I haven’t seen any discussion of this problem. Perhaps I have missed it.
In mid-November I started losing my sense of taste. Suddenly I could no longer taste things very much on the top surface of my tongue. The rheumatologist I had been to for my recent bloodwork sent me to an ENT. He brushed it off as part of Sjogren’s and told me to rinse my mouth with salt water, not brush my tongue, and never use mouthwash. Following his instructions has not made a difference. In fact, changes have been for the worse.The edges and underside of my tongue now sting with most foods, and the top of the tongue mostly senses pressure and texture. It is getting hard to look forward to meals because they are always disappointing.
Has anyone else had this problem? Has anyone had advice about it? I also have Raynaud’s, a high CK level, and fibromyalgia. The tongue problem is nothing I can’t deal with, but it does worry me that it may be a symptom of something. Any input will be appreciated.