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Waldenstrom Macroglobulinemia with MYD88-wild type
Have recently been diagnosed with above cancer and currently receiving Rituximab, Dexamethasone, Bortezomib. Still early in treatment cycle but no response yet. IgM continues to...
Last active: May 30, 2023
Discussion
Waldenstrom macroglobulinemia (WM): Deciding treatment options
I was diagnosed this week with WM. No symptoms except persistent anemia and periodic breathlessness. I had a bone marrow biopsy which confirmed IgM, free...
Last active: May 25, 2024
Discussion
Waldenstrom macroglobulinemia: What can I expect with chemo?
I'm 40yr old male, just been recently diagnosed with Waldenstrom macroglobulinemia, I have no symptoms. I'm going to start chemo in a few weeks, what...
Last active: Jul 5 11:10pm
Discussion
Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?
I thinkMy dr finally found the right formula. Brukinsa, Ruxience infusions, omigam and dexamethodone. Igms finally going down. Iga non existent but other immunoglobulins much...
Last active: Aug 21 4:01pm
Discussion
Waldenstrom’s Macroglobulinemia Liver size?
Hello everyone hope you’re all well 😊 I’ve been experiencing for long term 1/2 years of sever pain in my stomach and recently worse my...
Last active: May 8, 2023
Discussion
Waldenström's Macroglobulinemia
Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer....
Last active: May 25, 2024
Discussion
Advice for Amyloidosis with Waldenstrom's macroglobulinemia
61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...
Last active: Jun 3 9:23am
Discussion
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Last active: Mar 10, 2021
Discussion
Waldenstroms Macroglobulemia
Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...
Last active: Apr 30 11:00am