Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
Clear Search
1,201 total results
Discussion
Anyone else with MDS had a leg bleed?
Hi , Thankyou for allowing me to join. My husband aged 75 was diagnosed with high risk MDS in April 2025 , and started inquovy...
Last active: Sep 28, 2025
Discussion
MDS (myelodysplastic syndrome): When to start treatment?
My husband has lower risk MDS (SF3B1 mutation) MPN RS T . He has had chronic anemia that has been monitored for over a couple...
Last active: Apr 21, 2025
Discussion
Does anyone have MDS with the SF3B1 mutation?
For 13 years, doctors and universities thought I had WIAHA. After a recent biopsy, it turns our I have MDS with a mutation. The mutation...
Last active: Jan 29 11:46am
Discussion
I have been diagnosed and under treatment for MDS
I have been diagnosed and under treatment for MDS. Whag are the treatments for MDS?
Last active: Dec 18, 2023
Discussion
has anyone had Long Covid, before a diagnosis of MDS?
Husband (61 years old) just diagnosed with high risk MDS, and he has had Long Covid for 5 years (one of the first to get...
Last active: Apr 19, 2025
Discussion
My MDS does not respond to treatments. What's next?
Have not responded to any treatments, not about to try transfusions only, what can I expect. I am 77 years old.
Last active: Dec 3, 2025
Discussion
MDS: How to improve my condition in watch & wait?
I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...
Last active: Aug 3, 2023
Discussion
Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?
After 6 months of treatment with Vidaza it appears that according to my doctor I may be experiencing a Paradox Effect. This effect is shown...
Last active: May 17 6:05pm