Glioblastoma Grade 4: How do handle family conversations, sharing?
Our long story short, seizure occurred early March with an undetermined spot on my brain after MRI (infection, fluid or tumor). After several consultations with neurologists and surgeons, there was little urgency based on MRI's. It didn't glow, smaller, on edge, "easy peasy" to resect, contained with edges with no urgency to remove. A couple surgeons spoke about weeks out due to schedule. Was referred to one that had urgency to remove it. After surgery feedback was total resection and 80% likely low grade. Bam with a devastating pathology report. We certainly knew things were uncertain until you knew for sure (pathology). It still hit hard. On my third week of radiation combined with Temodar. So far, little side effects with the exception of hair thinning. 🙂 I'm a 53 year old male with a great wife and daughter. I manage, cope, and take it day by day but I struggle with this and future. Wondering how others experience went, any advice, family conversations, sharing with friends/work and coping ideas. I'm a private guy that likes to handle things, so many new aspects to life.