Blood Cancers & Disorders Support Group

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Comments (1,382)

According to my Heme doc, not all ETs are cancer. I have Jak2, which is not...

https://connect.mayoclinic.org/comment/894419/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

Welcome @toriaflo. I hope you saw @loribmt's post with some info related to your question about...

https://connect.mayoclinic.org/comment/737415/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2022

i was taking a baby aspirin before the discovery of the jak2 mutation. my platelet count...

https://connect.mayoclinic.org/comment/1085852/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024

Most seem to start taking Hydroxyurea and low dose aspirin when first diagnosed with ET JAK2....

https://connect.mayoclinic.org/comment/787993/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

Welcome, @gama1287. Getting a new diagnosis comes with a steep learning curve. You've come to the...

https://connect.mayoclinic.org/comment/1464606/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Hello @apr931, Welcome to Connect. You may notice that I moved your message to combine it...

https://connect.mayoclinic.org/comment/194267/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

Being fatigued is the hydroxy it is a chemo medication which helps your bone marrow to...

https://connect.mayoclinic.org/comment/974124/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Hi - I have been diagnosed with chronic eosinophilic leukemia and the test that diagnosed it...

https://connect.mayoclinic.org/comment/1062089/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Hi, I was checked for JAK2 by a rheumatologist looking to see if I had rheumatoid...

https://connect.mayoclinic.org/comment/1228592/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

It's not necessarily true about the higher HU dose for MPL. I have the ET JAK2...

https://connect.mayoclinic.org/comment/1048208/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Hi Remo, I also have ET w/Jak2. There are a lot of different opinions on this...

https://connect.mayoclinic.org/comment/919583/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Hi, We recently found out that my 16 yo daughter has JAK2, very rare and her...

https://connect.mayoclinic.org/comment/799486/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2023

The JAK2 mutation is common among multiple blood cancers. You need to get a molecular panel...

https://connect.mayoclinic.org/comment/298976/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2020

my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...

https://connect.mayoclinic.org/comment/1279375/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

I don't think anyone is telling people not to travel, just to take their meds and,...

https://connect.mayoclinic.org/comment/1089550/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2024

For everyone’s info, I messaged through the patient portal and was told up to 10 days...

https://connect.mayoclinic.org/comment/231795/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2019

I'm a 78 year old woman withET , JAK2, diagnosis 3 months ago. On Hydrea 500...

https://connect.mayoclinic.org/comment/1520821/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 6 9:15am

From what I remember, low-impact regular exercise helps lower cortisol levels. I’ve got a somewhat stressful...

https://connect.mayoclinic.org/comment/870089/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

After two weeks on one pill of HU my eGFR went from 82 to 52. Has...

https://connect.mayoclinic.org/comment/826035/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Hello , I have been treated for PV/ JAK2 for four years . I was on...

https://connect.mayoclinic.org/comment/773685/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022