Does anyone have this issue and how you tried or did resolve it.
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Hello @1myhope. Sorry to hear you are experiencing balance issues following your surgery. It sounds like depending on where your meningioma was located, balance issues could be considered a typical symptom. That said, I wonder if your surgeon prepped you to experience this post-surgery?
Supposedly ntcaused by surgery.
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I had menginoma surgery on my left side 4 years ago. I have had balance problems which have actually gotten worse on my left side. Hypothetically it should have affected my right side but none of the many many doctors can explain why. I am at a severe fall risk after a current fall. I now walk with a cane . My current MRIs do not show regrowth of the tumor.
I had a softball size meningioma brain tumor removed from my right front lobe in 2016. It was discovered by accident at the emergency room, because I was not feeling well.
Since my surgery, I discovered that I have ONA (optic nerve atrophy), my balance is not the same, and I still feel like there is a sensation of slight pressure on the top of my head where the incision is. The only time I do not feel anything is when I am sleeping. I do see an ophthalmologist every six months to monitor my vision, and I get an MRI every two years. My surgery was only four hours due to my rapid loss of blood on the operating table. I received two liters of blood during surgery and one more post-surgery. Once the blood vessels were cut, I started to bleed out as this was an issue that was discussed with me pre-surgery.
Does anyone here have a similar experience?
Thanks for your attention.
My husband had balance issues post frontal meningioma. Issue happened after surgery so maybe caused by the removal of the tumor or not . Never received a good answer from the surgeon. They always say it was not caused by surgery. So he tolerated it and had PT.
I had tbi surgery on my right temporal lobe in 1990. Between the injury and surgery, removal of damaged brain matter my balance is gone. Can stand from my wheelchair but need something in front of me to grab and my chair behind me. Falling backwards is my big issue
HiI have a small 5×8
meningioma frontal lobe
My balance attention and memory is a bit off-
How big before you took it out?
I have heard it can cause problems with balance after
I'm going to ask you what I seem to ask every time a post like this appears:
— > What did your doctor say?
I'm presuming your measurement is in millimeters. That's the only size that would be considered "small."
From what I understand in generalities, size is only one issue in the neurosurgeon's decision whether or not to operate. The location of the tumor, the grade, the total condition of the patient, and the risk analysis of outcomes are all a consideration. Certainly, having symptoms is an issue. It's important to have it determined that the meningioma is the actual cause of the symptoms. Sometimes it's not.
Neurosurgeons are often not big talkers. But your doctor, who is the only one who had seen your MRI and has evaluated you, is the only one who can properly inform you about surgical options. Or other options. Or explain what your treatment plan is. Or if and how your tumor is related to your symptoms.
There are generalities. Yes.
What is regularly done here by patients like you is to get a 2nd opinion. Most of us select a well established tumor- experienced facility. You're posting on one of the best: Mayo Clinic. You can contact them easily even from the forum. Or you can find another one of your choice+ location.
But 2nd opinions by EXPERTS in brain tumors are the way to go in regards to purely expert medical opinions
I hope all goes well for you. You shouldn't have to struggle with so much uncertainty and have symptoms that aren't being addressed or even explained.
I know the burden of your symptoms too.
Seek doctors and others who can offer suggestions at least to help relieve symptoms. Surgery may be a long term answer but there are interventions to help many symptoms.
Keep reaching out.
Prayers and hugs are for you.
Continue checking in on this forum.
Read as much as you can that is in any way related to brain tumors just to familiarize yourself with the broadness of brain tumor experience.
God bless you.
Im more concerned with the emotional day to day of how to deal with the unknown
Not knowing it will or wont grow and the treatment if it does-craniotomy scares the hell out of me
I’d imagine most if not all
Have extreme anxiety and
Just trying to cope and deal with the diagnosis
5 cm large right frontal area.
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