Is anyone taking Ibrutinib for marginal zone lymphoma ?

Posted by myla031 @myla031, Mar 16 10:16pm

Was diagnosed with marginal zone lymphoma and I was treated with Rituximab with minimal response. Doctor adviced me to take Ibrutinib.

@myla031, I'm tagging fellow members who have experience with ibrutinib, sold under the brand name Imbruvica, like @gg17 @northbay @bullwinkle @profrich @ckeys @gmack and @lel who may be able to share their experiences. You may also be interested in this discussion:

– I have very difficult muscle twitches on imbruvica. Any advice? https://connect.mayoclinic.org/discussion/i-have-very-difficult-muscle-twitches-on-imbruvica-any-advice/

Myla, when will you start the new treatment?

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@colleenyoung

@myla031, I'm tagging fellow members who have experience with ibrutinib, sold under the brand name Imbruvica, like @gg17 @northbay @bullwinkle @profrich @ckeys @gmack and @lel who may be able to share their experiences. You may also be interested in this discussion:

– I have very difficult muscle twitches on imbruvica. Any advice? https://connect.mayoclinic.org/discussion/i-have-very-difficult-muscle-twitches-on-imbruvica-any-advice/

Myla, when will you start the new treatment?

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My oncologist is trying to put me on their trial of the Acalabrutinib but if don't qualify she'll start me with Ibrutinib. So, I'm still waiting. But I read that Ibrutinib have lots of side effect . So I don't know what to do.

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