Blood Cancers & Disorders Support Group

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Comments (137)

@deljr Welcome to Mayo Clinic Connect! I'm glad you found us; by the way, how did...

https://connect.mayoclinic.org/comment/661787/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2021

Hello 1oldsoul and thanks for the response. You asked about the determining factor from my biopsy...

https://connect.mayoclinic.org/comment/923949/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Hi Patrick, (@drwill) Please accept my delayed welcome to Connect. I see you were recently diagnosed...

https://connect.mayoclinic.org/comment/890524/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

I was diagnosed with Waldenstrom macroglobulinemia July of 2021. I went to the emergency room for...

https://connect.mayoclinic.org/comment/663018/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Hi @dorioeo1964, it sounds like you are in the process of being diagnosed, possibly with a...

https://connect.mayoclinic.org/comment/1602524/

Discussion: Blood cancer for Dori

Support Group: Blood Cancers & Disorders

Posted: Jun 20 3:07pm

@tracypage So sorry, My IgM levels have been fluctuating. I also experience persistent ringing in my...

https://connect.mayoclinic.org/comment/1617741/

Discussion: MGUS and hand tremor

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

@zeedee1, see these related discussions: - Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?https://connect.mayoclinic.org/discussion/waldrenstrom-macroglobulinemia/ - How are...

https://connect.mayoclinic.org/comment/1577592/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: May 18 2:20pm

Since everyone responds differently, I highly recommend joining the IWMF (International Waldenstrom’s Macroglobulinemia Foundation) - either...

https://connect.mayoclinic.org/comment/1074361/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

@vgdmayo Thanks to @loribmt for tagging me in this conversation. OHSU, going to their website, gave...

https://connect.mayoclinic.org/comment/1042904/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Hi @artmulh, I look forward to learning more about you. Having attended two of the IWMF...

https://connect.mayoclinic.org/comment/1026606/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

I am an active 75 year old and I was diagnosed with anemia, than MGUS 6...

https://connect.mayoclinic.org/comment/996268/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

My Dad had Waldenstroms Macroglobulinemia (rarer than amyloidosis) for 10 years from age 63 to 73....

https://connect.mayoclinic.org/comment/879943/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

My knee has a dent in it if I kneel on it are my bones soft...

https://connect.mayoclinic.org/comment/840192/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

My last sed rate in May was 23 but my MGUS (blood disorder) is progressing into...

https://connect.mayoclinic.org/comment/748762/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

Hi Mitten, sorry to hear your diagnosis, my brother died from MM he developed from being...

https://connect.mayoclinic.org/comment/733924/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2022

To all those reading my other post, let me explain in more detail what’s going to...

https://connect.mayoclinic.org/comment/733543/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2022

You may also want to check out the publications and resources in the website of the...

https://connect.mayoclinic.org/comment/722325/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2022

Considering where you had your blood drawn, not knowing your age, I don’t want to scare...

https://connect.mayoclinic.org/comment/715743/

Discussion: Elevated C4, elevated immunoglobulin, and positive ANA?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

I have WM and was on Bactrim during treatments but taken off 17 months after my...

https://connect.mayoclinic.org/comment/673115/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2022

I was diagnosed with WM in 2014. Since then, data shows that certain mutations, MYD88 and...

https://connect.mayoclinic.org/comment/662308/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

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