Blood Cancers & Disorders: Discussions | Page 1

oldkarl, thank you so much for taking the time to reply. It is my husband who...

https://connect.mayoclinic.org/comment/163803/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2017

I’m happy to hear you’re being seen by an AML specialist from Mayo-Rochester. It’s my home...

https://connect.mayoclinic.org/comment/1030654/

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

I can get no Vaccines of any kind at this time. But will not ever get...

https://connect.mayoclinic.org/comment/808310/

Discussion: Aplastic Anemia and vaccine influences

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Hi @girlmidget. Welcome to Connect! You’ve come to the right place to be able to speak...

https://connect.mayoclinic.org/comment/1264801/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 10:35am

I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...

https://connect.mayoclinic.org/comment/1042552/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Wow how brave of your husband and such incredible strength you have to be where you...

https://connect.mayoclinic.org/comment/926044/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

I realize I’m replying to myself but I hope everyone can see this. I’m starting to...

https://connect.mayoclinic.org/comment/57943/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2020

Hi Hollie, thanks. That did make things clearer. I was getting the doctors mixed up.😉 Hm....

https://connect.mayoclinic.org/comment/1172518/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

I thought I would share my experience which I am grateful that my only symptoms at...

https://connect.mayoclinic.org/comment/756572/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022

Hi - One thing I learned early on is that there is no "normal" for MDS....

https://connect.mayoclinic.org/comment/924698/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

This is so encouraging for me. I have been diagnosed with CMML however they are going...

https://connect.mayoclinic.org/comment/1096471/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

Hi @jelilien, I think right now your dad seems to be in good hands. Often oncologists...

https://connect.mayoclinic.org/comment/888310/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

I am 80 yo as well. Blood disorder manifested into MDS/AML May 2023. Blasts 26%. By...

https://connect.mayoclinic.org/comment/1240547/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19 9:07am

@dancouclanel4 I’m seriously moved to tears reading these 3 replies from you of your life and...

https://connect.mayoclinic.org/comment/1240977/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19 5:24pm

Hi @drawlings0803 It’s a good thing you had the biopsy so that your doctor could get...

https://connect.mayoclinic.org/comment/1262609/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 20 10:25am

Hi @girlmidget. My heart goes out to both you and your husband with this emotional MDS...

https://connect.mayoclinic.org/comment/1266821/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25 7:19pm

Hi @bacher, Welcome to Connect. Congratulations on your SCT for AML. I’m happy to see you...

https://connect.mayoclinic.org/comment/1264969/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 23 1:15pm

My husband has been seen by an oncology since 2017 where they had been watching his...

https://connect.mayoclinic.org/comment/940926/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

My husband will also receive a bone marrow transplant in Feb. for MDS. We are very...

https://connect.mayoclinic.org/comment/798478/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 18, 2023

thank you so much for your response, more than that, the inspiring message of how long...

https://connect.mayoclinic.org/comment/163811/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 22, 2017

Blood Cancers & Disorders Support Group