Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
645 total results
Discussion
CLL - Referral to CLL Specialist
Thank you for this resource. I have found substantial information about the treatment plans after diagnosis, criteria for diagnosis but not the protocol for referral...
Last active: Oct 13, 2019
Discussion
Leptomeningeal Disease and CLL
My father (80 years old) has been diagnosed with leptomeningeal disease which has a very poor outcome. He has been taking Acalabrutinib successfully for the...
Last active: Feb 23, 2021
Discussion
Bruising with CLL
Hello Everyone, About a month ago, I posted a few questions for my husband concerning his recent diagnosis of CLL. He is 72 years old....
Last active: Oct 11, 2022
Discussion
CLL, Spontaneous Regression
Diagnosed with CLL at age 50 from blood tests and bone marrow my disease progressed slowly for 10 years without treatment. After 10 years my...
Last active: May 4 9:46am
Discussion
Can CLL be hereditary?
Is it possible there is a genetic component to this disease? In my family history, my grandmother, my aunt and my mother — and oddly...
Last active: Feb 26, 2020
Discussion
Waldenstrom's, CLL or MGUS?
Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...
Last active: Mar 5 11:44am
Discussion
CLL - newly diagnosed
My doctor discovered smudge cells as a pre-cursor to CLL in Dec. 2015. This spring of 2016, my lyphmocyte count put over the 5000 threshold...
Last active: 2 days ago
Discussion
CLL and Managing an Enlarged Spleen
I have CLL and my recent CT scan indicates an enlarged spleen "Spleen: Enlarged, measuring 14.6 cm in length". Is that substantially larger than normal,...
Last active: Apr 3, 2021
Discussion
CLL - Symptoms at Stage 0
Periodically I get chills that last several hours without any external cause. Hot chocolate or eating sugary food does not help so low blood sugar...
Last active: May 6 7:12am