Hi my name is Rosanne, i’m 52 and I have recently been diagnosed with a 1cm left anterior clinoid meningioma that was found because of left peripheral vision loss. I’m looking to connect with others who have had the surgery to remove this tumor to find out their outcomes, recommendations, tips, etc.
Unfortunately, I’m not on the “watch and wait” list due to the loss in vision that I have. I just returned from Mayo in MN after seeing a Neuro Oncologist and Neurosurgeon and both suggest surgery sooner rather than later to preserve whatever vision they can in my left eye. I’m not a good candidate for radiation due to the proximity to my optic nerve.
Of course I have major concerns with having the surgery so if there is anyone out there willing to share their experience and recovery I’d love to hear from you.