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Blood Cancers & Disorders Support Group

Public Support Group
19 total results
Discussion
PV Itching Not After Bathing
There’s so much information out there about PV itching following contact with water. My question is simple—can the PV-related itching happen at other times of...
Last active: Oct 12, 2023
Discussion
PV: terrible itching after shower or bath
I have PV and get terrible itching for about 20- minutes after a shower or bath. A 30-minute bath solves the problem. I hope it...
Last active: Oct 11, 2023
Discussion
Hodgkin's lymphoma and itching and other side effects
I am inquiring about a family member who was recently diagnosed with classical hodgkins lymphoma. One of her first symptoms was itching along with several...
Last active: Jun 10, 2020
Discussion
Has anyone else experienced frequent infections and itching with CLL?
I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...
Last active: Nov 12, 2023
Discussion
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Last active: Mar 26, 2024
Discussion
Essential Thrombocytosis - what's your experience with Jakifi?
I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days....
Last active: Mar 16, 2023
Discussion
Essential thrombocythemia (ET) and breaking out in hives: What helps?
I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...
Last active: Feb 28, 2023
Discussion
Acquired Von Willebrand syndrome
I was recently diagnosed with Acquired Von Willebrand syndrome. I went to the hematologist initially because I was seriously concerned about massive bruising I was...
Last active: Nov 26, 2024