Mayo Clinic Connect
I'm looking for others who had this surgery and how their recovery is going.I had my surgery 5 weeks ago. Recovery is going well. I have questions for people who have longer recovery time
Liked by Colleen Young, Connect Director, EES1, mrector
I had my surgery in 2009. Recovery was quick. I left the hospital ahead of schedule and returned to work ahead of schedule. My issues came after the recovery period. It started with pain near the incision site. This progressed to problems with speech and memory with the memory getting worse as time progressed. I would be happy to answer any questions you might have. Good luck with your recovery.
Liked by Colleen Young, Connect Director, mrector
@cindyt I had my surgery Aug 2018. I am also having pain at my incision site that just started. I am having my brain MRI next week to make sure the tumor that was left isn't growing. I go back for my checkup March 4th to review MRI results. I'm also having hand tremors. What is your Dr. saying about incision site pain?
@mrector My doctor said that the pain must be neurological and sent me to a neurologist. The neurologist just gave me pain pills and sent me on my way. My tumor had tentacles some of which could not be removed because of their location. I had annual MRIs to check the status of the remnants for five years. During that time another tumor was found on the top of the frontal lobe. So far it has not grown any at all.
I had my surgery in October of 2016. It went well, but recovery had its challenges. I still have pain (incision site, trigeminal neuralgia (which did improve after surgery), swelling in my head any time there is a weather change, or I fly in a plane, etc). Happy to answer answer questions.
Liked by Colleen Young, Connect Director
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thank you so much.I just would like to know the possibilities. At the moment I'm having pain in my eye. I assume it's because it has had a large mass behind it for so long. I see the NS on the 11th for my post op and I go to the eye institute on the 13th
Liked by Scott, Volunteer Mentor
Thank you so much 🙂 I just want to know what the possibilities are. At the moment my eye is giving me pain (eyeball) I assume it's because it has had a large mass behind it for a long time. I have a lot of swelling still…it's cerebral fluid he says will be re absorbed. I had to remove the arm of my glasses. I see the NS on the 11th and I gor to the eye institute on the 13th
thanks 🙂 May I ask what is trigeminal neuralgia I'm pretty new to all this . I have questions for my NS I don't even know the name of what I had. I'm sure this is all info for the post op
sorry for the double reply…I didn't see that it posted and I cant delete it. I'm new here lol
Hello name is Jim I've had two surgery on my left side one through skull and another through left ear .I am doing very well I'm 69 .still getting tumors every year last year got treated with cyberknife and worked very well .this year 5 more tumors on left side so back to cyberknife for 5 treatments .just yo let you know after all this I still player golf fish and play poker so hang in thanks Jim
thank you so much for posting Jim 🙂@intheyear2525
@mrector may I ask….I know what caused my meningioma. I had mantle radiation in 1988. This for sure was the cause. I was 12 and it was for hodgkins lymphoma. At 30 I had cardio myopathy, congestive heart failure. The radiation thickened 2 valves in my heart. A few years later, pancreatitis. At my first mamogram in 2015 we found breast cancer starting. It was starting in both breasts. In 2018 after asking more than once for a CT they showed me a large tumor on my MRI. All of this is from that mantle radiation.
Were you given a cause or it just happened…
Liked by mrector
@julie1976 I started losing vision in my left eye. The eye Dr thought it was glaucoma but my vision rapidly got worse. Finally I had a MRI ordered and found the tumor in July 2018. They don't know what caused it or how long I had it. The tumor is wrapped around my carotid artery and optic nerve so the neurosurgeon could only get 85% of it. I have lost most vision in left eye and will eventually lose all of it in that eye. I will go for MRIs regularly to make sure everything is okay.
@mrector thank you for your reply. Everyone's story is different…I guess I'll find out more information about mine at the post op
@julie1976 Trigeminal neuralgia is a chronic pain disorder that affects the trigeminal nerve, a cranial nerve. In my case, it was the reason I found my tumor. For five years, I had been experiencing pain, numbness, tingling, burning, on the left side of my head, face, and mouth that could be a level 2 pain one day, and a level 10 the next. I explained this to several doctors and dentists – they all said it was likely due to a root canal that damaged the nerve. It wasn't until I was at a level 10 for months straight and went to an oral surgeon and told him the pain felt like there was an infection in my brain. Finally, he became concerned enough to order an MRI, which revealed the meningioma right near the nerve. The pain since surgery has subside tremendously. It's not gone, but it is manageable at a level 2/3 with an exacerbation to a level 5 during the times I mentioned in my last post.
@ccmars Wow! So glad to hear that surgery helped. With pain that bad…anything is something.Thank you for your reply 🙂
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