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oceantroll
@oceantroll

Posts: 2
Joined: Jan 03, 2019

Dual Diagnosis of CLL and Acute Epstein Barr Virus -

Posted by @oceantroll, Thu, Jan 3 3:31am

I am three years into a dual diagnosis of acute Epstein Barr Virus and CLL and I am reaching my wit's end. Looking for help, advice, and support on dealing with pain management, widely fluctuating energy levels, a desire to exercise – but little energy to do so, diet, homeopathic help etc. The good news is that my numbers for both have changed little over the last 12 months. The bad news is I still feel like sh_t. I am self-employed and struggling to keep my business going.

REPLY

Hello @oceantroll, welcome to Connect. I would like to invite @travelgirl to this discussion as she has talked about being on the wait & watch approach with CLL, but specifically about dealing with fatigue as an active person. Being diagnosed with two different diseases that both cause fatigue must be difficult. I see that you also found a chronic epstein barr virus discussion, but here is another one you may find interesting as well, https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/.

@oceantroll, while we wait for other members to join in, would you mind sharing what things you have tried to do to combat your fatigue?

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