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nicgorsuch
@nicgorsuch

Posts: 3
Joined: Oct 08, 2018

Ebstein Barr & Fibromialgia

Posted by @nicgorsuch, Mon, Oct 8 2:53pm

Hello – I'm at the end of my rope mentally – I need to find a doctor who specializes in autoimmune diseases, including Ebstein Barr & Fibromialgia. I am in so much pain every day, brain fog, and NO ENERGY at ALL. If anyone has dealt with this, I would love some input. I don't even know where to start…

Liked by lacudia

REPLY

Hello @nicgorsuch, welcome to Connect. I'm glad you found us. I'm tagging our Moderator @kanaazpereira to see if she is able to move your post to the following discussion where it will have more visibility with members that share your symptoms. You might find it helpful to read the discussion and post any questions you might have in the discussion.

Groups > Infectious Diseases > treatment for chronic epstein barr
https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/

@nicgorsuch, are you able to share what medications your are taking? Some medications have a side effect of causing brain fog.

John

Hello my name is Beryl…..I have been at the level you are at now…..So take a deep breath and think UP……..you have contacted the people that will help you if you can take advantage of the Mayos special Clinic or something like it ……you obviously need someone that is a specialist and can put you on the road to recovery……upwards and onwards and the best of British luck to you ……..meantime talk to us……

@johnbishop

Hello @nicgorsuch, welcome to Connect. I'm glad you found us. I'm tagging our Moderator @kanaazpereira to see if she is able to move your post to the following discussion where it will have more visibility with members that share your symptoms. You might find it helpful to read the discussion and post any questions you might have in the discussion.

Groups > Infectious Diseases > treatment for chronic epstein barr
https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/

@nicgorsuch, are you able to share what medications your are taking? Some medications have a side effect of causing brain fog.

John

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Thank you John. I'm not on any medications….just supplements. I was on pain meds for a long time for my degenerative disc disease/broken vertebrae/herniated discs, but after spinal surgery a couple years ago, I was able to get off the meds last year…although I'm still on constant pain every day/hour/minute. 🙁

@beryl

Hello my name is Beryl…..I have been at the level you are at now…..So take a deep breath and think UP……..you have contacted the people that will help you if you can take advantage of the Mayos special Clinic or something like it ……you obviously need someone that is a specialist and can put you on the road to recovery……upwards and onwards and the best of British luck to you ……..meantime talk to us……

Jump to this post

Thank you Beryl!

my daughter was having multiple strange symptoms and saw many specialists-eventually diag. with fibromyalgia. more helpful than any of the specialists was a book by Dr G. Liptan who herself suffers from it. The Fibro Manual by Ginevra Liptan-excellent resource-good luck

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