Hcm Worsening

Posted by dbruskin @dbruskin, Mar 29 8:44am

I have been in Camzyos for 2 1/2 years. It removed the obstruction, which is great. But I think the hcm is getting worse. I am 79. After I eat or walk upstairs my heart races. Has anyone else experienced this? I take Metoprolol - sometimes on an as needed basis but always at bedtime.

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Linda, Volunteer Mentor | @walkinggirl | Mar 30 1:50pm

@dbruskin Camzyos seems to have different effects on different people, for many it's a miracle drug, for others it does nothing to alleviate their HCM symptoms and for some others, I am reading that it helps for a time and then other intervention is needed. I have never taken Camzyos, but I hope others can comment on their own experiences with this drug. Have you addressed your concerns with your cardiologist? How did he/she respond? I take Metoprolol at bedtime, too, but please explain "sometimes on an as needed basis." What are you feeling when that happens?

dbruskin | @dbruskin | Mar 30 2:17pm

I take 1/2 pill when my heart is racing. Not even sure it helps. I have noticed today that stress really makes everything worse
Thanks for your reply. Appreciate it