Blood Cancers & Disorders Support Group

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Comments (898)

Welcome to Connect and a huge thank you for sharing your experience with CLL and your...

https://connect.mayoclinic.org/comment/1056428/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I was diagnosed 2 yrs ago after a routine mammogram with stage 4 CLL Lymphoma. Blood...

https://connect.mayoclinic.org/comment/848398/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

There are no symptoms. So far, ,every year we do general test and till 2021 every...

https://connect.mayoclinic.org/comment/750742/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

Hi @colleenyoung , Thank you for responding. He did have melanoma about 35 years ago (which...

https://connect.mayoclinic.org/comment/335646/

Discussion: Leptomeningeal Disease and CLL

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2021

Side effects are minimal and include fatigue, dry skin (my palms itch like crazy at times...

https://connect.mayoclinic.org/comment/1091143/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Welcome to Connect, @lambo1 You sure jumped in with both feet having all this medical excitement...

https://connect.mayoclinic.org/comment/947474/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2023

Now 8 or 9 years at level 0 and though I get a little tired at...

https://connect.mayoclinic.org/comment/864401/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2023

I am not sure about CLL but I had 12 severe mouth lesions last week ....

https://connect.mayoclinic.org/comment/1387627/

Discussion: Has anybody heard of using Red Light Therapy in CLL?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2025

Hi econnor, This site has many people who are more qualified to answer your query than...

https://connect.mayoclinic.org/comment/298970/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2020

Yes the diagnosis of CLL really caught me off guard. I show no symptoms other than...

https://connect.mayoclinic.org/comment/798370/

Discussion: Lymphoma or Not? Watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

I have been taking imbruvica since August 2020. Started out with 480 mg once a day...

https://connect.mayoclinic.org/comment/1090658/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

@sveta25. When you have concerns like this about your husband’s health and noticing that he’s getting...

https://connect.mayoclinic.org/comment/1455169/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

I have had CLL since 2017 and now another non-hodgkin lymphoma. My back hurts all the...

https://connect.mayoclinic.org/comment/860825/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2023

Keeping in mind when you read the conversations that not all will apply to you. We...

https://connect.mayoclinic.org/comment/843285/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

Hello @grecarmar I do not have CLL I have splenic marginal zone small B cell Lymphoma....

https://connect.mayoclinic.org/comment/273084/

Discussion: CLL and Managing an Enlarged Spleen

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2019

Hi, it's January 18, 2018. Are you still alive, Dougmann? I hope so! If so, how...

https://connect.mayoclinic.org/comment/165737/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2018

I also had a rash in 2015 that they couldn’t explain. Just it me on mega...

https://connect.mayoclinic.org/comment/996650/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Hi @layala, welcome. That does sound confounding to hear that you are in the early stages...

https://connect.mayoclinic.org/comment/801580/

Discussion: Concerned: CLL in remission, but feel lousy, what to do?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

I was recently diagnosed with CLL. I haven't had any treatment yet. However, in the last...

https://connect.mayoclinic.org/comment/1094480/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Hi @sofaramnotdead, CAR-T cell therapy is one of the most promising areas of cancer treatment, especially...

https://connect.mayoclinic.org/comment/622500/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2021