Hypertrophic Cardiomyopathy (HCM) Support Group

I am just curious - once HOCM is diagnosed, why is Camzyos recommended instead of other treatments - like myectomy? (is that what once treated...

Has anyone taken Camzyos for months then stopped? Did you experience any effects of stopping it suddenly. I just stopped it last week and am...

Hello, I’m a 48 year old female newly diagnosed with OHCM just over 6 months ago. On Camzyos for 18 weeks now. Mostly 5mg but...

I have only in my life had a UTI once 40 years ago, as soon as I started Camzyos I got a UTI... coincidence?

I am taking Entresto for nonobstructive HCM, but its benefits/effects are rather subtle.... and I don't notice any side effects. However, it's expensive (along with...

I expect to travel to a tropical country in the next few weeks and wondering how best to store the Camzyos tablets. Read somewhere that...

I have been on Camzyos since Oct 2023 with decent results and a normal gradient after starting. I have been significantly more short of breath...

Just starting 5mg. First day I got really woozy an hour after, stayed in and out of that for maybe 4-5 hours, but evening felt...

I was on Mavacamten (Camzyos) for 6 months. It immediately triggered Burning Mouth Syndrome, Chronic Lingual Papilitis, and a metal taste in my mouth. I...

Hi, I’m recently diagnosed with O HCM this summer, and I think like everybody recently diagnosed I’m anxious and a little bit worried about the...

I was diagnosed with HCM a year ago by My cardiologist and got on Camzyos 5mg in early December 2023. Within a week I felt...

I am 63 years old and have been diagnosed with HCM since my late 30s/early 40s. On a beta blocker with not symptoms other than...

How do you change Camzyos from evening to morning?

Wondering if anyone can share experience of being on camzyos for many months, and if your dose was adjusted after successful outcome. I started the...

Hi , new to this page. Diagnosed 12 years ago with HOCM. At 52 had pacemaker/decib placed. 12 years never fired till this last October....

I'm taking Camzyos. I've noticed that the symptoms of the obstruction like shortness of breath and chest pressure/pain return despite the Camzyos when I get...

Camzyos and Medicare. What am I missing? This is my understanding: Camzyos is NOT on the Medicare Formulary List. Therefore, my part D drug plan...

How available is Camzyos outside the US? Does anyone have experience with cardiologist who specializes in HOCM in another country?

I seem to be gaining weight and it’s in my belly. I don’t have any edema anywhere, I’m not retaining water. It just seems to...

Anyone had heart failure while on this?