@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few other discussions on Connect regarding amyloidosis, but members have discussed other types of amyloidosis. They may be able to offer some general insights in to living with a rare blood cancer. Here are a few of those discussions:
– https://connect.mayoclinic.org/discussion/al-amyloidosis/
– Current diagnosis is multiple myeloma and amyloidosis, https://connect.mayoclinic.org/discussion/what-a-shocker/
@JustinMcClanahan
@divyanshi, welcome to Connect. Mayo Clinic Connect is a place where members share their experiences to gain a better understanding of their diagnosis, what they can except and maybe some insight on what they can talk with their providers about at their next appointment. Unfortunately, Mayo Clinic Connect cannot diagnose or offer medical advice. @divyanshi, if you don't mind me asking and if you are comfortable sharing, how have you been instructed to manage the diagnosis? Is the pigmentation of your eye altering your vision at all or what side-effects are you dealing with?