Hypertrophic Cardiomyopathy (HCM) Support Group

Has anyone on Camzyos ever had their doctor reduce dosage because the thickening was going down too fast? I just started on Camzyos 4 weeks...

Since FDA approval in April has anyone (non-clinical trial patient) actually obtained a prescription and had it filled? If so, when and where was the...

I need a couple surgeries (hip replacement, prostate, colonoscopy/endoscopy...). Now that my HOCM is obstructive and I'm taking Camzyos, I am concerned about anesthesia. Also...

Has anyone experienced mood swings or higher highs and lower lows emotionally after starting Camzyos or after dosage has been raised? I have felt so...

Been on Camzyos for almost 3 months now. Don’t really see much change although echos do show improvement. Think the biggest issue is weight that...

I have been advised to take Camzyos but can't find any information regarding whether or not this medication actually reduces the thickening of the heart...

I had been on Carvedilol for 4 years before starting Camzyos about a month ago. My fatigue issues have lessened significantly and now I can...

Hi. 67 yo male. Obstructive HCM. During my last Echo my cardiologist increased my Camzyos does to 10mg as my gradient had come up (I...

Has anyone had a septal myectomy and had to get back on camzyos ? I was on camzyos for a year and one year ago...

My Cardiologist just lowered my Camzyos dose from 5mg to 2.5mg. I started Camzyos on February 24, 2025. I had my 2nd echocardiogram and they...

Has anyone stoped taking camzyos? Do you have side effects? I was told to get off cold turkey so I can have a septal myectomy...

After three months of progress my recent echo shows a steep decline of EF On Camzyos. Monthly echoes continue and if I rebound they will...

My cardiologist lowered my Camzyos dose from 5mg to 2.5mg 5 days ago. I'm feeling short of breath again with some of the other symptoms...

I do not understand the meaning of this echo result other than that the result made my cardiologist raise my camzyos dosage from 5mg-10mg. I...

I got Covid and started Paxlovid. Therefore was told to hold Camzyos. How does that affect my heart condition?

What cough medicine is OK to use while I am taking 5 mg of Camzyos?

I’m on Camzyos,Eliquis, and Toprol XL. Anybody take a probiotic that has worked for you? Thank you so much for your help.

I have been steady and well on 5mg/day Camzyos for 3 months which is when I began taking the drug. But my echocardiogram showed that...

My cardiologist said that for my HOCM, which has become obstructive, septal myectomy (I think that's the one where a chemical is used to thin...

I have been on Camzyos for approximately 7 months. After 3 months started having issues with my left foot swelling and painful. Back and forth...