Blood Cancers & Disorders Support Group

Im 64 got diagnosed with ET about 2 years ago based on blood work (Jak2). My hematologist says I’m textbook ET My count is at...

Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...

I was diagnosed in March 2025 with JAK2, TET2 and ASXL1 mutations after a bone marrow biopsy. I have had very high platelets but Hydroxyurea...

Hi my hematocrit has been high for a few years, and cardiologist suggested it see a hematologist. My pulmonologist did a sleep study and found...

I was diagnosed with POLYCYTHEMIA VERA in 2017 at age 57 and shortly thereafter with RA (I am on Rinvoq for RA). I was and...

Hello Everyone, I am 69 yo and I have had ET for 21 years. I am triple negative (NO JAK2, CALR, MPL ). I have...

I am 72 years old and have ET with JAK2 mutation. I am on HU 500 mg twice a day. I have recently developed a...

I have had ET JAK2 pos x 2 yr plts around 500 taking 2 baby asa daily. My Plts jumped to 702 and I was...

I am 79 with a one year diagnosis of ET JAK2. My platelets were slowly rising for several years before diagnosis and my kidney function...

I take 500 mg of Hydroxyurea 4 times a week for Jak2 ET and I also have severe Osteoporosis. My Oncologist is recommending "Prolia" injections...