Hypertrophic Cardiomyopathy (HCM) Support Group

All comments are for Camzyos- I am starting Myqorzo - different drug - hopeful it will...

https://connect.mayoclinic.org/comment/1569147/

Discussion: Anyone started myqorzo 5 mg? Experience please.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 2:35pm

@bitsysmom24 Hello! Welcome to Connect! I see that this is your first post! There are several...

https://connect.mayoclinic.org/comment/1572085/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 11 10:31am

Hi @graciechi and welcome to the Camzyos world. I hope you have the same fantastic results...

https://connect.mayoclinic.org/comment/1569254/

Discussion: Best time of day to take Camzyos? Best with food or on empty stomach?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 5:47pm

Hi, there! Wishing you the best…don’t be afraid. I started Camzyos in Oct 2025…5mg in the...

https://connect.mayoclinic.org/comment/1569742/

Discussion: Best time of day to take Camzyos? Best with food or on empty stomach?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 8 10:26am

@susiewordsmith i’ve been on 5 mg of Camzyos for maybe three years now. And I don’t...

https://connect.mayoclinic.org/comment/1547872/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 11 10:38am

Yes...I was not out of breath or fatigued before Camzyos. The HCOM doc was irrated with...

https://connect.mayoclinic.org/comment/1563605/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 30 7:11pm

@giolig68 Hello @giolig68! I used the magic of computers to translate your Italian message! "Hello everyone...

https://connect.mayoclinic.org/comment/1569151/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 2:38pm

@carolinca hello! Even though this thread is technically about mavacamten (Camzyos), I'm betting there's a ton...

https://connect.mayoclinic.org/comment/1567532/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 5 5:39pm

Been on 5mg of Camzyos since November 2023. I had my 6 month ultrasound yesterday and...

https://connect.mayoclinic.org/comment/1562523/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 29 11:07am

@carolinca welcome to the forum. I think the link below will take you to a discussion...

https://connect.mayoclinic.org/comment/1568032/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 6 10:09am

Hello Danny, @dconner, and welcome to Mayo Clinic Connect. This is a great place to come...

https://connect.mayoclinic.org/comment/1564746/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 2 9:58am

@dconner I was also diagnosed in December and am 65 After 3 months on camzyos my...

https://connect.mayoclinic.org/comment/1567776/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 6 6:46am

@dconner I’m sorry bbisno, I thought you was talking about Camzyos. Good luck with your new...

https://connect.mayoclinic.org/comment/1563868/

Discussion: Anyone started myqorzo 5 mg? Experience please.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 1 8:03am

Hi there...I started 5 mg morning Camzyos in Oct 25. Super dizzy...doc changed my Camzyos to...

https://connect.mayoclinic.org/comment/1572065/

Discussion: typical side effect for Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 11 10:11am

Hello @snewbrough, and welcome to Mayo Clinic Connect. It sounds like you are getting progressively more...

https://connect.mayoclinic.org/comment/1536896/

Discussion: Your Experience on Camzyos first month?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 27 8:43pm

Hello @mrsblueskies There are several members here on Connect from Canada and Europe who are Camzyos....

https://connect.mayoclinic.org/comment/1519336/

Discussion: How available is Camzyos outside the US?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 4 9:56am

can you send me the camzyos link? i’m having trouble finding my questions and also responses...

https://connect.mayoclinic.org/comment/1114472/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 30, 2024

https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/ Hi back at you @dwc62 and WELCOME to Mayo Connect! I have posted a link...

https://connect.mayoclinic.org/comment/956847/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 31, 2023

Hello @yayee, I moved your comment to an existing discussion on Camzyos and its effectiveness long-term,...

https://connect.mayoclinic.org/comment/1068923/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 16, 2024

salve a tutti da l'Italia, prendo camzyos 2.5mg da 28 giorni sembra che funziona molto bene...

https://connect.mayoclinic.org/comment/1568987/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 11:16am