Blood Cancers & Disorders Support Group

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Comments (1,024)

@nrdl2879 I am so sorry to hear about your MDS. Can you find out if the...

https://connect.mayoclinic.org/comment/1360358/

Discussion: Just tired: Husband has colon cancer and I have MDS

Support Group: Caregivers

Posted: Jul 30, 2025

Hi! My husband was just dx Today with MDS.The ref matl we received is scary. It’s...

https://connect.mayoclinic.org/comment/1282841/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2025

rbhawk48 A 2nd opinion would be helpful. Can you file for benefits under the Pact Act?...

https://connect.mayoclinic.org/comment/1162546/

Discussion: Vietnam Vet and exposure to Benzene

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

I have MDs with hg levels between 9.0 & 11. When doing any activity I lose...

https://connect.mayoclinic.org/comment/1462589/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

@mmkennedy I meant to wrote last night and send but i did not and my post...

https://connect.mayoclinic.org/comment/1479969/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Jan 11 5:48pm

Hi everyone. I was diagnosed with primary Myleofibrosis , MDS in March 2025. I was also...

https://connect.mayoclinic.org/comment/1487573/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 5:24pm

Hi Howard, even though this MDS is the diagnosis you were expecting it’s still a shock...

https://connect.mayoclinic.org/comment/819458/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

We have several members in the forum who are receiving Vidaza treatments for their MDS or...

https://connect.mayoclinic.org/comment/1418774/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

So I had high WBC and platelet numbers and went to Sloan Cancer Center. They performed...

https://connect.mayoclinic.org/comment/298974/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2020

I am 77 and was diagnosed with MDS 10 months ago. A few failed treatments, now...

https://connect.mayoclinic.org/comment/1411267/

Discussion: Life Expectancy of MDS-1 Patients

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2025

Good Day Lori, Thank you for sharing your journey with us. I was feeling a little...

https://connect.mayoclinic.org/comment/1330985/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2025

So another question has popped into my brain… So Mom has 10% blasts based on bone...

https://connect.mayoclinic.org/comment/1193343/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Lori, I have seen many posts from you, all seem to be so uplifting. My husband...

https://connect.mayoclinic.org/comment/1041638/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 28, 2024

Hello Steve, I am a71 year old with MDS patient with Genesis Cancer Institute. Recently I...

https://connect.mayoclinic.org/comment/1431384/

Discussion: Idiopathic Thrombocytopenia: Anyone had platelet randomly drop?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

I talked to my Hematologist today instead of Aug 11th. He has diagnosed me with Low...

https://connect.mayoclinic.org/comment/1365138/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

@statmatics I hope your Dr told you that the excess blasts puts you at a higher...

https://connect.mayoclinic.org/comment/1326243/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2025

There was a recent comment on paradox effect. Can't remember the focus. I have MDS/AML the...

https://connect.mayoclinic.org/comment/1243923/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

@igorp My April 7th appointment is with the MDS doctor. I don't want to move it...

https://connect.mayoclinic.org/comment/1530105/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Mar 18 4:18pm

Hi to all I have MDs an have 1 round of chemo using Inqovi but drug...

https://connect.mayoclinic.org/comment/844954/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

I was diagnosed with myelofibrosis, mds & mpn in March 2025. Im waiting for a donor...

https://connect.mayoclinic.org/comment/1368766/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025