Hypertrophic Cardiomyopathy (HCM) Support Group

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Hi @par4rosy et al. When I first saw this post, I thought the question was asking...

https://connect.mayoclinic.org/comment/1030884/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 10, 2024

I was also diagnosed at 76. I’d had symptoms for many years but no one thought...

https://connect.mayoclinic.org/comment/1543881/

Discussion: at 76 years old just diagnosed now? it shows in tests. Heredity

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 6 9:02am

@420gramps Hello there…started Camzyos in Oct 25… I experience all of the above as well as...

https://connect.mayoclinic.org/comment/1556322/

Discussion: Camzyos / mood swings or over-reacting?appreciate anyone's exp

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 21 4:34pm

I’m being treated for a UTI now. I’ve been on Camzyos since April with no apparent...

https://connect.mayoclinic.org/comment/1468564/

Discussion: Infections while on Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 27, 2025

So sorry to hear that! I experienced those initially, but things improved. My SOB was caused...

https://connect.mayoclinic.org/comment/1326961/

Discussion: Side Effects starting on Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 14, 2025

@mbharris See, this is my concern, its life long in this Camzyos process or surgery. I...

https://connect.mayoclinic.org/comment/1459792/

Discussion: HOCM & 8th month on Camzyos...how long will Camzyos work?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 13, 2025

Have been taking Camzyos since October . Off and on to find the correct dosage but...

https://connect.mayoclinic.org/comment/1226395/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 31, 2025

I take metoprolol succinate ER 100 mg in the morning and metoprolol succinate ER 50 mg...

https://connect.mayoclinic.org/comment/1061551/

Discussion: HCM Fatigue and Poor Sleep - What Can I Do?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 3, 2024

My HCM cardiologist initially gave me 3 choices, alcohol ablation, Camzyos or surgery. I was afraid...

https://connect.mayoclinic.org/comment/1404072/

Discussion: Third month of Camzyos my ef dropped to 30-35. At what point do they

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 29, 2025

I am having the same problem a hard lump on my lip I’m on Camzyos 5mg...

https://connect.mayoclinic.org/comment/1384869/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 2, 2025

I started Camzyos 5 days ago and was wondering how long before I start feeling side...

https://connect.mayoclinic.org/comment/964097/

Discussion: Camzyos: Can it cause low blood pressure?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 13, 2023

are you on anything except Camzyos? I also have mitral valve stenosis and regurgitation. On Metroprol...

https://connect.mayoclinic.org/comment/1056675/

Discussion: HCM Fatigue and Poor Sleep - What Can I Do?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 24, 2024

Hi, I’m on Camzyos 10mg and currently have no gradient. However I still am experiencing DOE....

https://connect.mayoclinic.org/comment/1314267/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 27, 2025

Any tips about hydration or nutrition while taking CAMZYOS would be helpful also, does anybody have...

https://connect.mayoclinic.org/comment/1218901/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 22, 2025

I don't know if this is helpful as I take one 100 mg Metoprolol every morning....

https://connect.mayoclinic.org/comment/1043077/

Discussion: MEDS FOR HCM - DOSAGE

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 31, 2024

I was diagnosed with hcm in October 2021 at the age of 62. I started the...

https://connect.mayoclinic.org/comment/802374/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 27, 2023

Hello and welcome to Mayo Clinic Connect @bilingual84 I'm so glad you found this site. You...

https://connect.mayoclinic.org/comment/1297685/

Discussion: Septal Myectomy Consideration

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 5, 2025

I have seen 2 cardiologist and after looking at my ECHO and EKG they both said...

https://connect.mayoclinic.org/comment/1361053/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 31, 2025

I am still experiencing hot flashes, but not as severe. So maybe there is no connection....

https://connect.mayoclinic.org/comment/1346583/

Discussion: Camzyos, anxious/upset, return of symptoms...?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 12, 2025

I started with Camzyos - 5mg from October-07-2024. It has given me little relief and can...

https://connect.mayoclinic.org/comment/1282874/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 15, 2025

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