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Public Support Group 1,080 total results
Discussions (85)
Anyone else with MDS had a leg bleed?
Hi , Thankyou for allowing me to join. My husband aged 75 was diagnosed with high risk MDS in April 2025 , and started inquovy...
MDS (myelodysplastic syndrome): When to start treatment?
My husband has lower risk MDS (SF3B1 mutation) MPN RS T . He has had chronic anemia that has been monitored for over a couple...
My MDS does not respond to treatments. What's next?
Have not responded to any treatments, not about to try transfusions only, what can I expect. I am 77 years old.
has anyone had Long Covid, before a diagnosis of MDS?
Husband (61 years old) just diagnosed with high risk MDS, and he has had Long Covid for 5 years (one of the first to get...
Has anyone heard of Dandelion Root being helpful on AML/MDS
Has anyone seen the studies on the positive impact of using dandelion root capsules or tea having a positive impact on AML and or MDS?...
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Anyone have MDS + Hemochromatosis? Who specializes in both?
Hi, has anyone been diagnosed with MDS and hemochromatosis. Currently have a Dr. in Colorado that is retiring and thinking of going to MD. Anderson...
Anyone experience swollen and sometimes painful hands with MDS
Has anyone with MDS experienced swollen and sometimes painful hands. Seems to be random and not connected to any specific activity. If you have what...
Myelodysplastic Syndrome (MDS): how to increase red blood cells?
is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...
Just tired: Husband has colon cancer and I have MDS
I have been taking care of my husband for the last 3 years who has stage 4 colon cancer spread to both lungs. It has...
Very worried about MDS. I am extremely anxious and feel very alone.
Hi guys, I am 41 years old and have recently have numerous low WBCs over about 6 months and I also have platelets of differing...
MDS treatment options other than bone marrow transplant
I have been diagnosed with MDS and bone marrow transplant is not a option. What are some other treatment options?
Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?
Can anything help ongoing fatigue from MDS?
I have recently been diagnosed with MDS, and have so many questions.
I have just been diagnosed with MDS, and have so many questions. I will be going to Mayo Clinic for follow up opinions and understanding...
79 year old male with MDS: Worried about increasng fatigue
I would like to know what treatments are available for MDS.I am a 78 year old male with MDS. I have been getting monthly injections...
MDS now progressing to AML and need to decide if time to start Vidaza
My 67 yr old sister has been in the hospital since June 3rd and I have to make a decision for her. She was diagnosed...
Myelodysplastic syndromes (MDS): When do you need to start treatment?
Wen do you need to start treatments for this disorder an wat best treatments are there
MDS types: How did you find out what type you have?
Hi, I haven’t posted in a while however I follow daily. I keep seeing there are different types of MDS and it’s important to know...
MDS: Can someone explain how or why platelets go up or down quickly?
Can someone explain how or why platelets go up or down quickly. My diagnosis was MDS after a bone marrow biopsy and I was sent...
Use of Neupogen (or similar) prior to minor surgery
Has anyone with MDS used Neupogen (filgrastim) or similar prior to minor surgery to reduce the risk of infection? My concern is that even a...
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