1,875 total results
Discussions (150)
Pulmonologist says I should be dead by now
This will probably feel familiar to many here when I say the path to getting a diagnosis has been a roller coaster. I was diagnosed...
How do you deal with dry eyes?
I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?
Autoimmune Diseases and Fatigue
Fatigue is probably intertwined with the definition of "illness", almost any illness, but with some conditions fatigue becomes ingrained into the afflicted person's being and...
Mycophenolate mofetil with Plaquenil
Is anyone on both Mycophenolate mofetil and plaquenil, for any reason? I have been on mycophenolate for a few months for neuropathy caused by Sjogren's...
Problem with Tongue
I haven’t seen any discussion of this problem. Perhaps I have missed it. In mid-November I started losing my sense of taste. Suddenly I could...
How do I successfully get an appointment?
I have Sjogren’s disease, have managed Type 1 diabetes for 47 years, and have had Graves’ disease and Graves’ ophthalmopathy. I was recently diagnosed with...
Difficulty processing too many words
Hi everyone. I’m still in the process of trying to figure out a diagnosis, though based on lab results and symptoms, they are leaning toward...
Medication, Autoimmune Diseases
I have Small Fiber Neuropathy and Sojgren's Syndrome so pain, any new medications it??? PAIN!!!
Anyone else dealing with painful mouth sores and burning mouth?
Sjogrens bms is making life a living hell
peptide treatment
Anyone tried peptide therapy for Sjogrens Syndrome/Disease? Trying to find help for the chronic fatigue and muscle weakness.
Dry mouth remedies
I have Sjogren's Syndrome that causes dry mouth. I have been using Biotene Oral Balance Dry Mouth Moisturizing Gel to help me sleep at night....
UCTD
New here, hello everyone! I've been diagnosed with UCTD for about 1 1/2 years. I am also diagnosed with Reynauds and Sjogren's. I've been on...
ANA positive with Mitotic Spindle Fibers
I recently tested positive for ANA with a Titer of 1:4 and a pattern on Mitotic Spindle Fibers. We ordered more bloodwork for SLE, Sjorgren's,...
UCTD and damaged tendons/ligaments
I'm 71 and within the last decade or so, acquired diagnoses of Undifferentiated Connective Tissue Disease, celiac disease, pernicious anemia, and some early Sjogren's markers....
Scleroderma SSc 12 years & counting
Hi, I've been battling SSc - diffuse systemic scleroderma for 12 years now. I am 34 years old. I also have sjogren's syndrome, Fibromyalgia, Interstitial...
British Rheumatology Conference: References & abstract discussions
Interested in the Academic Annual Conference 2026.Volume 65, Issue Supplement_2, April 2026https://academic.oup.com/rheumatology/issue/65/Supplement_2?login=falsecontent:Pain and FibromyalgiaSLE, Sjögren’s Syndrome, APS, and Other Connective Tissue DiseasesOsteoarthritis and Soft Tissue...
Post surgery sore throat
I had surgery May 7 on my elbow to remove loose bodies etc. I've had a sore throat for over two weeks now. I saw...
Insomia
Does anyone have issues with insomia I have had sjogrens for 6 years, tried many sleeping pills, and these can become ineffective. Also very drying....
Cevimaline and lung issues
I have Sjögren's and have very dry eyes and mouth. My eye doctor wanted me to try cevilamine but I did notice there is a...
Having trouble with clogged ears: Any ideas?
I've been having trouble with my ears being clogged for a few weeks. I don't have a sinus infection or anything like that. I have...
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