Blood Cancers & Disorders: Discussions | Page 28

Hi @deemcrae Welcome to Connect. You’re doing everything just right and in the perfect support group...

https://connect.mayoclinic.org/comment/829704/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

osm- Did you read the 2 links Lori posted above? I know Mayo has many published...

https://connect.mayoclinic.org/comment/1201820/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1 1:06pm

Hello, I've been dealing with Low-risk MDS for over 5 years, and at almost 70, feel...

https://connect.mayoclinic.org/comment/1027777/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 5, 2024

Hello, I am new to Mayo and transferred from City of Hope (long story). I am...

https://connect.mayoclinic.org/comment/946326/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 12, 2023

I was diagnosed with MDS in 2021. In March 2023 my platelets shot up to over...

https://connect.mayoclinic.org/comment/846781/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Hi renee12345 I went from normal platelets and high monocytes to low platelets in a couple...

https://connect.mayoclinic.org/comment/778948/

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Hi @nbadry, I'm tagging fellow members like @jrsav @gingerw @tristram @coynelane @darlaburley @janetlen @5qdeletion @marco88, who...

https://connect.mayoclinic.org/comment/1159672/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

Hello @bdglass, @marco88, @kgerbitz and @dabls6 I did a little research online to see if there...

https://connect.mayoclinic.org/comment/871680/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2023

That's a hard one to control.... but....You're not alone! My husband's cognitive decline is slow but...

https://connect.mayoclinic.org/comment/870556/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

I was diagnosed with Essential Thrombocytopemia at the VA Hospital based on a platelet count of...

https://connect.mayoclinic.org/comment/252016/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

Good morning, Kat. Your numbers may fluctuate for a long time to come and you’re still...

https://connect.mayoclinic.org/comment/1129232/

Discussion: My PDW is 13.7 fl. What is the normal range? What could this indicate?

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2024

Hello @jrwilli1 and welcome to Mayo Clinic Connect. It sounds like your husband has been through...

https://connect.mayoclinic.org/comment/764542/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Hello, this is dde83. I have a mild case of MDS and have had success with...

https://connect.mayoclinic.org/comment/1307896/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: May 19 2:29pm

My wife went through 1 1/2 years of treatment for severe aplastic anemia, which is closely...

https://connect.mayoclinic.org/comment/1371099/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 15 8:35am

Yes, my husband has MDS and he has had a rash on his face, neck, back,...

https://connect.mayoclinic.org/comment/1069372/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: May 17, 2024

I have MDS, diagnosed last summer. My ferratin levels are consistently 800-1000. By January of this...

https://connect.mayoclinic.org/comment/898261/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

Hi! I’m Allison! Was just diagnosed on Monday with MDS Single Lineage Dysplasia. I have the...

https://connect.mayoclinic.org/comment/1346734/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 12 4:40pm

@bromlj1 - Clinical trials targeting TP53 mutations are ongoing, focusing on cancers where this tumor suppressor...

https://connect.mayoclinic.org/comment/1322689/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 8 6:26am

I am stressed. I don’t like the “watch and wait”. I now get blood checked monthly....

https://connect.mayoclinic.org/comment/1025891/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Hi friends. I have MDS B2 & plans are for me to be admitted to the...

https://connect.mayoclinic.org/comment/1367674/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 10 12:17pm

Blood Cancers & Disorders Support Group