Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

514 total results

Comments (486)

I usually itch right after my bath, I use dove soap and will use various oils...

https://connect.mayoclinic.org/comment/946592/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

I’m going on two years now on hydroxyurea (500mg) with pretty much no side effects except...

https://connect.mayoclinic.org/comment/940886/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Hi all! Brand new MGUS IgA here, with severe neuropathic foot itch (bottom balls of feet)...

https://connect.mayoclinic.org/comment/931576/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2023

Just wondering about intense itchiness along with all the other things? It happens mostly at night...

https://connect.mayoclinic.org/comment/906937/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

I wish I had good advise about the itchy. My itch is after I shower, my...

https://connect.mayoclinic.org/comment/895756/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

I was diagnosed with this a year ago, I kept getting merous ulcers on my legs...

https://connect.mayoclinic.org/comment/817362/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Do you take it everyday or just when you feel the itch come on ?

https://connect.mayoclinic.org/comment/790875/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2022

Went through this after having my daughter. Bone marrow ruled out cancers, went on high doses...

https://connect.mayoclinic.org/comment/749257/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Hi Lori, I've been doing some research and have read in several places that these targeted...

https://connect.mayoclinic.org/comment/747457/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

Hi @talmadge81 This itchy scalp and rash must really be all encompassing, especially since you glossed...

https://connect.mayoclinic.org/comment/743159/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2022

I was diagnosed with CML almost 2 yrs ago. I did the hydroxyurea to start and...

https://connect.mayoclinic.org/comment/1425562/

Discussion: Is anyone taking Danziten (nilotinib) for CML?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2025

@pmm My back Itches off and on, and I wake up at about 5 with a...

https://connect.mayoclinic.org/comment/1422772/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

Yes, I have hereditary hemochromatosis. My ferritin is currently at 3886 and saturation is 97%. I...

https://connect.mayoclinic.org/comment/1355566/

Discussion: Hemachromatosis...

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2025

Leeann I'm doing fine with it. I was scared to. I got a reaction to it...

https://connect.mayoclinic.org/comment/1346858/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2025

I am 76 and have been on Hydrea since May 2023. I found that I was...

https://connect.mayoclinic.org/comment/1259882/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

Side effects are minimal and include fatigue, dry skin (my palms itch like crazy at times...

https://connect.mayoclinic.org/comment/1091143/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Yes, but I itch random times of the day. It’s really frustrating. I find antihistamines help...

https://connect.mayoclinic.org/comment/1088958/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

@remainanonymous Welcome to Connect. Neuropathy is a frequent topic among the MGUS members so there is...

https://connect.mayoclinic.org/comment/1051082/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Two years ago I was started on Sprycel for first 4 months after diagnosis. I lost...

https://connect.mayoclinic.org/comment/1001983/

Discussion: CML Sprycel side effects

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2024

Good Morning. I itch intermittently all day. Scalp, hands, legs and feet. I was trying different...

https://connect.mayoclinic.org/comment/820598/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023