Blood Cancers & Disorders Support Group

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Comments (924)

I have JAK2+ ET and I've never had side effects from Hydrea in the 30 years...

https://connect.mayoclinic.org/comment/194375/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2021

I have taken Bcomplex since 1970 Recently my dr told me to lower the dose to...

https://connect.mayoclinic.org/comment/1031730/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Mar 11 12:41pm

Hi Helen- Thanks for your post. I was diagnosed with Essential Thrombocytemia and mutant JAK2 genes...

https://connect.mayoclinic.org/comment/328576/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2020

I have Essential thrombocytosis with JAK2 mutation. I take a drug called hydrea and it has...

https://connect.mayoclinic.org/comment/916876/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

From my understanding, both the bone marrow biopsy and a peripheral blood test can be used...

https://connect.mayoclinic.org/comment/1058852/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 28 1:02pm

I have ET Jak2 x 18 months now 71 yr old active, vegetarian , on ASA...

https://connect.mayoclinic.org/comment/1191460/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 4 hours ago

Ahhh if it were only so simple and direct. I have asked about the discrepancy and...

https://connect.mayoclinic.org/comment/905453/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2023

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25 10:17am

Hi @dale1k I am amazed at your high dose of HU since you say your RBC...

https://connect.mayoclinic.org/comment/1078783/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 1 7:00am

Hi group, I had a Jak2 that came back positive. From what I understand anything over...

https://connect.mayoclinic.org/comment/1140546/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 12 3:36pm

With higher platelet numbers you are putting yourself at a higher risk of pulmonary embolisms. From...

https://connect.mayoclinic.org/comment/869593/

Discussion: JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Hello Tresman10.......my name is Claire and I have jak2, ET and MPN. I have been on...

https://connect.mayoclinic.org/comment/310848/

Discussion: Husband has Essential Thrombocythemia (ET) & MCI

Support Group: Caregivers: Dementia

Posted: May 15, 2020

Wendy, physicians consider a number of factors when diagnosing PV because most diagnostic tests are not...

https://connect.mayoclinic.org/comment/890629/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Hi @jerrlin. In your case, you have the JAK2 mutation which caused the PV so it’s...

https://connect.mayoclinic.org/comment/870946/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

A high platelet count typically is indicative of Essential Thrombocythemia. The normal treatment is Hydroxyurea which...

https://connect.mayoclinic.org/comment/328578/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

Hello @lindaw123 I appreciate this thoughtful question. I did some research online and found the results...

https://connect.mayoclinic.org/comment/662346/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

This is where it gets confusing. The low end of our lab reference range for EPO...

https://connect.mayoclinic.org/comment/745889/

Discussion: Polycythemia: Primary or Secondary?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2022

Those of us with the JAK2 mutation, who have also been diagnosed with a blood disorder...

https://connect.mayoclinic.org/comment/836188/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

There seems to be a correlation with chromosome mutation(s) one of which is referred to as...

https://connect.mayoclinic.org/comment/766919/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2022

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021