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Discussion
has anyone had Long Covid, before a diagnosis of MDS?
Husband (61 years old) just diagnosed with high risk MDS, and he has had Long Covid for 5 years (one of the first to get...
Last active: Apr 19, 2025
Discussion
My MDS does not respond to treatments. What's next?
Have not responded to any treatments, not about to try transfusions only, what can I expect. I am 77 years old.
Last active: Dec 3, 2025
Discussion
Has anyone heard of Dandelion Root being helpful on AML/MDS
Has anyone seen the studies on the positive impact of using dandelion root capsules or tea having a positive impact on AML and or MDS?...
Last active: 4 days ago
Discussion
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Last active: Apr 27, 2016
Discussion
Anyone have MDS + Hemochromatosis? Who specializes in both?
Hi, has anyone been diagnosed with MDS and hemochromatosis. Currently have a Dr. in Colorado that is retiring and thinking of going to MD. Anderson...
Last active: Oct 24, 2025
Discussion
Anyone experience swollen and sometimes painful hands with MDS
Has anyone with MDS experienced swollen and sometimes painful hands. Seems to be random and not connected to any specific activity. If you have what...
Last active: Aug 14, 2025
Discussion
Myelodysplastic Syndrome (MDS): how to increase red blood cells?
is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...
Last active: Sep 1, 2024
Discussion
Very worried about MDS. I am extremely anxious and feel very alone.
Hi guys, I am 41 years old and have recently have numerous low WBCs over about 6 months and I also have platelets of differing...
Last active: Mar 14 11:45am
Discussion
Just tired: Husband has colon cancer and I have MDS
I have been taking care of my husband for the last 3 years who has stage 4 colon cancer spread to both lungs. It has...
Support Group: Caregivers
Last active: Jul 31, 2025
Discussion
MDS treatment options other than bone marrow transplant
I have been diagnosed with MDS and bone marrow transplant is not a option. What are some other treatment options?
Last active: Jan 14, 2025