Blood Cancers & Disorders Support Group

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Comments (771)

Venclexta is a very effective therapy. I’ve been on it for many months along with infusions...

https://connect.mayoclinic.org/comment/1087392/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Well, I was diagnosed with CLL at 75. My white blood cells were trending up. From...

https://connect.mayoclinic.org/comment/1107459/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2024

In June I had Cyto and Fish both indicate CLL. Also had biopsies - on on...

https://connect.mayoclinic.org/comment/1100330/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

No real symptoms yet, more night sweats, and sweaty palms, and face flushing. I’m 70 so...

https://connect.mayoclinic.org/comment/847617/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

I am fortunate to have the least aggressive form of CLL. What works for one person...

https://connect.mayoclinic.org/comment/1251240/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Mar 5 4:44pm

@lorimbt I am on no meds and my wbc is over norm. Last one was 44,000....

https://connect.mayoclinic.org/comment/927568/

Discussion: Haptoglobin RBC major issues

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023

Hi @me81 and @living, the studies conducted were specific to early-stage chronic lymphocytic leukemia (CLL) and...

https://connect.mayoclinic.org/comment/335868/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2021

I actually have not noticed anything out of the ordinary. My numbers started climbing back in...

https://connect.mayoclinic.org/comment/1318657/

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 2 1:15pm

My one sister with the CLL diagnoses is extremely squeamish, and like many people, and she...

https://connect.mayoclinic.org/comment/1081918/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

Hi @bochos. We can sure get a mixed bag of unsolicited advice when we get diagnosed...

https://connect.mayoclinic.org/comment/1025676/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2024

Thank you very much for merging my discussion with @kegraves. I will definitely read all of...

https://connect.mayoclinic.org/comment/741929/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2022

It's hard to distract yourself waiting for your diagnosis after a bone marrow biopsy and it...

https://connect.mayoclinic.org/comment/1364138/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 5 9:58am

Welcome, @kcjohnson1978. Thank you for sharing your husband’s journey with CLL, DLBCL/Richter’s Syndrome. It sounds as...

https://connect.mayoclinic.org/comment/1284572/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Apr 18 9:36am

I have cll.Ive been observed since 2019.My wbc is 82 now. I got 2nd opinion (...

https://connect.mayoclinic.org/comment/662165/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Hi Carol, I can feel your anxiety growing…so I hope you don’t mind but I’m going...

https://connect.mayoclinic.org/comment/1098627/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

@minnesotajim Do you happen to know which enzymes it elevates? I am an early diagnosed CLL...

https://connect.mayoclinic.org/comment/681790/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2022

Hi Carl. I've been "fighting" CLL for about 5 years. Diagnosed when I'd had a constant...

https://connect.mayoclinic.org/comment/1159526/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

Good morning, @joeeduffy, I promise you’re not alone here! This forum has been a lifeline to...

https://connect.mayoclinic.org/comment/1008772/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Folks - you gotta read this stuff carefully. Taking the "studies" listed on this site in...

https://connect.mayoclinic.org/comment/1311847/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 24 10:57am

Hi @tatayababa, I can feel your anxiety growing so I hope I can help you out...

https://connect.mayoclinic.org/comment/816552/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023