Hypertrophic Cardiomyopathy (HCM) Support Group

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Comments (1,313)

I was on Camzyos for 1yr & 8mths. I was on 10mg the last 4mths before...

https://connect.mayoclinic.org/comment/1472233/

Discussion: HCM and Dizziness

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 6 days ago

@hougoss I’m on Camzyos as well as Reclast. No issues

https://connect.mayoclinic.org/comment/1474220/

Discussion: Anyone here with HCM that also has osteoporosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 3 days ago

when my blood pressure was up since starting camzyos the heart failure clinic and their pharmacist...

https://connect.mayoclinic.org/comment/1476306/

Discussion: Side Effects starting on Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 21 hours ago

@jootzy Camzyos is a new drug and supposedly like a miracle.

https://connect.mayoclinic.org/comment/1459787/

Discussion: HCM getting worse?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 13, 2025

I take Prolia injections every 6 months. Also take Camzyos. No issues taking the 2 medication.

https://connect.mayoclinic.org/comment/1474927/

Discussion: Anyone here with HCM that also has osteoporosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 2 days ago

Working with an independent insurance agent who will research all insurance plans to find one that...

https://connect.mayoclinic.org/comment/1472624/

Discussion: Do people with bad or no insurance simply die from HOCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 5 days ago

@mbharris See, this is my concern, its life long in this Camzyos process or surgery. I...

https://connect.mayoclinic.org/comment/1459792/

Discussion: HOCM & 8th month on Camzyos...how long will Camzyos work?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 13, 2025

I’m being treated for a UTI now. I’ve been on Camzyos since April with no apparent...

https://connect.mayoclinic.org/comment/1468564/

Discussion: Infections while on Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 27, 2025

can you send me the camzyos link? i’m having trouble finding my questions and also responses...

https://connect.mayoclinic.org/comment/1114472/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 30, 2024

https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/ Hi back at you @dwc62 and WELCOME to Mayo Connect! I have posted a link...

https://connect.mayoclinic.org/comment/956847/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 31, 2023

Hello @yayee, I moved your comment to an existing discussion on Camzyos and its effectiveness long-term,...

https://connect.mayoclinic.org/comment/1068923/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 16, 2024

I just started Evenity and I also have HCOM. I was informed that Evenity would not...

https://connect.mayoclinic.org/comment/1473464/

Discussion: Anyone here with HCM that also has osteoporosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 4 days ago

@bigheart12345 Are you taking camzyos?

https://connect.mayoclinic.org/comment/1431226/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 5, 2025

Hello. I am happy to hear about the positive results with Camzyos. Was diagnosed with oHCM...

https://connect.mayoclinic.org/comment/1448250/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 27, 2025

I’m absolutely fine. I didn’t stop the Camzyos when I took Legevrio. And it all worked...

https://connect.mayoclinic.org/comment/1355889/

Discussion: Is it safe to stop Csmzyos for 6 days?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 25, 2025

Hmmm Interesting...I was told Omeprizole was a NO with Camzyos!? They prescribed me Pantoprazole instead! I...

https://connect.mayoclinic.org/comment/1218221/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 21, 2025

I just started Camzyos on Medicare part D approved coverage only because my Cardiologyst office did...

https://connect.mayoclinic.org/comment/1370280/

Discussion: Cost of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 14, 2025

We are all on the precipice of needing heart surgery. Camzyos is just delaying it. I...

https://connect.mayoclinic.org/comment/1302172/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 12, 2025

I have HOCM (became obstructive at the beginning of this year (2025)), and am taking Camzyos....

https://connect.mayoclinic.org/comment/1448531/

Discussion: Left Atrial Volume and B12 Deficiency/Low Haematocrit

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 27, 2025

I’m happy to hear of the success with taking Camzyos I have been on 5mg for...

https://connect.mayoclinic.org/comment/1441774/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 18, 2025

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