Connect
Public Support Group 333 total results
Discussions (63)
Glioblastoma Grade 4: How do handle family conversations, sharing?
Our long story short, seizure occurred early March with an undetermined spot on my brain after MRI (infection, fluid or tumor). After several consultations with...
End is near for son with stage 4 Glioblastoma: Thanks for your support
My 34 yr old son Justin was diagnosed with a Stage 4 Glioblastoma Brain Tumor 4 yrs ago due to him having severe headaches and...
Can anyone tell me about the Optune device for glioblastoma?
My husband was diagnosed about a month and a half ago with glioblastoma. He just finished his radiation and his first round of chemo treatments....
Glioblastoma: Anyone have difficulty walking, use of legs and arms?
My husband was diagnosed with Glioblastoma last August, affecting both hemispheres of his brain. He underwent surgery to remove 90% of the cancerous cells from...
How to help my spouse with stage 4 Glioblastoma while being so sad?
HiI am a new member dealing with caregiving for my husband who has reoccurrence Glioblastoma. Would like to hear ideas about how to help him...
Why are the doctors waiting to start chemo and radiation?
Why are the doctors waiting to start chemo and radiation? Or 50-year-old son was just diagnosed with grade 4 inoperable glioblastoma. A biopsy was performed...
Home Care for Brain Tumor Patients
This is a bit off topic perhaps but do bear with me. My daughter has glioblastoma and at this point she is no longer getting...
Is anyone enrolled in the ATM-inhibitor WSD0628 trial?
My husband's Glioblastoma has progressed. He will be enrolling in the clinical trial of the ATM-inhibitor WSD0628. We are looking to connect with anyone else...
2nd Phase of Glio treatment
Hello Everyone- I will be starting the 2nd phase of treatment for glioblastoma later this week. Has anyone been through this.....5 days of temozolomide and...
GBM after two years of treatment survival of 69 year old man?
My husband 69 years was diagnosed with a glioblastoma grade 4. He had surgery, radiation and chemo. It has been two years and the GBM...
Just had a surgery and terrified of glioma diagnosis
Just had tumor removal. So terrified. Every suspicion seems so serious and the worst. Doctor suspects glioblastoma due to gliola with necrosis and edema. Has...
How many supplements are enough for GBM?
I have come up with 61 complementary therapy supplements and a few mushroom supplements! How many supplements are enough for treating grade IV Glioblastoma in...
2.5 yrs post op and MRIs reveal 2 new brain tumors: Nervous
I was wondering if anyone who has had a mengioma, had a gluoblastoma?Dr found 2 new tumors…been waiting 4months to see if benign or not....
Intimacy and cancer
My husband and I have not been intimate since my cancer (glioblastoma) diagnosis (5 years now). At first it was due to fatigue. But now...
I feel guilty about my caretakers taking care of me
Hi, I'm being treated at the Mayo Clinic, which is a wonderful experience. I'm staying at a hotel that has suites. My parents (father and...
Caring for my husband who has Brain tumor and Alzheimer's
My husband has both a glioblastoma and Alzheimer's. He is in the early stages of dementia and has good days where you wouldn't even know...
Clinical trials for Brain cancer (Glioblastomas or GBM)
Anyone know of a promising clinical trial for brain cancer (GBM)?
Grief Before the Loss
Last week my 58 year old mom was diagnosed with Stage IV Glioblastoma. We’ve been seeing the effects for almost 6 months but didn’t know...
Radiation for 70 yr old (glioblastomas grade 4)?
Good afternoon,A friend of mine learned that her dad was diagnosed with glioblastomas (grade 4.) He is 70 years old. He did the surgery and...
I'm concerned I won't make it through the Temodar course
I'm at Mayo now and my neuro-oncologist has me beginning the chemo pills (Temodar) after my radiation treatment is over on August 4th. I'd stay...
Connect