CLL and Managing an Enlarged Spleen

Hello @grecarmar. I'd like to invite a few members to this discussion that have discussed enlarged spleens and removal of spleens in addition to having a blood cancer. Although a few of these members had a different type of blood cancer, they may be able to share their experiences with the spleen. @scsimpson, @bordercolliecra, @caroldk, and @shaker1956 all discussed having an enlarged spleen or some sort of spleen issue.

@grecarmar, would you mind sharing, if you are comfortable, what your provider had to say about your enlarged spleen result?

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I’d like to join in on this discussion. I have a blood disorder & before I received my final diagnosis, I, unfortunately, received a splenectomy.

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Hello all. I have CLL and thus had a very enlarged spleen because of it. The average spleen is 12-14 CM’s in length and mine had grown to over 21 CM’s in length. This was a very dangerous situation for me as I continued to be active in sports, more specifically cycling and hockey. Even though I’m 62 yrs of age, I really give er. Lolol. I go all out. When I was diagnosed last Sept, I was totally shocked at what could have gone wrong if I had burst or damaged my spleen. It held a lot of blood. If I had been is some type of accident on my bike or was injured playing hockey I would have bled out. I was sure careful with what I was doing after that. I’m also happy to tell you that after 12 shots of chemo my spleen has gone down to 14cms. I had a CT scan and I’m 100%in remission from this horrible disease—- if I can call it that. I’m not a religious person but I do believe in God. I know he was on this journey with me. I can never be cured as its in my bone marrow but at least its in remission. So its blood tests for me every 3 months. I’m ok with that. A buddy told me “at least youre on this side of the grass”!!!!!! Amen to that!!!!’

Jump to this post

Hello @grecarmar. I'd like to invite a few members to this discussion that have discussed enlarged spleens and removal of spleens in addition to having a blood cancer. Although a few of these members had a different type of blood cancer, they may be able to share their experiences with the spleen. @scsimpson, @bordercolliecra, @caroldk, and @shaker1956 all discussed having an enlarged spleen or some sort of spleen issue.

@grecarmar, would you mind sharing, if you are comfortable, what your provider had to say about your enlarged spleen result?

Jump to this post

Hello @grecarmar. I'd like to invite a few members to this discussion that have discussed enlarged spleens and removal of spleens in addition to having a blood cancer. Although a few of these members had a different type of blood cancer, they may be able to share their experiences with the spleen. @scsimpson, @bordercolliecra, @caroldk, and @shaker1956 all discussed having an enlarged spleen or some sort of spleen issue.

@grecarmar, would you mind sharing, if you are comfortable, what your provider had to say about your enlarged spleen result?

Jump to this post

Hello @grecarmar

I do not have CLL I have splenic marginal zone small B cell Lymphoma. I had a splenectomy in July 2017. Before I had a splenectomy my spleen was 15 cm x 8 cm x 20 cm. 3 months after I had my spleen removed I had 4 weeks of rituximab. Am now in remission. I am not sure if this will help you but if you have any questions I will be glad to try and answer them.

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Hello all. I have CLL and thus had a very enlarged spleen because of it. The average spleen is 12-14 CM’s in length and mine had grown to over 21 CM’s in length. This was a very dangerous situation for me as I continued to be active in sports, more specifically cycling and hockey. Even though I’m 62 yrs of age, I really give er. Lolol. I go all out. When I was diagnosed last Sept, I was totally shocked at what could have gone wrong if I had burst or damaged my spleen. It held a lot of blood. If I had been is some type of accident on my bike or was injured playing hockey I would have bled out. I was sure careful with what I was doing after that. I’m also happy to tell you that after 12 shots of chemo my spleen has gone down to 14cms. I had a CT scan and I’m 100%in remission from this horrible disease—- if I can call it that. I’m not a religious person but I do believe in God. I know he was on this journey with me. I can never be cured as its in my bone marrow but at least its in remission. So its blood tests for me every 3 months. I’m ok with that. A buddy told me “at least youre on this side of the grass”!!!!!! Amen to that!!!!’

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