Infectious Diseases Support Group

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Comments (585)

@minnerhead1 Hey- I have, or have had at some point in the past, all of your...

https://connect.mayoclinic.org/comment/886633/

Discussion: Does EBV cause Neurological Symptoms?

Support Group: Infectious Diseases

Posted: Jun 28, 2023

I hope this message finds everyone in here well and their loved ones as well as...

https://connect.mayoclinic.org/comment/1085126/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jun 11, 2024

Hi, While I have no information for you as I’m recently diagnosed with EBV and know...

https://connect.mayoclinic.org/comment/888040/

Discussion: Possible reactivated EBV

Support Group: Infectious Diseases

Posted: Jun 30, 2023

I too was diagnosed with CLL and the EBV had reactivated according to my Infectious Disease...

https://connect.mayoclinic.org/comment/647411/

Discussion: Dual Diagnosis of CLL and Acute Epstein Barr Virus

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2021

I wanted to mentioned one other research effort being done by the University of Utah. In...

https://connect.mayoclinic.org/comment/135375/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Mar 15, 2021

Hi, I know both message are over a year or two ago but wanted to share...

https://connect.mayoclinic.org/comment/1523719/

Discussion: Valacyclovir for Chronic Active Epstein-Barr and Fatigue?

Support Group: Infectious Diseases

Posted: Mar 10 7:51am

I can also relate to the post. None of my Dr's seem worried about my EBV...

https://connect.mayoclinic.org/comment/1214143/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Jan 15, 2025

Any suggestions as to how to treat specifically Reactivation of EBV. I have tried multiple supplements,...

https://connect.mayoclinic.org/comment/184044/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 22, 2019

Hello, I am having so much problems for two months now, I am swollen on my...

https://connect.mayoclinic.org/comment/183974/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Sep 24, 2018

My PCP visit went great. She was well researched on EBV, CAEBV and the DNA PCR...

https://connect.mayoclinic.org/comment/183965/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Aug 28, 2018

Thank you @ethanmcconkey for the welcome and introducing me to other members. I will check out...

https://connect.mayoclinic.org/comment/246658/

Discussion: Teen with weird mono...or not?

Support Group: Infectious Diseases

Posted: Feb 12, 2019

I’m just seeing your post as I haven’t looked on here for a while. I got...

https://connect.mayoclinic.org/comment/184093/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Sep 15, 2020

Welcome to Connect, @penelope41, I can completely understand your concern, however we cannot diagnose conditions, or...

https://connect.mayoclinic.org/comment/134875/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jul 11, 2017

Hi, I have suffered from Chronic reactivating EBV since age 14..I am 61 now.. Omicron in...

https://connect.mayoclinic.org/comment/723580/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Jul 4, 2022

I was tested recently (by my request and on my own) for EBV due to strange...

https://connect.mayoclinic.org/comment/184075/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Aug 26, 2019

Similar to many of you within this group, I have found that I have never been...

https://connect.mayoclinic.org/comment/746683/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Sep 7, 2022

@kjs1980 Have you been prescribed any antivirals or anything to support your immune system? What have...

https://connect.mayoclinic.org/comment/1307387/

Discussion: EBV flare ups

Support Group: Infectious Diseases

Posted: May 19, 2025

I've had my issues again with EBV for the last several months -- 2 years almost....

https://connect.mayoclinic.org/comment/219313/

Discussion: Ebstein Barr & Fibromyalgia

Support Group: Chronic Pain

Posted: Feb 4, 2020

Hi @chickie001 From what I have learned, it is not uncommon to have other infections along...

https://connect.mayoclinic.org/comment/135125/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Dec 16, 2018

This is a follow up on my CEBV condition. At 64 I believe I have had...

https://connect.mayoclinic.org/comment/135037/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jun 17, 2018

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