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Blood Cancers & Disorders Support Group

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902 total results
Discussion
I have recently been diagnosed with MDS, and have so many questions.
I have just been diagnosed with MDS, and have so many questions. I will be going to Mayo Clinic for follow up opinions and understanding...
Last active: Apr 13 12:09pm
Discussion
MDS: Can someone explain how or why platelets go up or down quickly?
Can someone explain how or why platelets go up or down quickly. My diagnosis was MDS after a bone marrow biopsy and I was sent...
Last active: Apr 20, 2024
Discussion
MDS types: How did you find out what type you have?
Hi, I haven’t posted in a while however I follow daily. I keep seeing there are different types of MDS and it’s important to know...
Last active: May 26 1:13pm
Discussion
Use of Neupogen (or similar) prior to minor surgery
Has anyone with MDS used Neupogen (filgrastim) or similar prior to minor surgery to reduce the risk of infection? My concern is that even a...
Last active: Aug 3, 2021
Discussion
Anyone familiar with DDX41?
I just saw the pathology report from the hospital in regards to my low white blood counts and low b12 level. They noted DDX41 (R525H)...
Last active: 4 days ago
Discussion
Myelodysplastic Syndrome and Sjogren's
I have been studying MDS and SS (both of which I have) and am beginning to see an overlap. I would appreciate others input.
Last active: May 24, 2024
Discussion
has anybody used epoetin alfa (Procrit)
my husband has RAEB and was recently put on Procrit. Does anyone have any experience with this drug for any of the MDS diseases? Am...
Last active: Sep 26, 2017
Discussion
Side effects of Vidaza injections
My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...
Last active: Aug 23 9:42am
Discussion
Aplastic Anemia and vaccine influences
As a recent (12 mo) MUD stem cell transplant recipient I am faced with making a decision on pursuing a COVId vaccine. Prior to diagnosis...
Last active: Apr 24, 2023
Discussion
I am newly diagnosed with AML. with the inv(3) mutation,
I am Vicki, age 71, and was diagnosed with AML this month. It started with an MDS high risk after biopsy in April. Has since...
Last active: Oct 14, 2024