-9 ( 15 to 20)folfirinox from sept 2024 to april 2025 (10 cycles)CA-19-9 went...
Anyone had success with gemcitabine and capecitabine (GemCap) chemo?
I was diagnosed in Aug, 2025 with adenocarcinoma of the pancreas. Oct 17 I had a distal pancreatectomy with app 70% of pancreas removed. My...
Experiencing pancreatic fluid leakage post-op: How long does it last?
I am 3 weeks post-op distal pancreatectomy with spleen and gall bladder removed. I have been draining 50 ML/Day since coming home 2 weeks ago...
Distal pancreactomy with shrinking cyst
Hello I am 36 yrs women, detected with a 5.8 cm cyst on the tail of my pancreas on Aug 16 and had acute pancreatitis....
Lung Nodules: Anyone monitoring these in regular scans?
I was diagnosed at stage 3 in May 2023 at 69 y.o.. I had a distal pancreatectomy and splenectomy followed by 12 rounds of Folfirinox...
Pancreatic mass
Because of a BRCA gene variant, I had a pancreatic ultrasound done with my endoscopy. He found a mass on the pancreatic tail and did...
Anyone have pNET in pancreatic tail & had distal pancreactomy?
I've just been diagnosed with a 3.8cm pnet in my pancreatic tail involving arteries and veins in the spleen. Waiting for 2 surgical consultations. Is...
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