813 total results
Discussions (56)
has anybody used epoetin alfa (Procrit)
my husband has RAEB and was recently put on Procrit. Does anyone have any experience with this drug for any of the MDS diseases? Am...
Aplastic Anemia and vaccine influences
As a recent (12 mo) MUD stem cell transplant recipient I am faced with making a decision on pursuing a COVId vaccine. Prior to diagnosis...
Side effects of Vidaza injections
My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...
I am newly diagnosed with AML. with the inv(3) mutation,
I am Vicki, age 71, and was diagnosed with AML this month. It started with an MDS high risk after biopsy in April. Has since...
Blood work question: Abnormal lymphocyte and Large Platelets?
Hi, I have MDS and just got my latest blood test Tuesday. He was not as chatty as usual just said my platelets were the...
Have your copper levels been checked?
Yes, MDS is defective bone marrow not producing enough healthy cells. There is a correlation between low WBC and low levels of copper. I have...
New Dr different diagnosis
Hello everyone. I had written a month ago or so that I was trying to find a new doctor that deals with blood issues/cancers. Yay...
question for oldtimers
Since joining after my MDS diagnosis, I have noticed some people join Mayo who do not have any type of blood disorder or cancer. They...
What's the danger in longterm use of filgrastim (Neupogen)?
Can you tell me your experience and your doctor’s cautionary information about long term injections of Filgrastim? You may know this by other names such...
How long can we be on azacitidine (Vidaza)?
,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the...
How does someone “feel” with untreated AML?
My brother suffered a TBI 38 years ago. He was living independently for decades, but every day was a struggle for him. Not only with...
Anemia and exercise
I’m just sticking this here for anyone who may have significant anemia and struggle with keeping active. I’ve got MDS and have red cell transfusions...
Insurance has denied coverage
I've been fighting MF and MDS for a long time. Had a number of different treatments over the years. Some helped more than others, but...
Chimerism Test Results Post Stem Cell Transplant
Hello,My husband, Mark, 69 years old, was diagnosed with Myelodysplastic Syndromes blood cancer in May 2022 and had an allo SCT in November 2022 at...
MPNs - I have so many questions.
Hello, my father(73yo) was dx with MPN -PV in Oct 2024, long story short, my dad has hx of cardiac disease (triple bypass in 2013,...
Hypocellularity of 10-20% and moderate fibrosis in 25 year old?
Hi all, I recently had a bone marrow biopsy performed with the following results. The pathologist stated that I had a hypocellularity of 10-20% with...