Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

112 total results

Comments (101)

My Dad had Waldenstroms Macroglobulinemia (rarer than amyloidosis) for 10 years from age 63 to 73....

https://connect.mayoclinic.org/comment/879943/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

My knee has a dent in it if I kneel on it are my bones soft...

https://connect.mayoclinic.org/comment/840192/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

My last sed rate in May was 23 but my MGUS (blood disorder) is progressing into...

https://connect.mayoclinic.org/comment/748762/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

Hi Mitten, sorry to hear your diagnosis, my brother died from MM he developed from being...

https://connect.mayoclinic.org/comment/733924/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2022

To all those reading my other post, let me explain in more detail what’s going to...

https://connect.mayoclinic.org/comment/733543/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2022

You may also want to check out the publications and resources in the website of the...

https://connect.mayoclinic.org/comment/722325/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2022

Considering where you had your blood drawn, not knowing your age, I don’t want to scare...

https://connect.mayoclinic.org/comment/715743/

Discussion: Elevated C4, elevated immunoglobulin, and positive ANA?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

I have WM and was on Bactrim during treatments but taken off 17 months after my...

https://connect.mayoclinic.org/comment/673115/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2022

I was diagnosed with WM in 2014. Since then, data shows that certain mutations, MYD88 and...

https://connect.mayoclinic.org/comment/662308/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Hi @ejrquast and welcome to you too! I love that you are an International Waldenstrom’s Macroglobulinemia...

https://connect.mayoclinic.org/comment/624441/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I was diagnosed originally with a blood test that looked suspicious. Then I had a bone...

https://connect.mayoclinic.org/comment/169957/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I as well have mGus and also was told that an extremely small percentage of mGus...

https://connect.mayoclinic.org/comment/1168679/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Hi Mike, I can appreciate your thoughts on whether the vaccinations had anything to do with...

https://connect.mayoclinic.org/comment/923509/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2023

@vasu11, you may also be interested in these related discussions: - Is anyone taking Ibrutinib (Imbruvica)?...

https://connect.mayoclinic.org/comment/909770/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

Hi @nandita9009 The best way to initiate an appointment request would be to go directly to...

https://connect.mayoclinic.org/comment/891236/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

Brukinsa is also known as Zanubrutinib. There are few members in the forum who have experience...

https://connect.mayoclinic.org/comment/845063/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Hello @marymoreau1948, Welcome to Mayo Connect. There are several other members in our support group who...

https://connect.mayoclinic.org/comment/844573/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2023

Thank you for reaching out for help. No doubt you are overwhelmed right now. Mayo Clinic...

https://connect.mayoclinic.org/comment/828678/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

I too have Waldenstrom macrogrobulinemia. Six years ago they thought I had NHL, BUT, Now after...

https://connect.mayoclinic.org/comment/815765/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023