Hypertrophic Cardiomyopathy (HCM) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,608 total results

Comments (1,499)

@hansj - Interesting - I'm with Bayshore Edmonton. I will have to contact them. I'm eternally...

https://connect.mayoclinic.org/comment/1525458/

Discussion: How available is Camzyos outside the US?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 12 3:27pm

@sassyrdh329 thank you. Just curious what you take for depression with the Camzyos. I’m also on...

https://connect.mayoclinic.org/comment/1551869/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 16 9:30am

My traditional Part D Medicare Rx covered 100% of my camzyos for 2024. My Part D...

https://connect.mayoclinic.org/comment/1180655/

Discussion: Cost of Camzyos on Medicare Drug Plan

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 27, 2024

@hougoss I am sorry that your insurance denied coverage for Camzyos. You'd think that they would...

https://connect.mayoclinic.org/comment/1517599/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 2 6:09am

I have blurry vision too and it started about when I started Camzyos.

https://connect.mayoclinic.org/comment/1018558/

Discussion: Dizziness and Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 19, 2024

I am not feeling well on Camzyos and am really curious about your experience!

https://connect.mayoclinic.org/comment/919885/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 27, 2023

Can anyone explain to me how—the mechanism—by which CAMZYOS reduces the diameter of the septum?

https://connect.mayoclinic.org/comment/1171250/

Discussion: How long before benefits of Camzyos were realized?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 10, 2024

@dbruskin Camzyos seems to have different effects on different people, for many it's a miracle drug,...

https://connect.mayoclinic.org/comment/1538882/

Discussion: Hcm Worsening

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 30 1:50pm

I just was not willing to be on Camzyos the rest of my life, after my...

https://connect.mayoclinic.org/comment/1563397/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 30 1:35pm

The fact that you can be away for 3 weeks is something HOCM and Camzyos have...

https://connect.mayoclinic.org/comment/1302170/

Discussion: Diltiazem

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 11, 2025

After my first month on camzyos indeveloped itch under chin and front of neck! It wiuld...

https://connect.mayoclinic.org/comment/1251220/

Discussion: Camzyos side effect of itchiness?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 5, 2025

I am also very skeptical about all medications. However, the protocol around Camzyos is very thorough...

https://connect.mayoclinic.org/comment/1172929/

Discussion: Hypertrophic Cardiomyopathy: Dealing with Shortness-of-breath

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 13, 2024

I have been on 5mg of Camzyos for 6 days. I was always fatigued before and...

https://connect.mayoclinic.org/comment/1059772/

Discussion: HCM Fatigue and Poor Sleep - What Can I Do?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 30, 2024

I agree. Very little help with camzyos side effects or reporting of them. I was on...

https://connect.mayoclinic.org/comment/1135428/

Discussion: Thyroid and gout

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 3, 2024

Thanks for sharing this information. How was the crack-chest-shave-heart surgery? How long and how painful was...

https://connect.mayoclinic.org/comment/1245452/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 25, 2025

Hi, after many years of heart issues, including stress cardiomyopathy, and being misdiagnosed with microvascular heart...

https://connect.mayoclinic.org/comment/858122/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 11, 2023

Hello Al from Alberta @alwiedeman, and a warm welcome to Mayo Clinic Connect! Your story sounds...

https://connect.mayoclinic.org/comment/1320827/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 5, 2025

Please stay in close contact with your Cardiologist and patient advocate. After one year on Camzyos,...

https://connect.mayoclinic.org/comment/1304911/

Discussion: Side Effects starting on Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 15, 2025

Welcome to the club? Expect possible great results from Camzyos. I am a 3+ year user...

https://connect.mayoclinic.org/comment/1579975/

Discussion: Camzyos- Pros & Cons

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 21 1:28pm

@ebony3 Do ask your doctor about the newer drugs (myqorzo) that are becoming available. Other participants...

https://connect.mayoclinic.org/comment/1564285/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 1 3:46pm

Heart Rhythm Conditions

9052

41 minutes ago

Pacemaker & ICDs

778

1 hour ago

Heart & Blood Health

10936

2 hours ago

Visiting Mayo Clinic

6938

5 hours ago

Aortic Aneurysms

3777

10 hours ago