Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
Clear Search
1,123 total results
Discussion
Bruising with CLL
Hello Everyone, About a month ago, I posted a few questions for my husband concerning his recent diagnosis of CLL. He is 72 years old....
Last active: Jul 15, 2024
Discussion
CLL, Spontaneous Regression
Diagnosed with CLL at age 50 from blood tests and bone marrow my disease progressed slowly for 10 years without treatment. After 10 years my...
Last active: Jun 13 9:15am
Discussion
Hot Flashes with CLL
Wonder of this might help those of us dealing with chills and hot flashes due to our CLL. https://www.yahoo.com/news/experimental-pill-cut-hot-flashes-161925642.html
Last active: Aug 23, 2024
Discussion
Waldenstrom's, CLL or MGUS?
Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...
Last active: Nov 2, 2024
Discussion
Can CLL be hereditary?
Is it possible there is a genetic component to this disease? In my family history, my grandmother, my aunt and my mother — and oddly...
Last active: Feb 26, 2020
Discussion
CLL and immunization experience
I am wondering what experience, if any, people with CLL have had after receiving HepA/Hep B, Tdap, pneumococcal immunization, and Shingrix immunization. I appreciate any...
Last active: Aug 21, 2024
Discussion
Leptomeningeal Disease and CLL
My father (80 years old) has been diagnosed with leptomeningeal disease which has a very poor outcome. He has been taking Acalabrutinib successfully for the...
Last active: Feb 23, 2021
Discussion
Anyone diagnosed with atypical CLL?
DX of aCLL seems to have completely different symptoms than typical CLL. Just trying to find others who share the same atypical dx that my...
Last active: May 5 2:31pm
Discussion
CLL with lambda monoclonal gammopathy
I am so pleased to have found this group, have read so many posts. I am 81 years old and 1 year ago was dxed...
Last active: Apr 24, 2023