902 total results
Discussion
I have recently been diagnosed with MDS, and have so many questions.
I have just been diagnosed with MDS, and have so many questions. I will be going to Mayo Clinic for follow up opinions and understanding...
Discussion
MDS: Can someone explain how or why platelets go up or down quickly?
Can someone explain how or why platelets go up or down quickly. My diagnosis was MDS after a bone marrow biopsy and I was sent...
Discussion
MDS types: How did you find out what type you have?
Hi, I haven’t posted in a while however I follow daily. I keep seeing there are different types of MDS and it’s important to know...
Discussion
Use of Neupogen (or similar) prior to minor surgery
Has anyone with MDS used Neupogen (filgrastim) or similar prior to minor surgery to reduce the risk of infection? My concern is that even a...
Discussion
Anyone familiar with DDX41?
I just saw the pathology report from the hospital in regards to my low white blood counts and low b12 level. They noted DDX41 (R525H)...
Discussion
Myelodysplastic Syndrome and Sjogren's
I have been studying MDS and SS (both of which I have) and am beginning to see an overlap. I would appreciate others input.
Discussion
has anybody used epoetin alfa (Procrit)
my husband has RAEB and was recently put on Procrit. Does anyone have any experience with this drug for any of the MDS diseases? Am...
Discussion
Side effects of Vidaza injections
My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...
Discussion
Aplastic Anemia and vaccine influences
As a recent (12 mo) MUD stem cell transplant recipient I am faced with making a decision on pursuing a COVId vaccine. Prior to diagnosis...
Discussion
I am newly diagnosed with AML. with the inv(3) mutation,
I am Vicki, age 71, and was diagnosed with AML this month. It started with an MDS high risk after biopsy in April. Has since...
Comment
Welcome to Connect, @atsfmoji. There are quite a few members in the Blood Cancer support group...
Comment
Hi Steve, @schindsm, Welcome to Connect I’m sorry to hear about your mom’s diagnosis with MDS...