354 total results
Discussion
Macular amyloidosis
Hi everyone, Can you please tell me how to manage macular amyloidosis.. The pigmentation is increasing slowly and i am super stressed out.. Please help
Discussion
Could this be Amyloidosis?
I’m 57 years old and my health started to become problematic in my mid 40’s, but 9 years ago, things really picked up pace. I...
Discussion
Waldenstroms and amyloidosis
Diagnosed with the Waldenstroms a year ago, just today with amyloidosis. Will start treatment next week. Anyone have these or know anything?
Discussion
AL Amyloidosis types and Neuropathy
Hi everyone. This is my first time posting. My father has recently been diagnosed with AL Amyloidosis, and I have a lot of barely-formed questions...
Discussion
Looking for guidance...possible amyloidosis?
Hi everyone, I’m honestly posting because I’m scared and running out of patience with how slow this has been. For about five years I’ve had...
Discussion
Factor X Deficiency with Amyloidosis
I was diagnosed 3 years ago with AL Amyloidosis, along with Factor X deficiency. I was told the Factor X deficiency was very, very rare...
Discussion
Advice for Amyloidosis with Waldenstrom's macroglobulinemia
61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...
Discussion
Amyloidosis and low SpO2
I have recently been diagnosed with Amyloidosis, although I don’t know yet what type I have. They sent my biopsy sample to the Mayo Clinic...
Discussion
AL Amyloidosis maybe?
Hello. I need help/advice...36 M For the last 6 months I am having these health issues. To be more specific, I think it all started...
Discussion
Systemic AL Amyloidosis Diagnosis at 36
I'm 36 y/o and just diagnosed with systemic AL amyloidosis. My bone marrow is creating the light chains (~5% clonal population, 3% plasma cells on...
Comment
@granof6 You are right about the little information. Here is some information, if you don't know...
https://connect.mayoclinic.org/comment/1613376/
Comment
@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few...
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