Blood Cancers & Disorders Support Group

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Comments (857)

Hi @anniehall12. While you’re waiting for other members who take Brukinsa to pop into the conversation...

https://connect.mayoclinic.org/comment/1365621/

Discussion: Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?

Support Group: Blood Cancers & Disorders

Posted: Aug 7 10:22am

I'm happy for those who report little or no pain- times have changed it seems. I'm...

https://connect.mayoclinic.org/comment/1152995/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024

I don't know where the idea that Mayo "suggests 2 cups per day" of green tea...

https://connect.mayoclinic.org/comment/790783/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2022

Hi @kegraves, I'd like to add my welcome. I've moved your discussion to the Blood Cancers...

https://connect.mayoclinic.org/comment/714972/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

My husband was diagnosed 20 years ago when he had blood work done for a simple...

https://connect.mayoclinic.org/comment/790987/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2022

Not that I have been told the more I talk to people the worse I feel...

https://connect.mayoclinic.org/comment/1233790/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Feb 10 1:12pm

I was diagnosed in November 2023. I was waylaid by my fall in December 2023 and...

https://connect.mayoclinic.org/comment/1323648/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Jun 9 11:50am

Patients received 2000mg EGCG twice daily for 6 months. Following a case series publication by Dr....

https://connect.mayoclinic.org/comment/803562/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2023

Welcome, @jns. I moved your message about Calquence (acalabrutinib) and decreasing white blood cells to this...

https://connect.mayoclinic.org/comment/773986/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

A year and half ago, I went to the ER with a non fully functional right...

https://connect.mayoclinic.org/comment/951784/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...

https://connect.mayoclinic.org/comment/194316/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: May 9, 2019

I was diagnosed with CLL in October 2017 with WBC of 32,000 and lower platelet counts....

https://connect.mayoclinic.org/comment/113614/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2017

My husband was diagnosed with CLL at the end of 2019, through his first trial he...

https://connect.mayoclinic.org/comment/793277/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2023

I found your post to be very interesting. I also have CLL and would like to...

https://connect.mayoclinic.org/comment/1326817/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 14 7:15am

Hi there...I am 53, and was diagnosed with CLL this week. I got the news while...

https://connect.mayoclinic.org/comment/1098411/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

CC: after 5 blood tests showed a high WBC with no simple explanation found, I was...

https://connect.mayoclinic.org/comment/843633/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023

That’s very encouraging news from the hematologist. I know ‘watch and wait’ can feel like something...

https://connect.mayoclinic.org/comment/714976/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

Greetings. Appreciate having this forum for comment and assistance. My initial CLL diagnosis was in 2014...

https://connect.mayoclinic.org/comment/848335/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Hi @mygirl. It’s important for you to follow the guidelines from your ophthalmologist at the time...

https://connect.mayoclinic.org/comment/1312043/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 24 3:31pm

God bless you and surround you with a long healthy life to come; fellow CLL Member;...

https://connect.mayoclinic.org/comment/113635/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2018