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Hypertrophic Cardiomyopathy (HCM) Support Group

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Discussions (108)
Has Anyone taking Camzyos Experienced Higher Blood Pressure Readings?
I had been on Carvedilol for 4 years before starting Camzyos about a month ago. My fatigue issues have lessened significantly and now I can...
Last active: Jan 21 4:48pm
Feeling tired all the time- One month on higher dose of Camzyos
Hi. 67 yo male. Obstructive HCM. During my last Echo my cardiologist increased my Camzyos does to 10mg as my gradient had come up (I...
Last active: Apr 6 10:21am
Has anyone had a septic myectomy and then had to go back on camzyos
Has anyone had a septal myectomy and had to get back on camzyos ? I was on camzyos for a year and one year ago...
Last active: Jan 22, 2025
Cardiologist just lowered my Camzyos dose from 5mg to 2.5mg but....
My Cardiologist just lowered my Camzyos dose from 5mg to 2.5mg. I started Camzyos on February 24, 2025. I had my 2nd echocardiogram and they...
Last active: May 10, 2025
Third month of Camzyos my ef dropped to 30-35. At what point do they
After three months of progress my recent echo shows a steep decline of EF On Camzyos. Monthly echoes continue and if I rebound they will...
Last active: Nov 4, 2025
Has anyone stopped taking camzyos? I have stopped and feel very sick.
Has anyone stoped taking camzyos? Do you have side effects? I was told to get off cold turkey so I can have a septal myectomy...
Last active: Sep 1, 2025
Camzyos dose lowered from 5mg to 2.5mg 5 days ago-feeling symptoms...
My cardiologist lowered my Camzyos dose from 5mg to 2.5mg 5 days ago. I'm feeling short of breath again with some of the other symptoms...
Last active: Apr 29, 2025
LVOT peak systolic gradient up to 19/35 from 12/13 Dr. raising Camzyos
I do not understand the meaning of this echo result other than that the result made my cardiologist raise my camzyos dosage from 5mg-10mg. I...
Last active: Jun 1, 2025
Is it safe to stop Csmzyos for 6 days?
I got Covid and started Paxlovid. Therefore was told to hold Camzyos. How does that affect my heart condition?
Last active: Jul 25, 2025
cough medicine
What cough medicine is OK to use while I am taking 5 mg of Camzyos?
Last active: Dec 23, 2023
New Developement: please respond if you this has happened to you etc
I have been steady and well on 5mg/day Camzyos for 3 months which is when I began taking the drug. But my echocardiogram showed that...
Last active: May 30, 2025
What surgeries are available for obstructive HOCM?
My cardiologist said that for my HOCM, which has become obstructive, septal myectomy (I think that's the one where a chemical is used to thin...
Last active: Apr 24, 2025
Myqorzo
Several people have been posting about Myqorzo in the Camzyos blogs. Here is an opportunity to keep the discussions on each separated to avoid confusion...
Last active: May 8 10:11am
Thyroid and gout
I have been on Camzyos for approximately 7 months. After 3 months started having issues with my left foot swelling and painful. Back and forth...
Last active: Sep 3, 2024
Probiotics
I’m on Camzyos,Eliquis, and Toprol XL. Anybody take a probiotic that has worked for you? Thank you so much for your help.
Last active: Nov 2, 2025
Blood glucose
I have been on Camzyos for 6 months and during that time my blood glucose has been higher than before. Anyone else experience this?
Last active: Oct 6, 2024
Have you had a reaction to the Shingles vaccination?
I have HCM and am on Camzyos. I have never had the Shingles vaccination because I am concerned about having tachycardia from the vaccination. Please...
Last active: Nov 3, 2024
heart medicine and anxiety medicine.
I’m on Metroprol Succinate ER 25mg twice a day and Camzyos 5mg daily. I have an anxiety disorder. Wondering if anyone has taken Klonopin with...
Last active: May 10, 2024
Hcm Worsening
I have been in Camzyos for 2 1/2 years. It removed the obstruction, which is great. But I think the hcm is getting worse. I...
Last active: Mar 30 2:17pm