Newly Diagnosed With Meningioma: What can I expect with surgery?
My journey started with a massive headache and nausea that wouldn’t stop. “Stress at work” and a migraine was what the NP at my local small hospital said was causing the problem. After 4 days of not being able to think, move without pain or eat, I went to the emergency room, where they threw all the drugs at me for migraine but nothing helped until they gave me steroids. I asked if there was a test or scan they could do that would show if I had a bleed or something at the small hospital. They did a CT and found a meningioma about the size of a navel orange behind my right sinus going down to the base of my skull behind my ear. The NP in charge of my care said that I am my best advocate! Transferred to the larger hospital an hour away via ambulance ride, but they had a stand-in on call neurosurgeon since our area only has one specialist, which was very unhelpful. After three days in the hospital getting the symptoms under control, the neurosurgeon rescheduled my initial appointment twice due to personal reasons and vacation. I had decided to research myself, and found that Mayo has the best care available, so after a whirlwind week, I was seen for the first time in Rochester. I’m scheduled for angiography to map the vessel inclusion next Tuesday and craniotomy on Wednesday to remove the tumor. The difference in attitude and how I’ve been treated at Mayo has been INCREDIBLE. Still anxious and more than a little scared about what happens next. What can I expect?