Blood Cancers & Disorders Support Group

Approximately 30 years ago, my husband's sister was suddenly diagnosed with a "blood disease" and lived less than 2 weeks after being diagnosed. She had...

As some of you may remember, this journey started for me "formally" (meaning it was caught then, but I had low platelets for at least...

I have MDS iso del 5q. Currently I'm just being monitored, with a slow decline in haemaglobin (currently 90). I also have a benign multinodular...

After an introductory stay in hospital about a year ago I have self injected expensive stuff, neupogen. One jab a week most of the time....

Just curious, if there is less oxygen going to the brain as a result of lower levels of hemoglobin, will that cause cognitive decline?

Hi I am wondering if anyone can help me determine my IPSS score for MDS. I have a copy of my Bone Marrow Biopsy test...

I have been anemic for three years and no cause has been indentified. MDS is the only thing that has been mentioned but not diagnosed....

We're looking for coverage for my husband. He has MDS MPN. We heard UCARE is good and covers well. Anyone have experience? We're in MN....

my mom has been fighting a pancreatic neuroendocrine insulinoma, well differentiated grade 3 tumor in her pancreas with metastasis to her liver for the last...

I have Parkinson’s,I had bmt for leukaemia 16. Years agoThe cancer has returned as mdsAnyone else has