Blood Cancers & Disorders Support Group

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Comments (304)

I had IgA kappa MGUS for 8 years, diagnosed this summer with SMM. They tested me...

https://connect.mayoclinic.org/comment/1158835/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2024

Hello Anonymous, Multiple Myeloma is a cancer of the plasma cells of the bone marrow, while...

https://connect.mayoclinic.org/comment/50124/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2012

I would love to connect with someone who has MM and amyloidosis like I do just...

https://connect.mayoclinic.org/comment/874406/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023

Good morning, @vmarra, the best thing that’s happened is that your mom is now in the...

https://connect.mayoclinic.org/comment/726680/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022

Ibrutinib seems to be keeping my lab levels in check and will continue with it instead...

https://connect.mayoclinic.org/comment/663091/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

I am having amyloidosis on skin..Doctor told not to scrub but i don't even touch it...

https://connect.mayoclinic.org/comment/244391/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2019

Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...

https://connect.mayoclinic.org/comment/624405/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

Lori, Thank you for the information and for your inquiry s to how my husband is...

https://connect.mayoclinic.org/comment/724274/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2022

Welcome to Connect, @dcp45. I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia....

https://connect.mayoclinic.org/comment/70600/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2017

Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256246/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2019

I was diagnosed with AL Amyloidosis nearly 2 years ago. It was randomly found during a...

https://connect.mayoclinic.org/comment/1114762/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

The ONLY symptom I had that brought me to a doctor was that I had the...

https://connect.mayoclinic.org/comment/88314/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

@cousinvinney My Kappa FLC bloodwork level of 5 was ten years ago. IF you have MGUS,...

https://connect.mayoclinic.org/comment/1490467/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

I was diagnosed with IgG MGUS in 2021 and currently have blood tests for CBC PLT...

https://connect.mayoclinic.org/comment/770884/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

Had Rituxan and Bendamustine for MZL ,and was discontinued after two cycles due tom intolerance. Oncologist...

https://connect.mayoclinic.org/comment/845626/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...

https://connect.mayoclinic.org/comment/74558/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

I had a diagnosis in April 2011 of AL amiloidosis with one organ involved, my liver....

https://connect.mayoclinic.org/comment/88301/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2016

Cataracts are, if you have any other signs with them, markers of developing Amyloidosis of some...

https://connect.mayoclinic.org/comment/723440/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022

Hi @catalpa, Blood and urine tests can help detect signs of amyloidosis. But from my understanding,...

https://connect.mayoclinic.org/comment/1377181/

Discussion: Testing for Amyloids with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2025

I took camzyos for HCM, and lost taste. I was later diagnosed with AL Amyloidosis systemic....

https://connect.mayoclinic.org/comment/1468463/

Discussion: Does anyone have change in taste while on hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2025