Hypertrophic Cardiomyopathy (HCM) Support Group

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Comments (1,497)

I am a very weak old 64 years old man. Before I started Camzyos to treat...

https://connect.mayoclinic.org/comment/1185329/

Discussion: Anyone have input on living with symptoms from cardiomyopathy?

Support Group: Heart & Blood Health

Posted: Dec 6, 2024

Hello @hood, and Welcome to Mayo Connect! I see you posted this a month ago and...

https://connect.mayoclinic.org/comment/1016939/

Discussion: What numbers to expect on Echo after starting Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 16, 2024

Joint paint on Camzyos? Had my Camzyos increased from 5mg to 10mg just over 2 weeks...

https://connect.mayoclinic.org/comment/1008541/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 2, 2024

Hello @susanml, and Welcome to Mayo Connect! Like @boatsforlife mentioned, this is a very supportive support...

https://connect.mayoclinic.org/comment/961561/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 9, 2023

@cash298 things have improved for me significantly since I posted this. I have now been on...

https://connect.mayoclinic.org/comment/1452528/

Discussion: Trouble eating with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 4, 2025

@gwenm Hi, thank you for sharing your experience. I guess I have to meet with the...

https://connect.mayoclinic.org/comment/1583119/

Discussion: How to decide whether to take Camzyos or have surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 5 days ago

Hello. I did write on another thread here how VitaminB12 made such a difference for me....

https://connect.mayoclinic.org/comment/1543983/

Discussion: Feeling tired all the time- One month on higher dose of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 6 10:21am

I would be sure to report it to ykur camzyos pharmacist If yku have not yet

https://connect.mayoclinic.org/comment/1265278/

Discussion: Camzyos side effect of itchiness?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 23, 2025

I am skeptical about taking camzyos, they can cause heart failure

https://connect.mayoclinic.org/comment/1172883/

Discussion: Hypertrophic Cardiomyopathy: Dealing with Shortness-of-breath

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 13, 2024

I'm happy to hear it's gone so smoothly for you. There are some fellow Camzyos folks...

https://connect.mayoclinic.org/comment/871048/

Discussion: Trouble eating with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 2, 2023

I was on Cardizem way before Camzyos. BP controlled. I went into afib 4/2023 and they...

https://connect.mayoclinic.org/comment/1301387/

Discussion: Diltiazem

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 10, 2025

Hi @boatsforlife. Thank you so much for the great information you kindly provide about camzyos. I...

https://connect.mayoclinic.org/comment/1024331/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 28, 2024

Hi Marckat2006, I also live in Michigan and take Camzyos. 😊

https://connect.mayoclinic.org/comment/1100266/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 6, 2024

Hi, the issue with possible higher blood pressure while on Camzyos was explained to me by...

https://connect.mayoclinic.org/comment/1134460/

Discussion: Has Anyone taking Camzyos Experienced Higher Blood Pressure Readings?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 1, 2024

I started on 5mg and felt better within a few days. But echocardiograms showed no change...

https://connect.mayoclinic.org/comment/1163691/

Discussion: How long before benefits of Camzyos were realized?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 27, 2024

Sorry to hear your insurance is not accepted at Mayo! Yes camzyos is expensive but your...

https://connect.mayoclinic.org/comment/1398553/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 22, 2025

Hi - my doctor just suggested we try verapamil and if not tolerated then go on...

https://connect.mayoclinic.org/comment/1185465/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 6, 2024

Good morning! My dad has HCM and I inherited it, but my brother didn't. My dad...

https://connect.mayoclinic.org/comment/1090381/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 20, 2024

on Camzyos 5mg and Metoprolol Succinate ER 25mg twice a day? your dose?

https://connect.mayoclinic.org/comment/1073224/

Discussion: Camzyos and neuropathy

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 23, 2024

I'd like to invite @hood to this discussion. You posted in another discussion about experiencing slight...

https://connect.mayoclinic.org/comment/1016956/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 16, 2024

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