1,201 total results
Discussion
Anyone else with MDS had a leg bleed?
Hi , Thankyou for allowing me to join. My husband aged 75 was diagnosed with high risk MDS in April 2025 , and started inquovy...
Discussion
MDS (myelodysplastic syndrome): When to start treatment?
My husband has lower risk MDS (SF3B1 mutation) MPN RS T . He has had chronic anemia that has been monitored for over a couple...
Discussion
Does anyone have MDS with the SF3B1 mutation?
For 13 years, doctors and universities thought I had WIAHA. After a recent biopsy, it turns our I have MDS with a mutation. The mutation...
Discussion
I have been diagnosed and under treatment for MDS
I have been diagnosed and under treatment for MDS. Whag are the treatments for MDS?
Discussion
has anyone had Long Covid, before a diagnosis of MDS?
Husband (61 years old) just diagnosed with high risk MDS, and he has had Long Covid for 5 years (one of the first to get...
Discussion
My MDS does not respond to treatments. What's next?
Have not responded to any treatments, not about to try transfusions only, what can I expect. I am 77 years old.
Discussion
MDS: How to improve my condition in watch & wait?
I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...
Discussion
Recently diagnosed with MDS with anemia and would like to connect
I would like to share information with others. Thanks
Discussion
Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?
After 6 months of treatment with Vidaza it appears that according to my doctor I may be experiencing a Paradox Effect. This effect is shown...
Comment
Hi @doriskay79 There are different types of MDS, based on how many types of blood cells...
https://connect.mayoclinic.org/comment/1194231/
Comment
Good morning, Bonnie, and welcome to Connect. My goodness, you and your brother have both had...
Connect