Hypertrophic Cardiomyopathy (HCM) Support Group

I was diagnosed with HCM a year ago by My cardiologist and got on Camzyos 5mg in early December 2023. Within a week I felt...

Hi, I’m recently diagnosed with O HCM this summer, and I think like everybody recently diagnosed I’m anxious and a little bit worried about the...

Hi , new to this page. Diagnosed 12 years ago with HOCM. At 52 had pacemaker/decib placed. 12 years never fired till this last October....

Wondering if anyone can share experience of being on camzyos for many months, and if your dose was adjusted after successful outcome. I started the...

I have been on Camzyos since Oct 2023 with decent results and a normal gradient after starting. I have been significantly more short of breath...

I was on Mavacamten (Camzyos) for 6 months. It immediately triggered Burning Mouth Syndrome, Chronic Lingual Papilitis, and a metal taste in my mouth. I...

Camzyos and Medicare. What am I missing? This is my understanding: Camzyos is NOT on the Medicare Formulary List. Therefore, my part D drug plan...

I'm taking Camzyos. I've noticed that the symptoms of the obstruction like shortness of breath and chest pressure/pain return despite the Camzyos when I get...

Ive been in Camzyos 3+ months with no side effects so far. My diagnostics are showing some lessening of HCM symptoms. I am a 65...

curious when others take their dose. Thinking about maybe switching to the evening?

I have been on 5mg Camzyos for three months. Feeling much more energy and almost no symptoms. But my gradient remains dangerously high at 139....

Anyone had heart failure while on this?

Has anyone taking camazyos experienced really low blood pressure. I usually have low blood pressure prior to be diagnosed with HCOM but now it is...

I seem to be gaining weight and it’s in my belly. I don’t have any edema anywhere, I’m not retaining water. It just seems to...

Started 5 mg Camzyos on 8/16. Felt relief and more energy by the 8th day! and was soooo happy. Returned to things I hadn’t been...

I just started the drug 4 days ago. My symptoms steadily declined over the last three months. Then they really worsened in the last couple...

I take flomax, but not for anything related to prostate issues. I was told before starting Camzyos for HOCM that Camzyos may reduce the efficacy...

What are the risks of undergoing spinal anesthesia and other meds as well during and after surgery?

My cardiologist dropped my Camzyos from 5 to 2.5mg after the first month since my gradients decreased to less than 20. After 4 weeks at...

Hello, I started on Camzyos, 5mg, about 4 weeks ago and had my first echocardiogram. I have a video visit with my Doctor next week....