Autoimmune Diseases Support Group

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Comments (544)

Hello, I see a Rheumatologist Nurse Practioner for my Lupus and APS. I was diagnosed by...

https://connect.mayoclinic.org/comment/870812/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Jun 2, 2023

My story: I was diagnosed with fibromyalgia 25 yrs ago. I managed it well with exercise,...

https://connect.mayoclinic.org/comment/864458/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 22, 2023

@onetowatchst I certainly understand your not being able get your head around your diagnosis. I have...

https://connect.mayoclinic.org/comment/860326/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 15, 2023

@pamrod02 Autoimmune diseases are difficult because the basic symptoms can be the same for many of...

https://connect.mayoclinic.org/comment/853817/

Discussion: Anemic for a year, still undiagnosed

Support Group: Autoimmune Diseases

Posted: May 3, 2023

Thank you so much for reaching out! You have great advice. Although nice, my primary has...

https://connect.mayoclinic.org/comment/834493/

Discussion: Childhood Chronic EBV causing a variety of Adulthood Issues

Support Group: Autoimmune Diseases

Posted: Mar 30, 2023

I also was diagnosed with CP, did 47 days of Prednisone and have an MRI scheduled...

https://connect.mayoclinic.org/comment/829339/

Discussion: Autoimmune Pancreatitis

Support Group: Autoimmune Diseases

Posted: Mar 21, 2023

@tammyak22, @marilynkay, @colleenyoung, @sharing, and all...Well, my goodness. Thank you all for helping me with these...

https://connect.mayoclinic.org/comment/821989/

Discussion: Sarcoidosis pain: Does anyone experience all over pain on their skin?

Support Group: Autoimmune Diseases

Posted: Mar 6, 2023

My sincere thanks for reaching out. It's hard for me to write about my son, so...

https://connect.mayoclinic.org/comment/815808/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2023

OMG...!!! I am not alone, in my disease! I was diagnosed with cidp in 2021, my...

https://connect.mayoclinic.org/comment/812058/

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 15, 2023

I saw my PCP today for a follow up appointment, and it was apparent to me...

https://connect.mayoclinic.org/comment/789936/

Discussion: Liver and Pancreatic Duct Dilation

Support Group: Autoimmune Diseases

Posted: Dec 29, 2022

@darlas1967, your significant other is facing a number of health issues at this time. I know...

https://connect.mayoclinic.org/comment/780875/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2022

Thank YOU, Kanaaz Pereira, for moderating this RA group. It is very helpful, I believe, to...

https://connect.mayoclinic.org/comment/772545/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 13, 2022

Welcome David, I know it has to be difficult when you are diagnosed with a rare...

https://connect.mayoclinic.org/comment/770660/

Discussion: Lichen Sclerosus: Any other women dealing with this disease?

Support Group: Women's Health

Posted: Nov 8, 2022

I have vaginal lp. I wonder if I may have esophageal lp as I started clearing...

https://connect.mayoclinic.org/comment/747278/

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Sep 8, 2022

Hi, I was diagnosed with Antisynthetase Syndrome in 2019. It started out with a dry cough....

https://connect.mayoclinic.org/comment/738484/

Discussion: Antisynthetase Syndrome: Anyone else?

Support Group: Autoimmune Diseases

Posted: Aug 17, 2022

I have recently been diagnosed with IBM. My major concern is the swallowing difficulty. Only 25%...

https://connect.mayoclinic.org/comment/733940/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Aug 4, 2022

Hi, my name is Lori. I was diagnosed with juvenile rheumatoid arthritis when I was 5...

https://connect.mayoclinic.org/comment/727090/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jul 15, 2022

@meningone this must be so difficult for you. Things happening so quickly and no answers. I’m...

https://connect.mayoclinic.org/comment/708150/

Discussion: Streptomyces. Just diagnosed with this.

Support Group: Autoimmune Diseases

Posted: May 14, 2022

Hi @babsg1 ! I’m another foggy one. Reading your post made something clear to me about...

https://connect.mayoclinic.org/comment/702392/

Discussion: Central Nervous System Vasculitis and dealing with brain fog

Support Group: Autoimmune Diseases

Posted: Apr 25, 2022

Hi Good Day , In reading your issue regarding prednisone I also had been taking it...

https://connect.mayoclinic.org/comment/695665/

Discussion: Can methotrexate and/or hydroxychloroquine make RA worse?

Support Group: Autoimmune Diseases

Posted: Apr 3, 2022

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