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Public Support Group 1,601 total results
Discussions (109)
Heart failure while taking camzyos?
Anyone had heart failure while on this?
Has anyone increased dose of Camzyos?
I have been on 5mg Camzyos for three months. Feeling much more energy and almost no symptoms. But my gradient remains dangerously high at 139....
I take 5mg Camzyos in the morning.
curious when others take their dose. Thinking about maybe switching to the evening?
How to decide whether to take Camzyos or have surgery?
I have recently been diagnosed with obstructive HCM. My doctor is pro-drug treatment but after reading about the surgical option, I wonder if drug is...
Camzyos: Can it cause low blood pressure?
Has anyone taking camazyos experienced really low blood pressure. I usually have low blood pressure prior to be diagnosed with HCOM but now it is...
Anyone take new drug Camzyos (mavacamten) for HCM?
Since FDA approval in April has anyone (non-clinical trial patient) actually obtained a prescription and had it filled? If so, when and where was the...
Camzyos improved my gradient but my symptoms are not better
My cardiologist dropped my Camzyos from 5 to 2.5mg after the first month since my gradients decreased to less than 20. After 4 weeks at...
Does Camzyos shrink/narrow your urethra?
I take flomax, but not for anything related to prostate issues. I was told before starting Camzyos for HOCM that Camzyos may reduce the efficacy...
HCM, Camzyos & Knee Replacement: What are the risks?
What are the risks of undergoing spinal anesthesia and other meds as well during and after surgery?
Does Camzyos reduce thickening of the heart or manage symptoms?
I have been advised to take Camzyos but can't find any information regarding whether or not this medication actually reduces the thickening of the heart...
How long before benefits of Camzyos were realized?
I just started the drug 4 days ago. My symptoms steadily declined over the last three months. Then they really worsened in the last couple...
Relapse/return of symptoms after 21 days on Camzyos
Started 5 mg Camzyos on 8/16. Felt relief and more energy by the 8th day! and was soooo happy. Returned to things I hadn’t been...
Myqorzo: has anyone tried this new alternative to Camzyos?
Myqorzo: has anyone tried this new alternative to Camzyos? What do we know about it so far? I have been taking Camzyos since my HOCM...
Reduced Camzyos dosage after first 4 weeks
Has anyone on Camzyos ever had their doctor reduce dosage because the thickening was going down too fast? I just started on Camzyos 4 weeks...
What numbers to expect on Echo after starting Camzyos
Hello, I started on Camzyos, 5mg, about 4 weeks ago and had my first echocardiogram. I have a video visit with my Doctor next week....
Anyone taking GIP or GLP-1 meds with Camzyos
Been on Camzyos for almost 3 months now. Don’t really see much change although echos do show improvement. Think the biggest issue is weight that...
HOCM, Camzyos, Zio Patch and possible need for defibrillator now....
I've had HOCM for several years. It became obstructive in January 2025 and Camzyos was started which I'm still taking. But something my cardiologist saw...
I have some questions about having surgeries on Camzyos...
I need a couple surgeries (hip replacement, prostate, colonoscopy/endoscopy...). Now that my HOCM is obstructive and I'm taking Camzyos, I am concerned about anesthesia. Also...
Camzyos / mood swings or over-reacting?appreciate anyone's exp
Has anyone experienced mood swings or higher highs and lower lows emotionally after starting Camzyos or after dosage has been raised? I have felt so...
Best time of day to take Camzyos? Best with food or on empty stomach?
Just getting ready to start Camzyos and wonder if there is a best time of day to take it. Am already on Diltiazem & Metoprolol...
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