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Blood Cancers & Disorders Support Group

Public Support Group
750 total results
Discussions (54)
I am newly diagnosed with AML. with the inv(3) mutation,
I am Vicki, age 71, and was diagnosed with AML this month. It started with an MDS high risk after biopsy in April. Has since...
Last active: Oct 14, 2024
Blood work question: Abnormal lymphocyte and Large Platelets?
Hi, I have MDS and just got my latest blood test Tuesday. He was not as chatty as usual just said my platelets were the...
Last active: Nov 3, 2023
Have your copper levels been checked?
Yes, MDS is defective bone marrow not producing enough healthy cells. There is a correlation between low WBC and low levels of copper. I have...
Last active: Mar 1, 2024
question for oldtimers
Since joining after my MDS diagnosis, I have noticed some people join Mayo who do not have any type of blood disorder or cancer. They...
Last active: Mar 10, 2024
What's the danger in longterm use of filgrastim (Neupogen)?
Can you tell me your experience and your doctor’s cautionary information about long term injections of Filgrastim? You may know this by other names such...
Support Group: Cancer
Last active: Dec 29, 2024
How long can we be on azacitidine (Vidaza)?
,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the...
Last active: Mar 10 7:35pm
JAK2 and Heart Disease
I have MDS/MPN Overlap. On the MPN side I have ET and MF. I recently developed a heart problem and had an ablation at the...
Last active: Dec 19, 2019
How does someone “feel” with untreated AML?
My brother suffered a TBI 38 years ago. He was living independently for decades, but every day was a struggle for him. Not only with...
Last active: Feb 24, 2024
Anemia and exercise
I’m just sticking this here for anyone who may have significant anemia and struggle with keeping active. I’ve got MDS and have red cell transfusions...
Last active: Jan 14 5:26pm
Insurance has denied coverage
I've been fighting MF and MDS for a long time. Had a number of different treatments over the years. Some helped more than others, but...
Last active: Jan 11, 2024
Chimerism Test Results Post Stem Cell Transplant
Hello,My husband, Mark, 69 years old, was diagnosed with Myelodysplastic Syndromes blood cancer in May 2022 and had an allo SCT in November 2022 at...
Last active: Feb 10 12:56pm
Coping with long term cancers
I guess on one level, having to cope with long term cancer is better than the alternative. :-) However, my wife was diagnosed with CLL...
Last active: Mar 11, 2019
MPNs - I have so many questions.
Hello, my father(73yo) was dx with MPN -PV in Oct 2024, long story short, my dad has hx of cardiac disease (triple bypass in 2013,...
Last active: Apr 17 10:30pm
Hypocellularity of 10-20% and moderate fibrosis in 25 year old?
Hi all, I recently had a bone marrow biopsy performed with the following results. The pathologist stated that I had a hypocellularity of 10-20% with...
Last active: Mar 15 8:28pm