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Discussions (54)
I am newly diagnosed with AML. with the inv(3) mutation,
I am Vicki, age 71, and was diagnosed with AML this month. It started with an MDS high risk after biopsy in April. Has since...
Blood work question: Abnormal lymphocyte and Large Platelets?
Hi, I have MDS and just got my latest blood test Tuesday. He was not as chatty as usual just said my platelets were the...
Have your copper levels been checked?
Yes, MDS is defective bone marrow not producing enough healthy cells. There is a correlation between low WBC and low levels of copper. I have...
question for oldtimers
Since joining after my MDS diagnosis, I have noticed some people join Mayo who do not have any type of blood disorder or cancer. They...
What's the danger in longterm use of filgrastim (Neupogen)?
Can you tell me your experience and your doctor’s cautionary information about long term injections of Filgrastim? You may know this by other names such...
How long can we be on azacitidine (Vidaza)?
,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the...
JAK2 and Heart Disease
I have MDS/MPN Overlap. On the MPN side I have ET and MF. I recently developed a heart problem and had an ablation at the...
How does someone “feel” with untreated AML?
My brother suffered a TBI 38 years ago. He was living independently for decades, but every day was a struggle for him. Not only with...
Anemia and exercise
I’m just sticking this here for anyone who may have significant anemia and struggle with keeping active. I’ve got MDS and have red cell transfusions...
Insurance has denied coverage
I've been fighting MF and MDS for a long time. Had a number of different treatments over the years. Some helped more than others, but...
Chimerism Test Results Post Stem Cell Transplant
Hello,My husband, Mark, 69 years old, was diagnosed with Myelodysplastic Syndromes blood cancer in May 2022 and had an allo SCT in November 2022 at...
Coping with long term cancers
I guess on one level, having to cope with long term cancer is better than the alternative. :-) However, my wife was diagnosed with CLL...
MPNs - I have so many questions.
Hello, my father(73yo) was dx with MPN -PV in Oct 2024, long story short, my dad has hx of cardiac disease (triple bypass in 2013,...
Hypocellularity of 10-20% and moderate fibrosis in 25 year old?
Hi all, I recently had a bone marrow biopsy performed with the following results. The pathologist stated that I had a hypocellularity of 10-20% with...