How long can we be on Vidaza ?

Posted by dchavian @dchavian, Feb 26, 2019

,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the past month my Hemo goes down , ( I only got problems with my Hemoglobin levels no other problems , and barely symptoms ) to the point I needed a Blood Transfusion last month, Vidaza 5 days every 5 weeks , and Haranex injection every week , I saw the Transplant specialist and seems like I want a good candidate, I,m in Miami, Silvester Comprehensive Cancer Center , great doctor , fantastic nurses ,but still wonder how long with hat be, Doctor say for a lifetime , but how long is that period ? Wish you all the best of luck

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Justin McClanahan | @JustinMcClanahan | Feb 26, 2019

Hello @dchavian, welcome to Connect. I invite you to look at the following discussion in addition to your discussion, https://connect.mayoclinic.org/discussion/mds/. @jaylevel1 talks about being on vidaza as well and a few other members talk about MDS. As far as the length of which you can be on vidaza, unfortunately, such a specific question would be best answered by your medical provider. Is that a question you have asked your provider? You mentioned you don't have many symptoms currently, which is great. Other than your question in regards to how long you can be on Vidaza, do you have any other questions or concerns you'd like to ask members on Connect?

dchavian | @dchavian | Feb 26, 2019

In reply to @JustinMcClanahan "Hello @dchavian, welcome to Connect. I invite you to look at the following discussion in addition..." + (show)

Thank you Justin , yes I have asked my Doctor and he says I,m doing fine and there is not other choice ,but stay in the treatment, my questions was oriented to see about other patients with the same situation , it will get worse now I,m on Vidaza for 2 years? how far from other complications am I , according to there patients situation? anyway I will check in all the other discussions you mentioned ,
thanks again , is so good to be on this site .

Justin McClanahan | @JustinMcClanahan | Mar 1, 2019

@dchavian, I would like to invite @shammer to this discussion as well as they also recently joined and talked about being prescribed vidaza and may be able to share their experience as well.