Support Groups

Brain Tumor Support Group

Public Support Group
329 total results
Discussions (40)
Recovery after Meningioma Surgery
Just trying to find out if anyone in this group has had surgery recently at Mayo? Wondering how long my sister Jill will need to...
Support Group: Brain Tumor
Last active: Jul 30, 2017
Left Frontal Meningioma surgery recovery
I'm looking for others who had this surgery and how their recovery is going.I had my surgery 5 weeks ago. Recovery is going well. I...
Support Group: Brain Tumor
Last active: May 18, 2020
Left Anterior Clinoid Meningioma Surgery
Hi my name is Rosanne, i’m 52 and I have recently been diagnosed with a 1cm left anterior clinoid meningioma that was found because of...
Support Group: Brain Tumor
Last active: Mar 15, 2019
Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma
I will be having Gamma Knife Radio Surgery for a meningioma that is growing. Have any of you had this procedure and does it work?...
Support Group: Brain Tumor
Last active: May 6 8:56pm
Has anyone had surgery for a Secretory Meningioma?
Has anyone had surgery for a secretory meningioma and how long ago..were you tired for a long time? Can you feel your head? Did it...
Support Group: Brain Tumor
Last active: Jul 31, 2022
How did you prepare mentally for Meningioma surgery?
Having surgery on September 13 to remove a meningioma on the left frontotemporal lobe. How did others prepare mentally for the surgery? I am becoming...
Support Group: Brain Tumor
Last active: Apr 26 3:47pm
Grade 2 Meningioma Diagnosis: Looking for a place to share my worries
Hello,I had a craniotomy Jan 30 for a CPA meningioma. Challenging surgery but doc called it a total resection. Surgery report states some affected dura...
Support Group: Brain Tumor
Last active: Mar 26 11:07am
Tough recovery after 2nd meningioma surgery
Hello good people, My mom (69F) had her recurrent left frontal atypical meningioma (6cm) removed 3 months ago. Her first surgery was 10 years ago...
Support Group: Brain Tumor
Last active: Jul 1, 2023
Choosing how to handle a regrowth of a meningioma gamma knife/surgery
Original larger meningioma removed surgically 2019 - smaller tumors have grown since (4) and they have been removed by gamma knife. Now a previous growth...
Support Group: Brain Tumor
Last active: Apr 11, 2023
Newly Diagnosed With Meningioma: What can I expect with surgery?
My journey started with a massive headache and nausea that wouldn't stop. "Stress at work" and a migraine was what the NP at my local...
Support Group: Brain Tumor
Last active: Jul 3, 2020
Any Optic Nerve Meningioma Patients Who've Had Surgery?
I would like to connect with anyone who has an optic nerve meningioma and underwent surgery to resect this type of benign tumor.
Support Group: Brain Tumor
Last active: May 13 6:52pm
Many symptoms still 2 months after meningioma surgery
I am still having pain since my surgery. I was not told anything about this surgery as far as what to expect. My face is...
Support Group: Brain Tumor
Last active: Feb 9, 2017
Post meningioma surgery: Daily pain, puffy/discolored eyes, drainage
I have daily head pain and my surgery was in November. The blood pressure medicine I'm on causes my eyes to be puffy and discoloration...
Support Group: Brain Tumor
Last active: Feb 22, 2017
Sister has severe head pain 3 years post Meningioma surgery
Has anyone experienced head pain this long? All doctors throw pain pills at her without any relief. She's suffering and has no life. Any suggestions?...
Support Group: Brain Tumor
Last active: Jan 16, 2017
I have a menigioma. Should I wait or go ahead with surgery?
My opthamologist ordered an MRI to check out my optic nerve as I have advanced glaucoma.After getting the results he promptly referred me to a...
Support Group: Brain Tumor
Last active: Nov 28, 2023
Atypical meningiomas
I have an atypical recurring meningioma from surgery in February 2015. My surgeon recommended a one time radiation blast. The neuro Oncologist says it might...
Support Group: Brain Tumor
Last active: Jun 24, 2017
Diagnosed with Meningioma in the right parasagittal frontal convexity
I was recently diagnosed with Meningioma in the right parasagittal frontal convexity measuring the size of grape and would like to connect with someone diagnosed...
Support Group: Brain Tumor
Last active: Mar 26 1:09pm
Craniotomy for meningioma
Been diagnosed of fronto-parietal meningioma per CT scan. I’m very fine now without any symptoms. But doctors have requested for an MRI and afterwards surgery....
Support Group: Brain Tumor
Last active: Oct 25, 2022
Proton radiation for atypical meningioma close to optic nerve
I am 54 years old. I had a craniotomy last fall to remove a 3x4 cm fronto temporal meningioma that has extended behind my left...
Support Group: Brain Tumor
Last active: Aug 26, 2023