Blood Cancers & Disorders Support Group

I have been diagnosed and under treatment for MDS. Whag are the treatments for MDS?

Husband (61 years old) just diagnosed with high risk MDS, and he has had Long Covid for 5 years (one of the first to get...

Anyone dealing with these?

I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...

I would like to share information with others. Thanks

After 6 months of treatment with Vidaza it appears that according to my doctor I may be experiencing a Paradox Effect. This effect is shown...

For 13 years, doctors and universities thought I had WIAHA. After a recent biopsy, it turns our I have MDS with a mutation. The mutation...

Have not responded to any treatments, not about to try transfusions only, what can I expect. I am 77 years old.

Anyone with mast cell activation syndrome (MCAS) and MPN/MDS overlap?

Hi, has anyone been diagnosed with MDS and hemochromatosis. Currently have a Dr. in Colorado that is retiring and thinking of going to MD. Anderson...

Has anyone with MDS experienced swollen and sometimes painful hands. Seems to be random and not connected to any specific activity. If you have what...

Hi everyone, I am hoping to connect with others who have MDS with a DDX41 mutation, especially anyone with germline DDX41 or both germline and...

https://www.youtube.com/watch?v=GIIg1DokHRI&t=1879s

I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...

is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...

I have been diagnosed with MDS and bone marrow transplant is not a option. What are some other treatment options?

I have been taking care of my husband for the last 3 years who has stage 4 colon cancer spread to both lungs. It has...

Has anyone seen the studies on the positive impact of using dandelion root capsules or tea having a positive impact on AML and or MDS?...

Can anything help ongoing fatigue from MDS?

I am fairly new here and its been great, talking to people that can talk and post things first hand. I've posted a few times...