Hypertrophic Cardiomyopathy (HCM) Support Group

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Good Morning HCM Family, I took my first Camzyos pill this morning. So begins my journey...

https://connect.mayoclinic.org/comment/877128/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 12, 2023

I would like to share my experience with you regarding Camzyos for HCOM. I am hesitant...

https://connect.mayoclinic.org/comment/1370558/

Discussion: Could it be HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 14, 2025

I am off Camzyos now, awaiting a myectomy. When I was on Camzyos, I didn’t notice...

https://connect.mayoclinic.org/comment/1329023/

Discussion: Meds & hair loss

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 17, 2025

I’ve been on Camzyos for 4 weeks, and because of my symptoms, how I still feel...

https://connect.mayoclinic.org/comment/1586075/

Discussion: How to decide whether to take Camzyos or have surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 12 hours ago

I am taking metoprolol ER succinate with no side effects. My first dose of camzyos was...

https://connect.mayoclinic.org/comment/948445/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 16, 2023

Is anyone else on CAMZYOS? If so how does it make you feel.

https://connect.mayoclinic.org/comment/956512/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 30, 2023

Sorry for the late response! I first started seeing mayo in phoenix in Dec! I was...

https://connect.mayoclinic.org/comment/1248658/

Discussion: Septal myectomy at Mayo in Phoenix

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 2, 2025

No I have not experienced insomnia; started taking Camzyos in December 2023.

https://connect.mayoclinic.org/comment/1055770/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 23, 2024

@hougoss He did recommend Camzyos but my insurance ( Medicare) denied it.

https://connect.mayoclinic.org/comment/1516916/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 1 6:35am

Thank you im 77 and about to start Camzyos nervous about it.

https://connect.mayoclinic.org/comment/1218549/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 21, 2025

I just got off the phone with UHC (plan D) to see if there were any...

https://connect.mayoclinic.org/comment/1180784/

Discussion: Cost of Camzyos on Medicare Drug Plan

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 27, 2024

Good morning to all...I started on 5 mg of Camzyos in the morning in October 2025....

https://connect.mayoclinic.org/comment/1540315/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 1 10:18am

@andyherman3: so far I have not had any side effects from camzyos that I'm aware of....

https://connect.mayoclinic.org/comment/1508677/

Discussion: Myqorzo: has anyone tried this new alternative to Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 18 8:52am

Hi Captainterry, Do you know what your gradient was when you started on Camzyos? I just...

https://connect.mayoclinic.org/comment/1178430/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 22, 2024

Welcome to Mayo Clinic Connect @haasil. There is a lot of information here at Connect about...

https://connect.mayoclinic.org/comment/1106724/

Discussion: Does Camzyos reduce thickening of the heart or manage symptoms?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 16, 2024

Hi there...On Camzyos since October 2025. Have occasional headaches behind my eyes...not often, a few times...

https://connect.mayoclinic.org/comment/1578168/

Discussion: headaches on Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 19 9:24am

Hi, yes for the time being I remain on same doses until my next echo with...

https://connect.mayoclinic.org/comment/1136615/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 5, 2024

Hi @meryl59 and welcome. There's a great support community here, as you have already discovered. I'm...

https://connect.mayoclinic.org/comment/1009010/

Discussion: HOCM & VFib amiodarone, sotalol,camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 3, 2024

@susanml That's interesting. I've been on B12 for ages. When I went on Camzyos I never...

https://connect.mayoclinic.org/comment/1541199/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 2 11:57am

I am a very weak old 64 years old man. Before I started Camzyos to treat...

https://connect.mayoclinic.org/comment/1185329/

Discussion: Anyone have input on living with symptoms from cardiomyopathy?

Support Group: Heart & Blood Health

Posted: Dec 6, 2024

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