Hypertrophic Cardiomyopathy (HCM) Support Group

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Comments (1,492)

I just was not willing to be on Camzyos the rest of my life, after my...

https://connect.mayoclinic.org/comment/1563397/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 30 1:35pm

Hello. Danny here, 65 year old man with oHCM. Was diagnosed in late December after 7...

https://connect.mayoclinic.org/comment/1564619/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 2 7:58am

I am on 10mg Camzyos started in jan 2026 but I also take Ambien 5 mg...

https://connect.mayoclinic.org/comment/1546966/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 10 7:38am

@hougoss He did recommend Camzyos but my insurance ( Medicare) denied it.

https://connect.mayoclinic.org/comment/1516916/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 1 6:35am

I ran out of camzyos due to some inurance miscommunications. Will not get it for a...

https://connect.mayoclinic.org/comment/1185227/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 5, 2024

@ebony3 Do ask your doctor about the newer drugs (myqorzo) that are becoming available. Other participants...

https://connect.mayoclinic.org/comment/1564285/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 1 3:46pm

Bristol Myers Squibb, the maker of Camzyos, has a Patients Assistance Foundation. If you qualify you...

https://connect.mayoclinic.org/comment/1227383/

Discussion: Cost of Camzyos on Medicare Drug Plan

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 2, 2025

I have UHC Advantage PPO which supplements Medicare, and might need Camzyos in the near future,...

https://connect.mayoclinic.org/comment/1233873/

Discussion: Cost of Camzyos on Medicare Drug Plan

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 10, 2025

You didn’t mention whether or not you were on Camzyos for the HCM. There are multiple...

https://connect.mayoclinic.org/comment/1368348/

Discussion: HCM patient looking for advise

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 11, 2025

Young is relative! Lol 79 isn't getting any younger, but am heading up that path anyway....

https://connect.mayoclinic.org/comment/1579381/

Discussion: How to decide whether to take Camzyos or have surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 20 6:33pm

Keep in mind that Camzyos does not fix an obstruction. It relaxes the heart and symptoms...

https://connect.mayoclinic.org/comment/1312091/

Discussion: Next Steps?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 24, 2025

Hi I'm new here. I'm suppose to start camzyos but I'm scared to death of the...

https://connect.mayoclinic.org/comment/948337/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 15, 2023

I know nothing about Camzyos so I plugged this into AI Difficulty swallowing (dysphagia or throat...

https://connect.mayoclinic.org/comment/1584396/

Discussion: Difficulty swallowing.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 1 day ago

I hope your heart rate doesn’t increase. Before I started Camzyos I was on Diltiazem because...

https://connect.mayoclinic.org/comment/908751/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 6, 2023

Hello @mpjg, and welcome to Mayo Connect, I am glad you found this online support community!...

https://connect.mayoclinic.org/comment/1152350/

Discussion: Blood glucose

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 5, 2024

Hello @dwc62, I'd like to add my welcome to @karukgirl's. I moved your discussion and combined...

https://connect.mayoclinic.org/comment/957069/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 31, 2023

Hello there @abqpatriotsfan, and welcome to Mayo Clinic Connect. I'm glad you found this online support...

https://connect.mayoclinic.org/comment/1141847/

Discussion: Blood glucose

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 15, 2024

I have a murmur but I have been on camzyos 5 mg for only 7 weeks....

https://connect.mayoclinic.org/comment/1073921/

Discussion: Camzyos and heart murmur

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 24, 2024

Good day. I take my Camzyos in the morning. I’ve started to take vitamin B12 after...

https://connect.mayoclinic.org/comment/1541078/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 2 10:07am

Not sure what your question means but to clarify : Camzyos is trade name for mavacamten....

https://connect.mayoclinic.org/comment/1018612/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 19, 2024

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