Blood Cancers & Disorders Support Group

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Comments (1,102)

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Today I saw the hem/onc at UCLA. I will be having a guided Bone Marrow Biopsy...

https://connect.mayoclinic.org/comment/1319791/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 3 9:38pm

I am a 69 years old was recently diagnosed with ET JAK2 mutation. I just started...

https://connect.mayoclinic.org/comment/787555/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I have also been diagnosed with MPN/ET/JAK2. It’s been recommended that I start taking HU. I’m...

https://connect.mayoclinic.org/comment/787262/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

That’s so interesting you weren’t getting a CBC draw in all that time. I had always...

https://connect.mayoclinic.org/comment/1323595/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 9 10:47am

I was also recently diagnosed (JAK2 ET) after having a routine blood test. I am in...

https://connect.mayoclinic.org/comment/1140842/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2024

Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...

https://connect.mayoclinic.org/comment/1092197/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

Hmmm I am from Canada. The HU capsules I was given are bright pink and blue....

https://connect.mayoclinic.org/comment/1161210/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

May I ask... what was everyone's Erythropoietin results? Mine was 5.. it's not "low" but more...

https://connect.mayoclinic.org/comment/842397/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

Hi Leonard I also tested for a mutation it’s a monoclonal protein spike. So with that...

https://connect.mayoclinic.org/comment/974150/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...

https://connect.mayoclinic.org/comment/1299114/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: May 7 1:14pm

Hi @arti4 I read over another discussion you started regarding Hydroxyurea for ET, and see that...

https://connect.mayoclinic.org/comment/728880/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

I and my wife (Becky) who was diagnosed with ET with Jak2 mutation this September (2024)....

https://connect.mayoclinic.org/comment/1186365/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2024

Thanks pattycake11 Yes, all other blood work and scans ultra sounds didn’t show anything except the...

https://connect.mayoclinic.org/comment/1066227/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

Hi there, I was diagnosed with CEL in December 2023 and will be having a stem...

https://connect.mayoclinic.org/comment/1061468/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

You have elevate number of thrombocytes, also known as platelets, due to a cancer gene mutation...

https://connect.mayoclinic.org/comment/980340/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

I was diagnosed with ET jak2 mutation a yr ago june..My plts range between 450 and...

https://connect.mayoclinic.org/comment/1116872/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

Hi, Eileen, since I, too, was diagnosed this summer with ET JAK2, I would be interested...

https://connect.mayoclinic.org/comment/772655/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2022