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2nd Phase of Glio treatment

Posted by nikkijomoore67 @nikkijomoore67, Mar 22 7:58pm

Hello Everyone- I will be starting the 2nd phase of treatment for glioblastoma later this week. Has anyone been through this.....5 days of temozolomide and 23 days off for 6 months? Looking for what you experienced with side effects, etc..

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pip63 | @pip63 | Mar 24 6:31am

I just finished clinical trial and thought this is what we discussed would be next. But I have not started it yet. I am not sure what we are waiting on. I handled the chemo pretty well in the past so was thinking it would be relatively similar.
Best of luck!

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Colleen Young, Connect Director | @colleenyoung | Mar 25 3:40pm
In reply to @pip63 "I just finished clinical trial and thought this is what we discussed would be next. But..." + (show)
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I just finished clinical trial and thought this is what we discussed would be next. But I have not started it yet. I am not sure what we are waiting on. I handled the chemo pretty well in the past so was thinking it would be relatively similar.
Best of luck!

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@nikkijomoore67, I hope you saw the reply from @pip63.

Is this the trial you are both referring to?
- A Study Combining LY2157299 With Temozolomide-based Radiochemotherapy in Patients With Newly Diagnosed Malignant Glioma https://clinicaltrials.gov/study/NCT01220271

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pip63 | @pip63 | Mar 25 4:54pm
In reply to @colleenyoung "@nikkijomoore67, I hope you saw the reply from @pip63. Is this the trial you are both..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@nikkijomoore67, I hope you saw the reply from @pip63.

Is this the trial you are both referring to?
- A Study Combining LY2157299 With Temozolomide-based Radiochemotherapy in Patients With Newly Diagnosed Malignant Glioma https://clinicaltrials.gov/study/NCT01220271

Jump to this post

@colleenyoung
The study I was a part of was: NRG-BN011 phase III (NCT05095376)
Adding Lomustine to soc.

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nikkijomoore67 | @nikkijomoore67 | Mar 25 6:36pm

This is not a clinical trial, but the standard of care treatment. Finished temozolomide and proton radiation 4 weeks ago. Now I’m very curious about this, but I’m trying. Is the radio chemotherapy optune device?

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