Blood cancer for Dori

Posted by dorioeo1964 @dorioeo1964, Jun 20 2:09pm

I mentioned I was diagnosed with blood cancer there's three different kinds waldenstrom macroglobulinemia, lymphoma or multiple myeloma. Out of the three which one would cause your muscles to be a little tight or to smell certain smells that I've never smelled before

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dorioeo1964 | @dorioeo1964 | Jun 20 2:11pm

I also have gone in to get a bone marrow biopsy that was sent to Mayo clinic waiting for my answer on June 29th but I'm really worried and scared I'd like to have some idea what's going on and what to expect can anyone help me with this

Colleen Young, Connect Director | @colleenyoung | Jun 20 3:07pm

Hi @dorioeo1964, it sounds like you are in the process of being diagnosed, possibly with a blood cancer. Currently, your doctor(s) are investigating 3 possibilities: Waldenstrom's macroglobulinemia, lymphoma, or multiple myeloma. You won't know what type of cancer until the results of the bone marrow biospy come back later this month. Do I have that right so far?

Of course you're worried and scared. That's normal. The waiting period is the absolute worse!

I know it's hard not to try and figure things out as you wait. Assess symptoms you might be having or read online what it might be. However, only the testing will definitely tell you what you're dealing with.

These next 9 days are going to seem really long. Right now, focus on you and things you enjoy. When you're mind starts churning with questions and "what ifs" and "why me?", then write down your questions. When you need to talk with others like @pmm @loribmt @heathermcfarland @gingerw who get it, just come back and share your worries with us.

Sending you a virtual shoulder to lean on.

Ginger, Volunteer Mentor | @gingerw | Jun 20 8:09pm

In reply to @dorioeo1964 "I also have gone in to get a bone marrow biopsy that was sent to Mayo..." + (show)

@dorioeo1964 As @colleenyoung mentioned, the waiting can certainly be the hardest part of this all! Please be gentle on yourself while the days tick off to the 29th. It will be here before you know it!

Take a walk, do some journaling or crafting, do some cooking or gardening. Pick something that gives you pleasure, something that you can "get lost in".

Once you have more information, let us know and we will certainly be here to help you along.
Ginger

janemc | @janemc | Jun 21 4:59am

In reply to @dorioeo1964 "I also have gone in to get a bone marrow biopsy that was sent to Mayo..." + (show)

@dorioeo1964

I'm so sorry for what you're going through.

We can't put our arms around you, but we care. On this forum, 24/7/365, there is someone listening, someone who's been through it all.

When I am furious at the tricks my body plays on me, I drive to a lovely place, or I read a favorite book. Best of all, I spend time with my dogs.

What brings you comfort, dorioeo?

jodyjazz | @jodyjazz | Jun 22 7:44am

The mentors and moderators on here (i call them the guard rails) are wonderful and insightful. As much as possible don't let you mind (scary thoughts) take over and rule you. Hang tight, and stay on here the support and info is priceless. Hugs..........Jody

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