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cure
@cure

Posts: 9
Joined: Aug 11, 2016

Clinical trials for Brain cancer (Glioblastomas or GBM)

Posted by @cure, Sep 20, 2016

Anyone know of a promising clinical trial for brain cancer (GBM)?

REPLY

Duke University has one under way, using modified polio viruses to mark cancer cells so your immune system can find them and attack. I don’t have contact information on this, but I have seen several news stories over the past two months about the trial.

Hi @cure. Welcome to Connect.
I moved your message to the Brain Tumor group (https://connect.mayoclinic.org/group/brain-tumor-support-group/) so that you can connect with other people talking about glioblastomas like @js119 @ljsandlin @adri @eaglesview @dawn_giacabazi @patc.

You can find current clinical trials on these 2 databases:
– Mayo Clinic Trials http://www.mayo.edu/research/clinical-trials
– ClinicalTrials.gov https://clinicaltrials.gov/

Cure – have you been diagnosed with GBM or are you caring for someone who has?

@predictable

Duke University has one under way, using modified polio viruses to mark cancer cells so your immune system can find them and attack. I don’t have contact information on this, but I have seen several news stories over the past two months about the trial.

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Thank you.

@colleenyoung

Hi @cure. Welcome to Connect.
I moved your message to the Brain Tumor group (https://connect.mayoclinic.org/group/brain-tumor-support-group/) so that you can connect with other people talking about glioblastomas like @js119 @ljsandlin @adri @eaglesview @dawn_giacabazi @patc.

You can find current clinical trials on these 2 databases:
– Mayo Clinic Trials http://www.mayo.edu/research/clinical-trials
– ClinicalTrials.gov https://clinicaltrials.gov/

Cure – have you been diagnosed with GBM or are you caring for someone who has?

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I’m the patient.

Hi @cure
How are you doing? When you feel like sharing your journey, I am here.
My mother battled GBM. What kind of treatments if any are you undergoing?

Best wishes
Dawb

@dawn_giacabazi

Hi @cure
How are you doing? When you feel like sharing your journey, I am here.
My mother battled GBM. What kind of treatments if any are you undergoing?

Best wishes
Dawb

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Thanks for your post. I had surgery, radiation, chemo and I wear a device called Optune that sends electronic signals into the brain to retard tumor growth.

Hi @cure, @colleenyoung provided some great resources to clinical trials. I just wanted to add that the American Brain Tumor Association (ABTA) may be another resource for information. They have a clinical trial locator too: http://emergingmed.com/networks/ABTA/

@cure, I am sorry you have GBM, and wanted to let you know that there are some long-time survivors! Cheryl Broyles has a website and facebook page to provide tips and encouragement for others. She just recently posted “YES I’m alive and it’s been 16 years and 4 months since I was first diagnosed with the ugly grade 4 GBM.” Also, one of my best friends in is a 3 year survivor, doing well (surgery, glial disk, chemo). Living in the south (US), she became a patient at Duke University and visits there periodically for scans. Her husband wanted to be ready for clinical trials if ever needed. They are open to consider any trial, anywhere, depending upon the type of trial and whether or not she would qualify.

While it is anecdotal to assume that what one person does would benefit another (everyone is different) she follows an organic diet, and for the first year after diagnosis of GBM limited her diet to 10 foods (organic) purported to be anti-cancer: olive oil, lentils, ginger, fresh cranberries, gluten free bread & bran muffins, green tea, anchovies, and cruciferous veggies. Her resection surgery rendered her unable to walk unassisted, but she exercises daily, meditates daily, employs positive thinking, and has a massage once per week to assist circulation.

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