Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
612 total results
Discussions (45)
How long can we be on azacitidine (Vidaza)?
,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the...
Last active: Jun 20, 2024
How does someone “feel” with untreated AML?
My brother suffered a TBI 38 years ago. He was living independently for decades, but every day was a struggle for him. Not only with...
Last active: Feb 24, 2024
Insurance has denied coverage
I've been fighting MF and MDS for a long time. Had a number of different treatments over the years. Some helped more than others, but...
Last active: Jan 11, 2024
Chimerism Test Results Post Stem Cell Transplant
Hello,My husband, Mark, 69 years old, was diagnosed with Myelodysplastic Syndromes blood cancer in May 2022 and had an allo SCT in November 2022 at...
Last active: May 21, 2024
Coping with long term cancers
I guess on one level, having to cope with long term cancer is better than the alternative. :-) However, my wife was diagnosed with CLL...
Last active: Mar 11, 2019